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The Office of Developmental Programs (ODP) has shared these important workshops from PA Family Network! August continues the series on Participant Directed Services. The team of Family Advisors will answer your questions about Participant Directed Services and how you can choose to direct your own services under the Intellectual Disability/Autism (ID/A) Waivers. These workshops are created by family members and self-advocates FOR family members and self-advocates.

Register for upcoming events.

Community Engagement Workshops: Participant Directed Services

LifeCourse Workshops

Waiver Workshops 

Support Groups

  • Caregiver Support Group: Wednesday, August 2, 2:30 pm
  • Caregiver Support Group: Monday, August 21, 6:30 pm
  • Sibling Good Life Group: Monday, August 28, 6:30 pm

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Caregiver supporting sick elderly man in the wheelchair during stay in the hospice

The U.S. Department of Health and Human Services (HHS), through the Centers for Medicare and Medicaid Services (CMS), announced the new Guiding an Improved Dementia Experience (GUIDE) Model. The purpose and goal of this model is to improve the quality of life for people living with dementia, reduce strain on unpaid caregivers, and help people remain in their homes and communities through a package of care coordination and management, caregiver education and support, and respite services.

Through the GUIDE Model, CMS will test an alternative payment for participants who deliver key supportive services to people with dementia, including comprehensive, person-centered assessments and care plans, care coordination, and 24/7 access to a support line. Under the model, people with dementia and their caregivers will have access to a care navigator, who will help them access services and supports, including clinical services and non-clinical services such as meals and transportation through community-based organizations.

The GUIDE model supports President Biden’s Executive Order that directed HHS to develop a new health care payment and service delivery model focused on dementia care that would include family caregiver supports.

There is a web page that has been created specific to this care model that provides additional information, including a link to a webinar that will provide an overview of this care model scheduled for August 10, 2023:

CMS will release the application for GUIDE, a voluntary, nationwide model, in the fall of 2023. Prior to the application release, interested organizations are encouraged to submit Letters of Intent to CMS by September 15, 2023. The model will run for eight years beginning July 1, 2024.

If you are interested in receiving additional information, updates or have questions about the GUIDE model, please send an email to the GUIDE Model team’s inbox.

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The next Managed Long-Term Services and Supports (MLTSS) Subcommittee is scheduled for August 2, 2023, from 10:00 am – 1:00 pm. The meeting will be held in the Honors Suite, 1st Floor, 333 Market St., Harrisburg, PA 17126. Participation is also available by conference call, via webinar, or through remote streaming. Please see the information below:

Conference Line:
Bridge Number: 1-213-929-4212
PIN: 445023599#
Webinar Link
Remote Streaming Link

View the agenda for the August 2 meeting here. Questions about the meeting should be sent in via email.

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The Office of Developmental Programs (ODP) has shared ODPANN 23-069, which informs all interested parties that the recording of the Clarifications and Guidance for the Community Participation Support (CPS) Service in the Intellectual Disability/Autism (ID/A) Waivers webinar is now available on MyODP. Clarification and guidance on the CPS service and CPS flexibilities that will be ending with Appendix K are discussed during the recording. Please review the announcement for details on accessing the recording.

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The Secretaries of the Department of Human Services, Department of Drug and Alcohol Programs, Department of Health, and Department of Aging have written a letter to human services organizations about the budget impasse and an estimated $5.9 billion in planned state and federal funding that cannot be disbursed without a signed budget. The letter details specific funds that cannot be distributed through each department.

For Gov. Shapiro to sign HB 611, the General Appropriations bill for Fiscal Year 2023/24, which was passed by both the House and Senate, Senate President Pro Tempore Kim Ward must first deliver a signed physical copy of the bill to him. Sen. Ward is the only person with the power to call the Senate into session to complete this procedural step. Ward has adjourned the Senate until Sept. 18, 2023.

Read the full letter here.

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Deputy Secretary Ahrens announced that in response to public comments regarding proposed waiver amendments, the Office of Developmental Programs (ODP) has adjusted the payment schedule for Recovery and Expansion incentives for CPS providers. This change has been submitted to the Centers for Medicare and Medicaid Services (CMS) for approval with the full waiver amendments. If approved, the following schedule will be implemented:

Additional updates Deputy Secretary Ahrens provided at the Medical Assistance Advisory Committee meeting can be found here.

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