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Authors Posts by Richard Edley

Richard Edley

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Dr. Richard Edley is the lead executive for RCPA and is responsible for all aspects of operations and direction for the association. His professional career began in 1988 and most recently he was president and CEO of PerformCare/Community Behavioral HealthCare Network of Pennsylvania, Inc., a national, full-service, behavioral health managed care organization.

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Having a mental health condition such as depression, anxiety, or a substance use disorder (SUD) can negatively impact one’s oral health, and conversely, poor oral health can create or exacerbate problems with mental health, cognitive health, and/or substance use. RCPA President & CEO Richard S. Edley, PhD, along with other members of the OH/BH Integration Technical Expert Panel, have developed an OH/BH Integration Framework, which includes new and innovative care models designed to enable providers and organizations to start wherever they feel comfortable.

No comprehensive set of resources currently exists to help health organizations that may be interested in more coordination or integration across oral, mental health, and substance use treatment services specifically. This toolkit, which has been finalized since the draft release in September, seeks to help oral health and behavioral health providers and organizations increase coordination and integration by offering practical suggestions, resources, strategies, and on-the-ground examples for implementation of new care models across a continuum, ranging from cross-sector provider and patient education to full system integration. It provides innovative examples from leading-edge programs across the country about how to re-engineer traditional care pathways, especially given broader adoption of telehealth.

Please find the official version of this framework here.

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Group Warns of Escalating Health and Safety Crisis in I/DD Community
Releases Video to Increase Awareness
Calls to End One-Size-Fits-All Policy Solutions

Harrisburg, Pennsylvania – Together for Choice, a national advocacy organization formed to protect and advance the rights of individuals with intellectual and developmental disabilities (I/DD), today announced the ACT NOW for Severe Autism Campaign with a consortium of partners, including the Rehabilitation and Community Providers Association (RCPA), concerned parents and other advocates. The campaign seeks to shine light on the growing health and safety crisis involving individuals with severe autism and change policies that deprive them of the services they need.

“For too long, individuals with severe autism have remained in the shadows and all too-often forgotten in policy discussions,” said Ashley Kim Weiss, National Coordinator of Together for Choice. “Most of the attention and resources have been devoted to integrating high functioning members of the I/DD community into society, which we agree is important. Equally important, however, are the most vulnerable individuals with severe disabilities who can never fully integrate and are in desperate need of customized care and support to live healthy and productive lives.

The group promoted a video, which first debuted at the RCPA Conference held in Pennsylvania last week. A parent of a severely autistic child self-financed and produced the video to combat the increasing claims of the highly vocal and publicly visible advocates of the neuro diversity community, that severe autism does not exist. Or worse yet, that the needs of those individuals with severe autism are no different than the needs of any other individual diagnosed with autism.

The video can be found at: https://youtu.be/xwvKYE5C2Ys

“While the video is at times uncomfortable to watch, it is critical that the public see the realities that these individuals and families face on a daily basis,” said Richard S. Edley, President and CEO of RCPA. “We need more resources and more flexible policy solutions to address this growing crisis. One-size-fits-all solutions must end. We must recognize that one-size does not fit everyone. People will always be left out – and sadly, it is often the most vulnerable who are forgotten.”

The group also launched a website at www.ACTNOWFORSEVEREAUTISM.com which houses the video and contains a petition to end these policies as well as more information about how the public can get involved and advocate for change in policies that discriminate against individuals with severe autism and their families.

About Together for Choice
Together for Choice (TFC) is a non-profit organization with a mission to unite to protect and advance the rights of individuals with intellectual and developmental disabilities (I/DD) to live, work and thrive in a community or setting of their choice. Please visit www.togetherforchoice.org for more information.

About the Rehabilitation and Community Providers Association:
With well over 350 members, the majority of who serve over 1 million Pennsylvanians annually, Rehabilitation and Community Providers Association (RCPA) is among the largest and most diverse state health and human services trade associations in the nation. RCPA advocates for those in need, works to advance effective state and federal public policies, serves as a forum for the exchange of information and experience, and provides professional support to members. RCPA provider members offer mental health, drug and alcohol, intellectual and developmental disabilities, children’s, brain injury, medical rehabilitation, and physical disabilities and aging services, through all settings and levels of care. Visit www.paproviders.org for more information.

 

Contact for TFC
Ashley Kim Weiss
National Coordinator
Together for Choice
P: 310-889-8800

Contact for RCPA
Richard S. Edley, PhD
President and CEO
Rehabilitation and Community Providers Association (RCPA)
P: 717-364-3280

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Having a mental health condition such as depression, anxiety, or a substance use disorder (SUD) can negatively impact one’s oral health, and conversely, poor oral health can create or exacerbate problems with mental health, cognitive health, and/or substance use. RCPA President & CEO Richard S. Edley, PhD, along with other members of the OH/BH Integration Technical Expert Panel, have developed an OH/BH Integration Framework, which includes new and innovative care models designed to enable providers and organizations to start wherever they feel comfortable.

No comprehensive set of resources currently exists to help health organizations that may be interested in more coordination or integration across oral, mental health, and substance use treatment services specifically. This toolkit seeks to help oral health and behavioral health providers and organizations increase coordination and integration by offering practical suggestions, resources, strategies, and on-the-ground examples for implementation of new care models across a continuum, ranging from cross-sector provider and patient education to full system integration. It provides innovative examples from leading-edge programs across the country about how to re-engineer traditional care pathways, especially given broader adoption of telehealth.

Please find the final draft of this framework here.

