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Authors Posts by Tim Sohosky

Tim Sohosky

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Home studio podcast interior. Microphone, laptop and on air lamp on the table, close-up

The Connection Every IDD Leader Needs w/ RCPA
Ep. 62 • December 8, 2025

In this episode of the IDD Leaders podcast, podcast host, Nate Beers, sits down with Tim Sohosky, IDD Director at RCPA (Rehabilitation and Community Providers Association), to uncover one of the most overlooked advantages available to leaders in the IDD field: your provider association.

If you’ve ever felt like you’re leading in isolation, drowning in vacancies, or constantly reacting to new regulations — you’re not alone. And you don’t have to keep going solo. Tim shares insider insights on how high-performing leaders stay ahead of staffing challenges, influence policy before it hits their agencies, and tap into resources that make their jobs easier (and their teams stronger).

Watch/listen to the podcast here. Visit the IDD Leaders podcast website for more information on the podcast and organization.

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The PA Office of Developmental Programs (ODP) hosted a Supports Coordination Organization (SCO) Forum to provide status updates and data related to the recently completed desk review for Performance-Based Contracting. All PBC submissions have been scored, and results will be emailed to SCOs shortly, with final results published on the DHS website in January 2026. The new contract cycle is effective from January 1, 2026, to June 30, 2027.

Pay-for-Performance (P4P) and Portal Feedback

  • P4P Updates: Capacity building investments continue, with $3.835 million available for Credentialing and another $3.835 million available for Technology. A total of 45 SCOs submitted for at least one of these two investments.
  • MyPBC Portal: ODP requested feedback on SCOs’ experience using the new MyPBC Portal for submissions.

Notification Letters and the Critical Resolution Process

Notification letters regarding determination are now being sent, which will include a list of any performance measures the SCO did not meet.

  • Mandatory QM Plans: SCOs with unmet measures are required to create and implement a Quality Management Plan (QMP) to meet the standards before the next PBC submission period.
  • Resolution Deadline is Strict: The most crucial detail shared is the deadline for challenging an unmet measure determination. SCOs will have only seven calendar days from the receipt of their determination letter to initiate the Resolution Process.
  • Process Guidance: The Resolution Process is strictly for submitting existing documentation that was inadvertently omitted or contained typographical errors to refute ODP’s determination. This is not an opportunity to create new materials solely to meet the standard, and newly created policies, plans, or comments on the process will not be reviewed.

Top Unmet Measures

The presentation included a breakdown of the top unmet measures across all SCOs, highlighting specific compliance challenges:

Measure Measure Description Number of SCOs Unmet Percent of SCOs Unmet
PCP.01.2 90% compliance with monitoring frequency by waiver type 38 73%
QDI.01.6 Restrictive procedure data is 86% accurate as compared to the most current BSP. 30 58%
RN.01 Register in PA Navigate Resource Platform as a CBO 15 23%

QDI (Quality Data Integrity) Measures: The purpose of QDI measures is to stress that SCOs are the primary source of data collection, and data integrity is essential for data-driven policies. ODP plans to drop these measures over time as performance improves.

  • For QDI.01.1 (Demographic Data), ODP focused on Completeness (86% threshold) this cycle, as checking for both ‘Complete AND Accurate’ resulted in nearly every SCO failing the measure. The threshold is set to increase to 93% for the FY 2027/28 contract cycle.
  • The target for PCP.01.2 (Monitoring Frequency Compliance) is 90% (P/FDS: once every three months; Consolidated/Community Living: once every two months). This threshold is also scheduled to increase to 93% in the FY 2027-2028 contract cycle.

Restrictive Procedures and Dissatisfaction Measures

  • Restrictive Procedures (RP): ODP presented details on the calculation for QDI.01.6, which compares the restrictive procedure checkbox in HCSIS against the most current Behavior Support Plan (BSP) summary text. Data showed a continued overall decrease in the rate of Restrictive Procedures incidents from 2022 to 2024.
  • Dissatisfaction Measure: For the Dissatisfaction Measure, ODP will utilize the data submitted by SCOs (the number of individuals who chose another SCO due to dissatisfaction and the reasons why) to establish a baseline for the measure and determine how to proceed with it in the future.

The presentation slide deck can be found here. SCO Providers are encouraged to continue to submit feedback and questions to ODP via the PBC Inbox.

For questions or comments, please contact Tim Sohosky.

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Thank you for sharing these important workshops and support groups with your networks! Register for upcoming events at PA Family Network’s website.

Good Life Group, Support Groups

LifeCourse Workshops

Waiver Workshops

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The Office of Developmental Programs (ODP) is sharing this important announcement from the PA Department of Health.

