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Intellectual & Developmental Disabilities

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The Office of Developmental Programs (ODP) has provided updated guidance, ODPANN 24-120, on how to provide Life Sharing services to individuals with a Medically Complex Condition (MCC). This FAQ Version 2 includes the previous set of FAQs as well as new ones. There are three attachments to the FAQ to provide further guidance that aligns with ODP’s waivers. ODP will continue to provide additional guidance and will release new versions of the FAQ as needed.

  • Attachment 1: Guidance for Life Sharing
  • Attachment 2: Provider Qualifications for Life Sharing Agencies Serving Individuals With a Medically Complex Condition
  • Attachment 3: Decision Tree
  • Attachment 4: Medically Complex Condition (MCC) Life Sharing Frequently Asked Questions (FAQ)

ODP Announcement 22-036 is now obsolete.

Questions about this communication should be directed to the appropriate ODP Regional Office.

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A message from our national partner ANCOR:

As you know, Congress is winding down, and we only have a few more opportunities to pass the legislation to help create a standard occupational classification for DSPs. We are so close to getting this bill across the finish line–it has passed in the Senate and has also passed in House Education and Workforce Committee. The final stop is passage in the full House of Representatives.

Please help us in reaching out to your Representative and ask them to support the Recognizing the Role of Direct Support Professionals. You can use our action alert to send that message.

We especially ask that you reach out if you have any connections with House leadership offices: Speaker Johnson, Leader Jeffries, Rep. Scalise, or Rep. Emmer. The message to those offices is to put the bill on the calendar for a vote next week.

Thank you so much for all you do and for your strong advocacy efforts. If you have any questions, please do not hesitate to reach out.

Thanks!

Elise Aguilar
Senior Director of Federal Relations
American Network of Community Options and Resources
Alexandria, VA
(703) 535-7850

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Friday, February 7, 2025
1:00 pm – 2:00 pm EST; 12:00 pm – 1:00 pm CST;
11:00 am – 12:00 pm MST; 10:00 am – 11:00 am PST
Register Here

Christina Kokorelis, MD

Presenter Bio:

Christina Kokorelis, MD, is a rehabilitation physician specializing in pediatric and adult postural orthostatic tachycardia syndrome (POTS), orthostatic intolerance, and musculoskeletal rehabilitation. She takes a comprehensive, team-based approach to patient care. Dr. Kokorelis also treats children with concussions and chronic pain disorders. An assistant professor in the Johns Hopkins Department of Physical Medicine and Rehabilitation, where she completed her residency, Dr. Kokorelis followed the residency with a pediatric rehabilitation fellowship at the Johns Hopkins Hospital and the Kennedy Krieger Institute. She currently works as an attending physician in the Johns Hopkins POTS clinic and is also the Medical Director of the Pediatric POTS clinic at the Kennedy Krieger Institute in Baltimore.

Objectives: At the end of this session, the learner will:

  • Define POTS;
  • Discuss how to diagnose POTS;
  • Describe treatment approach to POTS; and
  • Discuss long-term outcomes of POTS.

Audience: This webinar is intended for all interested members of the rehabilitation team.

Level: Beginner/Intermediate

Certificate of Attendance: Certificates of attendance are available for all attendees. No CEs are provided for this course.

Complimentary webinars are a benefit of membership in IPRC/RCPA. Registration fee for non-members is $179. Not a member yet? Consider joining today.

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The Office of Development Programs (ODP) will be hosting the second quarterly residential provider forum to provide support provider Performance-Based Contracting (PBC) preparedness. During this session, ODP will provide a status update on PBC applications, review the PBC presented to the Information Sharing and Advisory Committee (ISAC) Provider Performance Review Subcommittee, review the emerging themes or trends with the application submissions, and offer the opportunity for providers to ask questions.

Audience: Residential Providers
Date: Monday, December 16, 2024
Time: 12:30 pm – 2:00 pm
Register Here

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This Office of Developmental Programs (ODP) webinar will provide information to professionals on the topic of Medically Complex Condition (MCC). This presentation will give insight as to how history has informed new practices, changes that ODP implemented, and information about how professionals can provide services to individuals with a medically complex condition.

Audience:
Professionals: Support Coordinators (SC), Administrative Entities (AE), and Providers

Date:
December 9, 2024, 10:00 am – 11:30 am

Register Here

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