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Authors Posts by Carol Ferenz

Carol Ferenz

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Open for Public Comment: Proposed Amendments and Fee Schedule Rates for Services Impacted by Waiver Amendments

ODP Announcement 21-072 was distributed by the Office of Developmental Programs (ODP) today. The purpose of this communication is to announce that the proposed amendments to the Consolidated, Community Living, Person/Family Directed Support (P/FDS), and Adult Autism (AAW) Waivers are available for public review and comment. ODP is also making available for public review and comment the rate setting methodology and proposed Fee Schedule Rates for services in the Waivers that are impacted by the proposed amendments.

Information regarding the proposed waiver amendment changes, including how to provide comments, can be found in the Pennsylvania Bulletin, Volume 51, Number 42, published on Saturday, October 16, 2021. The waiver amendments, the side-by-side documents, and the assumption logs used to develop the Fee Schedule Rates are available.

There is a 30-day public comment period that starts on October 16, 2021, and ends on November 15, 2021. Comments should be addressed to:

Julie Mochon
Department of Human Services, Office of Developmental Programs
625 Forster Street, Room 510
Harrisburg, PA 17120

Comments may also be submitted to ODP using subject header ”Waiver Amendment Comments.”

This ODP Announcement also includes links to register for three webinars that ODP will hold to receive comments on the proposed Waiver amendments: two webinars for the Consolidated, P/FDS, and Community Living Waivers, and one for the Adult Autism Waiver.

RCPA will be scheduling a member meeting to prepare comments to submit. If you are interested in participating, please contact Carol Ferenz, RCPA Director, IDD Division.

The Intellectual Disability/Autism (ID/A) Coalition is planning a rally to be held on the steps of the Capitol on Monday, October 25, 2021 at 11:00am. We want to make the legislators aware of the urgent need for the American Rescue Plan funds to be released to providers of service in order to enable them to invest in the workforce. Our workforce is fulfilling a critical need to support people with disabilities in their community. The time to release these funds is now!

For more information, contact Carol Ferenz, RCPA Director, IDD Division.

The statewide Work Incentives Planning and Assistance (WIPA) agencies have published a list of Regional Community Work Incentive Coordinators (CWIC) and accompanying counties supported by that agency:

STATEWIDE WIPA AGENCIES  COUNTIES SUPPORTED 

AHEDD
Joy Smith
Program Director/CWIC
866-902-4333
Adams, Allegheny, Armstrong, Bedford, Blair, Bradford, Butler, Cambria, Cameron, Centre, Clarion, Clearfield, Clinton, Crawford, Cumberland, Dauphin, Elk, Erie, Forest, Franklin, Fulton, Huntingdon, Indiana, Jefferson, Juniata, Lycoming, McKean, Mifflin, Perry, Potter, Snyder, Sullivan, Tioga, Union, Venango, Warren, Westmoreland
 

Appalachian Regional
Jennifer Tenney
Program Director/CWIC
304-293-4692

Beaver, Fayette, Greene, Lawrence, Mercer, Somerset, Washington
 

Disability Rights Pennsylvania
Phyllis Hilley  
Program Director/CWIC
800-692-7443 Ext 309

 

Berks, Bucks, Carbon, Columbia, Lackawanna, Lancaster, Lebanon, Lehigh, Luzerne, Monroe, Montgomery, Montour, Northampton, Northumberland, Pike, Schuylkill, Susquehanna, Wayne, Wyoming, York 

 

Full Circle Employment Solutions LLC
Ruchi Edwards
Program Director/CWIC
888-466-2942 Ext. 20

Philadelphia, Delaware, Chester

WIPA is designed to enable beneficiaries with disabilities to receive accurate information and use that information to make a successful transition to work. Each WIPA agency has a CWIC who will:

  • provide in-depth counseling about benefits and the effect of work on those benefits;
  • conduct outreach efforts to beneficiaries of SSI and SSDI (and their families) who are potentially eligible to participate in federal or state Work Incentives programs; and
  • work in cooperation with federal, state, and private agencies and nonprofit organizations that serve SSI and SSDI beneficiaries with disabilities.

Source: York Dispatch, Oct. 13, 2021

Pennsylvania’s legislators and governor should be ashamed of themselves. They are not taking care of the people of this state, and it doesn’t seem to bother anyone in the legislature unless it affects them directly.