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Leading in 2021: Hoping, Healing, Helping
RCPA Conference Featuring Panel with National Advocacy Experts for Review of the Need for Equity in Service:
National Release of Video

On Thursday, September 30, a video developed by a group of parents of children with severe autism will be “unveiled” publicly and nationally at the RCPA Annual Conference for the first time. Later in the afternoon, a panel addressing these concerns titled “One Size Does Not Fit All — A Review of the Need for Equity in Service Provision and Establishing A Comprehensive Continuum of Care” will include national advocacy experts discussing how the narrow interpretation of the HCBS setting rule and other policies potentially deprive individuals with intense needs choice in where they live, work, and play. Hear from the families on how these policies have impacted their loved ones’ quality of life.

The video contains disturbing images; however, the parents who produced this video felt compelled to share the reality of severe autism in order to combat the increasing claims of the highly vocal and publicly visible advocates and others who have the sole agenda of supporting those of higher functioning in the community.

In contrast, severely autistic individuals and their families are often not publicly visible. They may not be able to safely leave the house, let alone testify in a government hearing, present at a conference, or appear on television alongside other advocates.

But severe autism is real. This is what it looks like. And those affected require a true continuum of care — from the most inclusive options to disability-specific settings — to meet their lifelong support needs, not only to thrive, but to survive. One size does not fit all.

Register today for the RCPA Conference to see this national release.

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RCPA regrets to inform our members that Charles Ray, former President/CEO for the National Council, has passed away. In his long and remarkable career, Charles effected broad changes in the behavioral health field, of which the impact is long-lasting and felt by many. Please see the message below from Chuck Ingoglia, current President and CEO of the National Council for Mental Wellbeing. The RCPA staff would like to extend our heartfelt condolences to Charles’ family, colleagues, peers, and the rest of the behavioral health community.

One of the many things that makes the National Council special is our people. Today I am deeply saddened to announce the passing of a former employee who served with distinction.

Former President & Chief Executive Officer Charles Ray led the National Council for 15 years. He was a visionary leader of the managed care movement within the mental health community. After he left the National Council, Charles went on to work with and lead several organizations, most recently serving as Chair of the Board of Directors of The REACH Institute in New York, whose mission is to bring evidence based behavioral treatment to children and adolescents.

He was a wonderful leader, but don’t just take my word for it.

Carl Clark, a former National Council Board member, also remembered Charles fondly:
“Charles Ray understood community behavioral health deeply from his running a center to the policy work he did through the National Council in Washington. He kept the needs of the people we serve and providers as the focus for making behavioral health services better in our country. I am thankful for his leadership and the lasting impact of his work.”

Betty Funk, former National Council Board member, provided this thoughtful remembrance:
“In the early days, Charles was a visionary leader of the managed care movement within the community mental health arena. It was a challenging time for all of us because we didn’t fit neatly into the complex health systems that needed to get geared up, and for the most part at the community level nationwide, we lacked comprehensive structure among ourselves. Through the National Council, and to some extent privately, Charles held the hands of all of us that got the message that we had to restructure and reorganize and learn how to collaborate, cooperative, count and compete. From the perspective of the Massachusetts system, Charles nurtured the creation of the best management practices that exist today.”

His lasting impact can be seen in many aspects of the work we continue to do, and we ask that you keep his family, friends and loved ones in your thoughts during this difficult time.

Rest in Peace, Charles.

– Chuck

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Every health and human services organization understands the enormity of the workforce crisis. Recruitment and retention have become impossible and vacancies across all service lines are evident. Unfortunately, this has also led to program closures without an end in sight. And that is one of the most alarming parts of this situation – what will change that will truly address the crisis?

[View the full RCPA position paper]

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Each day we learn more about COVID and try to better understand the rules and guidelines being promulgated for safety. Just a couple of months ago, RCPA announced that we will continue all events virtually. One month later, we announced the ability to hold hybrid events with the option to attend in person. Clearly, that is what we all want, and what we hear from RCPA members.

So, with the Annual Conference approaching at the end of September, we need to again re-evaluate where we are with our approach to such events. And discussion about COVID was obviously a big part of last week’s virtual RCPA Board meeting.
As of today, here are the RCPA guidelines:

  1. Annual Conference. The plan proceeds with a fully hybrid event. You can attend in-person for part or all of the conference and it will all be available virtually as well. We already have many sponsors and exhibitors — and the program, which is excellent, is near completion. The change, however, is that we are requiring on-site attendees — including speakers, exhibitors, etc. — to be fully vaccinated. It is the most responsible approach at this time, and you will be seeing more about this shortly. If you are not vaccinated, or are just uncomfortable attending in person, the virtual event is available and we hope you actively participate, as many did at our successful virtual conference last year.
  1. Meetings. Similarly, each RCPA division director will be discussing with members whether any upcoming meetings will be in person, hybrid, or virtual. Again, all such meetings will require on-site attendees to be fully vaccinated.
  1. Provider Site Visits. One of the hallmarks of RCPA is that staff historically have spent a great deal of time “on the road” visiting with providers for better understanding programs, services, issues, etc. COVID clearly brought that practice to a halt. Of recent, some of these important visits have been reinstated. Moving forward, this will be based on a case-by-case discussion between the RCPA staff member(s) and the provider organization.

The most current federal and local guidance will be followed regarding mask wearing at all events. Having outlined all of the above, we all know it can change again tomorrow. But given the many questions and comments from members on this issue, we felt it important to document the thinking at this time.

Thank you,

Richard S. Edley, PhD
RCPA President/CEO

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