As of November 11, 2025, 15 infants with suspected or confirmed infant botulism were reported from 12 states: Arizona, California (2), Illinois (2), Kentucky, Minnesota, New Jersey, North Carolina, Oregon, Pennsylvania, Rhode Island, Texas (2), and Washington. Laboratory confirmation for some cases is ongoing. Illnesses started on dates ranging from mid-August to November 2025. All 15 infants were hospitalized and treated with BabyBIG®. No deaths were reported. Infants ranged in age from 16 to 157 days. State and local public health officials are interviewing caregivers about the foods infants were fed in the month before they got sick. All 15 (100%) reported feeding ByHeart Whole Nutrition infant formula. This investigation is ongoing, and additional cases may be identified.

All ByHeart Whole Nutrition Infant Formula products were recalled. This includes all unexpired lots of formula cans and single-serve “anywhere” sticks. The link to the recall can be found here.

According to the FDA, ByHeart Whole Nutrition Infant Formula makes up less than 1 percent of all infant formula sales in the United States. Given this small market share, recall of these products is unlikely to create shortage concerns of infant formula for parents and caregivers.

Summary:

  • On November 11, 2025, ByHeart, Inc. recalled all lots of ByHeart Whole Nutrition Infant Formula in response to the U.S. Food and Drug Administration’s (FDA’s) ongoing investigation into a recent outbreak of infant botulism.
  • According to the company’s website, ByHeart Whole Nutrition Infant Formula was sold through its website ByHeart.com and through retail stores nationwide, including Amazon, Kroger, Walmart, Whole Foods, Target, SamsClub, and others.
  • Infant botulism is a rare but potentially fatal paralytic illness that impacts babies less than one year old. Symptoms can include constipation, poor feeding, drooping eyelids, weak cry, and progressive muscle weakness.
  • Health care providers (HCP) should call the California Infant Botulism Treatment and Prevention Program (IBTPP) immediately at 510-231-7600 for consultation of suspected case. Consultation is available 24/7. Treatment with botulism immune globulin, BabyBIG®, obtained from California Department of Health, is recommended for all suspected cases of infant botulism.
  • Infant botulism is a reportable disease in PA; all suspected cases must be reported to the Pennsylvania Department of Health (DOH) at 1-877-PA-HEALTH or their local health department.

For More Information

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Life Sharing is a service that has one of the highest rates of satisfaction aligning with an everyday life (Independent Monitoring for Quality (IM4Q)). The Office of Developmental Programs (ODP) wants this service to continue to grow and is providing information to educate everyone about the Life Sharing service. The first step was to create promotional materials to assist with their goal. These documents were created with the assistance of Providers of Life Sharing, Administrative Entities, ODP, and feedback from Supports Coordinators.

In the near future, webinars will also be provided on Life Sharing, and ODP will communicate with stakeholders when these dates are set.

What are These Documents?

There are two documents available:

  1. The Life Sharing Brochure is intended for individuals and families with the hope that Residential Providers that offer the Life Sharing service and Supports Coordination Organizations will print these out and disseminate at their headquarters as well as pass them out as appropriate. This document easily describes what Life Sharing is at a high level.
  2. A one-page document, “Information to Help Supports Coordinators Talk to Individuals and Families About Life Sharing,” is intended for Supports Coordinators to use when having conversations with individuals and families. ODP hopes Supports Coordinators will utilize this form at Individual Support Plan (ISP) meetings and on a more routine basis to help individuals and families understand what the Life Sharing service is and to help them understand there are multiple options for residential services.

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Independent Monitoring for Quality (IM4Q) has released its October update, highlighting current activities and opportunities for involvement.

The update includes information on the 2025–2026 cycle, including sample distribution, upcoming survey materials, training reminders, and data system updates. It also provides updates on the external evaluation, Enterprise Case Management reports, and resources available on MyODP. Local programs are encouraged to review and provide feedback on reports, share lessons learned from the QA&I cycle, and ensure required trainings are completed.

In addition, the IM4Q Statewide Steering Committee is seeking new self-advocate and family member participants. The committee brings together individuals with disabilities, families, and system partners to share input and help guide statewide IM4Q efforts. Members meet quarterly (mostly online), are compensated for participation, and play a key role in shaping IM4Q surveys, reviewing reports, and ensuring that stakeholder voices are represented.

  • The full IM4Q October Information Update can be found here.
  • The IM4Q Steering Committee Membership flyer with details on how to join can be found here.

For questions or additional information, please contact Lee Stephens, Human Services Analyst, Office of Developmental Programs, via email or at 717-783-5773.

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