My children are the most important people in the world to me. My only daughter, Kate, has an intellectual disability and is nonverbal. She sometimes wanders at night. She is at risk for falls. She doesn’t understand ‘stranger danger,’ and she must have help for all her personal care. This means someone has to monitor her activity 24/7. And she can’t be “dropped off at some program” (which is what a legislator once suggested to me), because there simply aren’t enough staff for those programs.

You might ask why we don’t just hire a direct support professional (DSP). Well, there aren’t any to hire. Every week, I call providers. Every week, I’m told “we don’t have staff.” And the reason there isn’t enough staff is that the state does not allocate enough funding to provide the same hourly wage for providers that Pennsylvania pays its own DSPs. Equal pay for equal work is just lip service in Pennsylvania.

The system is broken and it’s just getting worse. I know it’s because government has created this problem, and that makes me angry. We should be progressing. Instead, the system is barely surviving, and that’s the same for my beloved daughter.

So I am Kate’s staff. I am her DSP. I took money out of my retirement fund — paying a stiff tax penalty as a result — so I could give up my career to care for my daughter. That’s what moms do. We care for our children.

I work two part-time jobs, relying on family members and friends occasionally to help with Kate, but a full-time, trained DSP is what she needs. My 88-year-old mom needs my support, too, since we lost my dad during the last year. But I cannot provide that support because Kate depends on me.

What’s really bad is that Kate qualifies for more than 65 hours of support per week. That help would allow me to work full-time again and have the energy and financial means to care for Kate in the hours there aren’t any DSPs available. And there doesn’t appear to be an end in sight.

Kate’s moved from provider to provider, but when COVID hit she began regressing terribly because we could not find anyone to work with her. There is a chance we could put Kate in a group home, but even thinking about that option kills my soul. She’s my daughter — just like anyone else’s daughter — and like every parent reading this, I just want the best for my daughter. Some people need more care than others, and Kate’s one of those who needs more.

Every “fix” we have had is temporary. The only real way to fix this problem is for providers to hire more DSPs. But they can’t, because the state simply doesn’t provide the funds for them to do so. What’s worse, Pennsylvania pays its own DSPs (in its state centers, aka institutions) significantly more. That’s in direct conflict with the “equal pay for equal work” principle that Pennsylvania says is so important here.

I won’t give up. I was raised to keep fighting for the people I love. And politicians need to realize that people like Kate and I can vote. It’s shameful that they are not doing their jobs, fulfilling their duties, for people like my Kate. There’s way too much self-serving going on. Legislators push for $15 minimum wage for the average Pennsylvanian, but they pay DSPs significantly less. That’s what we’re dealing with. And sons and daughters are bearing the brunt of those decisions. My daughter is bearing the brunt of them.

Do I sound angry? Well, I am. I’m frustrated, disheartened, disillusioned, and appalled. This is a juggernaut for parents.

Thousands of Pennsylvanians are waiting for services as I type this. They are sons and daughters whose parents love them and want them to live a fulfilling life. They are like my Kate. They deserve to be cared for. And I’ll keep fighting for my daughter … for all these sons and daughters. Because that’s what moms do.

— Sandi Shaffer is the mom of Kate and is a 2017 graduate of The Children’s Institute of Pittsburgh. She is an advocate and task member of The PA Family Task Force, a statewide advocacy taskforce on behalf of families with children and adults with disabilities. Sandi has advocated for Kate and others in the intellectual disability/autism community for more than two decades. She and Kate live in Westmoreland County.

Office of Developmental Programs (ODP) Quality Management (QM) Virtual Certification Classes Registration Now Open for January – June 2022

Announcement 21-070 includes the dates for ODP’s Quality Management Virtual Certification Program for the first half of 2022. To register for a training class, you must log into MyODP and navigate to the 2022 Quality Management Certification Program – Virtual Training course (Training > Quality Management > Quality Management Certification Program > 2022 Quality Management Certification Program – Virtual Training) or by using this link.

