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Intellectual & Developmental Disabilities

From Penn State College of Medicine and ASERT


Dear Valued Participant:

You are receiving this communication because you or your group have been identified as someone who works in a health care setting, and we hope you will participate in and disseminate this survey. We are a combined research group representing a relationship between the Penn State College of Medicine and ASERT (Autism Services, Education, Resources, and Training). Through this survey, we hope to gain insight into the feasibility of developing a training/autism friendly certification program for medical staff and health care providers. The program would indicate to patients that staff within the health care setting are knowledgeable and supportive of people with autism. Your feedback is invaluable to us, and all responses will be kept confidential. Should you have any questions, please feel free to reach out. The survey should take approximately 5–10 minutes to complete. The deadline to complete the survey is January 10, 2025. View the flyer for more details. To take the survey, please use this link.

The Office of Developmental Programs (ODP) has shared ODPANN 24-111. The Adult Autism Waiver (AAW) provider table has been updated to reflect new procedure codes for Specialized Skill Development: Behavioral Specialist services, effective November 1, 2024, and to correct errors found in the October 1, 2024, release. Previous ODP Announcement 24-095 is now obsolete.

Please view the announcement for information and details.

The Office of Developmental Programs (ODP) has shared ODPANN 24-110. This communication announces the new Deaf Services required training, replacing the previously required Harry M Settlement training (ODP Communication Number 119-17).

The Deaf, Hard of Hearing, DeafBlind Required Training is available on MyODP’s website.

Please view the announcement for information and details.

The Office of Developmental Programs (ODP) has shared updated guidance through ODPANN 24-109. The use of cameras and video monitoring equipment in individual bedrooms and bathrooms is strictly prohibited for Pennsylvania’s CMS-approved Consolidated, Community Living, Person/Family Directed Support, and Adult Autism Waivers. Please view the announcement for information and details.

The PA Department of Labor & Industry’s Office of Vocational Rehabilitation (OVR) has further developed the draft of the Financial Needs Test (FNT) policy after incorporating feedback received during the September 2024 public comment period. As a result, there will be a second, shorter public comment period on the draft. The draft will be posted on OVR’s website for public review beginning November 11, 2024.

Virtual meetings will be held via Zoom at 9:00 am and 2:30 pm on Monday, November 18, 2024, to provide an overview of the policy and accept comments (content will be the same in both meetings). The public is invited to comment on the draft policy through November 22, 2024. Comments may be directed to OVR’s Public Comment inbox.

Zoom Meeting Information:

CART and sign language interpreters will be available for these meetings via the Zoom link.

Additional auxiliary aids and services are available upon request to individuals with disabilities. Please send your request to OVR’s Public Comment inbox.

Image by StockSnap from Pixabay

The Long-Term Services and Supports (LTSS) Subcommittee meeting was held yesterday, November 6, 2024. During the meeting, a number of presentations were given. In addition to the presentations, the agenda and a document that provided follow-up items from the October 2, 2024, LTSS Subcommittee meeting were provided.

Members should take time to review the PowerPoint presentations from the meeting below:

The 2025 meeting dates for the LTSS Subcommittee were also shared:

  • January 8, 2025
  • February 5, 2025 (virtual only)
  • March 5, 2025 (virtual only)
  • April 2, 2025
  • May 7, 2025
  • June 4, 2025
  • July 2, 2025
  • August 6, 2025
  • September 3, 2025
  • October 1, 2025
  • November 12, 2025
  • December 3, 2025

The meetings will continue to be held from 10:00 am – 1:00 pm.

Living the D.R.E.A.M! Creating a Culture of Health and Wellness for All
December 4, 2024
9:00 am – 12:00 pm

The Department of Human Services’ (DHS) Office of Developmental Programs (ODP) and the Office of Mental Health and Substance Abuse Services (OMHSAS) have announced the Dual Diagnosis Professional Conference “Living the D.R.E.A.M.” During this session, SPIN will provide an historical overview of how they created a culture of health and wellness by engaging all stakeholders in living a healthy lifestyle. Presenters will showcase SPIN’s mission of inclusive and holistic meaningful activities in the community and SPIN Community & Fitness, a gathering and welcoming place for the whole community. The D.R.E.A.M team model, including the vision and purpose, elements of “Living the D.R.E.A.M,” and lessons learned for successful incorporation into everyday lives, will be featured.

Registration is now open.

See the announcement for a full session description, presenter biographies, and how to register.

Email with any questions.

Image by Markus Winkler from Pixabay

Message from the Office of Long-Term Living (OLTL):

The Commonwealth is working collaboratively — Governor Shapiro’s office and the health hub agencies (Health, Human Services, Drug and Alcohol Programs, and Insurance) — to develop a statewide maternal health strategic plan. We need your help to make it a robust, comprehensive, collaborative, living, and most importantly, active plan.

As you are likely aware, Pennsylvania, like the nation, is experiencing a maternal health crisis.

According to the Pennsylvania Maternal Mortality Review Committee report, in 2020, Pennsylvania residents experienced a pregnancy-associated mortality ratio of 83 deaths per 100,000 live births with large disparities identified. In total, 107 individuals lost their lives during pregnancy, delivery, or up to one year postpartum.

Those numbers are far worse for Black women, where the rate was twice as high at 163 deaths per 100,000.

We also know that women and birthing people with disabilities experience unique challenges and needs on their health journey, so we are inviting you to join us for a 90-minute Zoom listening session where members of the Commonwealth’s health agencies and members of the statewide maternal health strategic plan can engage with you to learn what specific needs you have and how you feel the Commonwealth should address those needs.

We want our strategic plan to address all Pennsylvania women and birthing people, and sharing your voice at this listening session will help inform our plan.

The Zoom listening session is scheduled from 10:00 am – 11:30 am, on Friday, December 6, 2024. Please RSVP electronically by December 1 if you plan to attend. We will send the Zoom link by end of day December 4 to those who RSVP.

Thank you for considering spending 90 minutes with the disability community and state health team members to share your thoughts and needs around maternal health.

Inglis’s Regional Housing Coordinators (RHC) offer a variety of FREE webinars each month on Zoom, focused on understanding and navigating the affordable housing system and resources for people with disabilities in housing.

If the training times listed below do not work for your organization, you can always use their Information and Referral form to request a private training.

  • Navigating Income-based Housing Options: Tuesday, November 5, at 11:00 am
  • Introduction to Housing Concepts: Wednesday, November 6, at 1:00 pm
  • Assistance Animals Explained: Thursday, November 14, at 12:00 pm
  • Home Modifications: Tuesday, November 19, at 10:00 am
  • Eviction Prevention and Processes: Tuesday, November 26, at 11:00 am
You can register at their training calendar here!