Grab your lunch and help us celebrate!
Thursday, October 28, 2021
12:00 pm to 1:00 pm (Eastern)

An informative, virtual celebration featuring:

  • Opening remarks by Congressman Brendan Boyle, Member, Coalition for Autism Research and Education (CARE)
  • A panel discussion on employment and disability in 2021
  • Invited panelists include: 
    • William Krebs, Advocacy Coordinator, Keystone Human Services
    • India Scott, Certified Supports Broker
    • Peter O’Halloran, Administrative Assistant, Quality Progressions
  • Facilitator:
    • Jamie Ray-Leonetti, Associate Director of Policy, Institute on Disabilities

Please register in advance here: NDEAM 2021 Virtual Celebration

After registering, you will receive a confirmation email containing information about joining the meeting.

For information or to request accommodations, contact: jamie.ray-leonetti@temple.edu
Accommodations must be requested by October 21, 2021.

  • Some workers with disabilities earn less than minimum wage
  • Changes to law are possible but could hurt workers, some worry
By Paige Smith / October 12, 2021 04:46AM ET / Bloomberg Law
Nearly 80 miles outside of Washington, a low-slung, almost windowless building abuts train tracks. Inside, socially distanced people work at long tables, some for less than minimum wage. Linoleum floors and graphic signage conjure memories of elementary school.

This is where Benji K. reports to work five days a week, as he’s done for 28 years. He’s nearly 50 years old now, with a graying mullet and a firm handshake. He wears a Kiss T-shirt—he’s a diehard fan, after seeing them perform live when he was young. He’s created a Kiss museum in his basement, where he collects band memorabilia, and dolls in particular—”too many to count,” he says.

Listen to this story here .

Here at NW Works Inc., Benji, identified by his first name to help preserve his anonymity, assembles screw kits for SouthernCarlson, a tool and supply distributor. He uses a customized and color-coded pegboard to methodically count out the required number of screws. Benji then puts the screws in individual plastic bags. He’s paid based on the number of screw kits he completes each day.

“This is my favorite right here,” Benji said, referencing the kits. “I did 50 yesterday.”

Benji is one of nearly 44,000 workers in the U.S. who legally earn less than the minimum wage solely because he has a disability. For many, their hourly pay is far lower than the federal minimum wage of $7.25. At Benji’s workplace in Virginia, workers earn an average of $5.46.

Benji K. has worked at NW Works in Virginia for the past 28 years and now assembles screw kits at the facility. Debera Taylor, NW Works CEO, is Benji’s boss.

Employers can pay people with disabilities less than the minimum wage if they hold a “14(c) labor certificate.” The policy has come under scrutiny by disability advocates, businesses, states, and even Congress.

Some argue these workers shouldn’t be paid less than minimum wage under any circumstances because it’s discriminatory and amounts to “unjustified segregation.” Others say the program is the best chance for some people with disabilities to earn wages and feel productive. The law raises questions about whether the program offers work opportunities for people who otherwise might not have them, or if it exploits people with disabilities for low-cost labor.

“Their jobs are important to their self-esteem,” said Peter Berns, CEO of The Arc of the U.S., an advocacy group for people with intellectual and developmental disabilities. “We do really care what happens to these people, that they have employment opportunities, or that they have other good opportunities for how they spend their day.”

But Berns adds, “It is going the way of the dinosaur, so to speak. There are better ways to incentivize employers to hire folks with disabilities.”

A proposal that encourages states to end the program was included in the House Democrats’ $3.5 trillion dollar spending and tax reconciliation package. It would provide grants to states to support alternative business models or help workers find jobs elsewhere, in exchange for states ending the payment of subminimum wages over a five-year period.

The legislation is in line with a recommendation from the U.S. Commission on Civil Rights. Some Republicans oppose proposals to terminate the 14(c) program, and the reconciliation package’s ultimate fate in Congress is uncertain.

Paying ‘Commensurate Wage’

The Fair Labor Standards Act of 1938 created the certificate program under the law’s Section 14(c), a carve-out to legally pay people with disabilities a subminimum wage that’s remained on the books for eight decades.

Only certain disabled workers can be paid a subminimum wage under the FLSA, defined as individuals “whose earning or productive capacity is impaired by a physical or mental disability,” such as developmental disabilities, blindness, cerebral palsy, alcoholism, and drug addiction. Workers with disabilities are more widely protected by the 1990 Americans with Disabilities Act, which prohibits employers from discriminating against people with disabilities, including in pay.

Yet unemployment among people with disabilities has remained consistently high. The unemployment rate for persons with a disability was 12.6% in 2020, compared to 7.9% for those without a disability, according to U.S. Bureau of Labor Statistics data.

More than 43,900 workers are employed under the 14(c) program, according to Bloomberg Law data, and as of July 1, employers held 702 active certificates.

The U.S. Department of Labor’s Wage and Hour Division oversees the 14(c) program, both rubber-stamping the certificates and ensuring employers comply with its requirements. The agency found violations in 83% of the 3,325 14(c) investigations it conducted from 2005 to 2020, WHD Acting Administrator Jessica Looman said in an email.

President Joe Biden has called for Congress to eliminate the subminimum wage for disabled workers, a WHD spokesman said when asked about the agency’s stance on the 14(c) program.

Litigation challenging the program has been rare. However, the Civil Rights Commission report last year criticized the DOL and the Justice Department for “persistent failures in regulation and oversight” that allow businesses to profit from the workers’ labor while limiting their “full potential.”

Employers must pay a “commensurate wage,” which is determined through time studies to evaluate a worker’s productivity. The exact dollar amount is then analyzed in proportion to the wage and productivity levels of people without disabilities, according to a DOL fact sheet.

“We know that people with disabilities can work,” said Cheryl Bates-Harris, a senior disability advocacy specialist with the National Disability Rights Network. “We know how to support people with disabilities, we know people can work in thousands of occupations, but we’re just not.”

Berns, CEO of The Arc, also said that there is tremendous unemployment and underemployment for people with disabilities. Berns’ organization has state and local chapters nationwide. Some chapters of The Arc hold 14(c) certificates, though Berns says the organization is working to eliminate them.

The Arc also has other employment options available for people with disabilities beyond its 14(c) programs, as well as day programs and residential services, giving Berns some flexibility. They’re “definitely moving away from the 14(c) program,” he said. “You’re seeing the pace of that exit really escalate.”

It’s a Balance

Debera Taylor isn’t waiting around to find out what might come out of the debate over how to proceed with Section 14(c). Taylor, who is Benji’s boss, has served as chief executive officer of NW Works in Virginia since 2019.

NW Works holds a 14(c) labor certificate and also offers other employment opportunities for workers with disabilities—many of which pay the minimum wage or above. It’s located around the corner from a large Rubbermaid manufacturing facility, and the company is one of NW Works’ longest-standing business partners.

With the writing on the wall as states phase out 14(c) programs, Taylor’s goal is to transition away from that model and she is grappling with how to do so.

“What does that financial impact look like on the organization? Do we have to subsidize any of that contract?” said Taylor. For businesses, it’s not an easy task, but she said it will be possible for her company to remain viable if 14(c) ends.

She said the value NW Works offers, as well as their relatively low overall labor costs to companies, helps attract prospective businesses. Contracting with NW Works for workers who earn minimum wage or above is “still a lower cost solution” for companies looking to work with the organization, she said.

“It is a balance between, ‘how can we balance providing the production to the partner, the vendor partner, and hitting their goals, and still remaining a viable partner for them with the labor and what they pay for us?’” said Taylor.

She would, however, like to see the earnings cap raised for people with disabilities. Currently there is an earning ceiling of $1,310 per month for non-blind workers with disabilities, and workers who earn more than that are in danger of losing federal benefits like Social Security pay.

“If 14(c) goes away and we work our way out of 14(c) and we are paying our clients minimum wage or better, we need to make sure that we’re not putting their other benefits at risk,” Taylor said.

Benji uses a board to count out the correct number of screws for a kit.

Building in Flexibility

Taylor said workers paid under the 14(c) program fulfill jobs for manufacturers, but they also have flexibility because NW Works offers a range of activities for the people who enter the facility each day.

In Benji’s case, that could mean computer time spent looking up pictures of Kiss.

“Maybe he’s just not feeling productive today, he doesn’t want to work, and the job coaches in the back see that,” she said. In that case, workers can go into the facility’s community day program, or volunteer in the community in some capacity.

“It’s about choice,” Taylor said.

Kevin Fritz, an attorney with Seyfarth Shaw LLP in Chicago, has counseled employers interested in learning more about the 14(c) program, and said that “in all cases,” he’s advised against it.

“I’ve never, ever recommended that they apply,” he said. “I’ve never seen this as an area where I’ve found it to be appropriate.”

Fritz said it was important to know what the U.S. Equal Employment Opportunity Commission thought about the program, the agency which enforces federal workplace anti-discrimination law, including the ADA. The agency declined to provide a response on its official stance, though it has previously won judgments against employers that paid “severely substandard wages” to workers with intellectual disabilities.

“The world has changed so much, even in the past 10 years, that individuals with disabilities are able to participate in ways that they never have been able to before,” Fritz said.

Will Workers Be Left Behind?

No one really knows what could happen to the workers, though, if Section 14(c) is phased out, and whether workers with disabilities would lose employment opportunities.

Alaska, Maine, Maryland, New Hampshire, and Vermont have fully done away with a subminimum wage for workers with disabilities. California, Colorado, Hawaii, Oregon, and Washington have passed laws that will do the same in the coming years, according to Bloomberg Law research. On Oct. 4, Illinois banned state agencies from entering into new contracts that pay a subminimum wage and mandated they re-negotiate existing contracts to pay at least the minimum wage.

There aren’t, however, extensive studies on what’s happened in those states for workers who were previously employed by 14(c) labor certificate holders.

“There are people who can be moved to competitive employment and there are people who would have great difficulty doing that,” said Peter Blanck, head of the Burton Blatt Institute at Syracuse University. Blanck has studied disability law, as well as the 14(c) program.

“We’re at a novel time where people are looking for ways to reform the 14(c) program, and it’s not as simple as just raising the minimum wage for everyone,” Blanck said. “You might have the same outcome whereby many people with disabilities who don’t need to be there just stay there.”

Hugo Dwyer, the executive director of the advocacy group Voice of Reason, agreed that if 14(c) goes away, workers will be left behind.

“You’ve got two places to go; either competitive employment, and if you can’t do that, then you go back to a day center,” Dwyer said. “It’s cutting them off gradually, but it’s cutting them off.”

As for Benji, when asked what he would do if his job of assembling kits was no longer available to him, he had a straight-forward answer: “Whatever they want me to do.”

—With assistance from Christine Pulfrey and Jasmine Han.

To contact the reporter on this story: Paige Smith in Washington at psmith@bloomberglaw.com

To contact the editors responsible for this story: Cheryl Saenz at csaenz@bloombergindustry.com; Jay-Anne B. Casuga at jcasuga@bloomberglaw.com

 

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Summarized below are the dates for the PA Family Network workshops and monthly events for the remainder of October and into the first week of November. The corresponding flyers are also included.

October 11, 2021 • 6:00 pm – 8:00 pm
Safety in the Community Workshop

October 18, 2021 • 6:30 pm – 8:00 pm
SIBLING Good Life Group

October 20, 2021 • 6:30 pm – 7:30 pm
Family Forum: Updates

October 21, 2021 • 12:30 pm – 2:30 pm
DIRIGIR. El camino a las Relaciones Saludables
(L.E.A.D. the Way to Healthy Relationships Workshop IN SPANISH)

October 21, 2021 • 6:00 pm – 8:00 pm
Long Term Planning

October 23, 2021 • 10:00 am – 12:00 pm
Safety in the Community Workshop

Combined on One Flyer:
October 26, 2021 • 10:00 am – 12:00 pm
Waiver Basics (101) Part 1 Workshop

October 26, 2021 • 1:00 pm – 3:00 pm
Waiver Basics (101) Part 2 Workshop

October 27, 2021 • 6:00 pm – 8:00 pm
L.E.A.D. the Way to Healthy Relationships Workshop for SIBLINGS

October 28, 2021 • 6:00 pm – 8:00 pm
Safety in the Community Workshop

Combined on One Flyer:
November 2, 2021 • 6:00 pm – 8:00 pm
Waiver Basics (101) Part 1 Workshop

November 4, 2021 • 6:00 pm – 8:00 pm
Waiver Basics (101) Part 2 Workshop

November 6, 2021 • 10:00 am – 12:00 pm
L.E.A.D. the Way to Healthy Relationships Workshop