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Intellectual & Developmental Disabilities

Message from The Centers for Medicare & Medicaid Services (CMS):

The Centers for Medicare & Medicaid Services (CMS) is continuing to monitor and assess the impact that the cyberattack on UnitedHealth Group’s subsidiary Change Healthcare has had on all provider and supplier types. Today, CMS is announcing that, in addition to considering applications for accelerated payments for Medicare Part A providers, we will also be considering applications for advance payments for Part B suppliers.

Over the last few days, we have continued to meet with health plans, providers and suppliers to hear about their most pressing concerns. As announced previously, we have directed our Medicare Administrative Contractors (MAC) to expedite actions needed for providers and suppliers to change the clearinghouse they use and to accept paper claims if providers need to use that method. We will continue to respond to provider and supplier inquiries regarding MAC processes.

CMS also recognizes that many Medicaid providers are deeply affected by the impact of the cyberattack. We are continuing to work closely with States and are urging Medicaid managed care plans to make prospective payments to impacted providers, as well.

All MACs will provide public information on how to submit a request for a Medicare accelerated or advance payment on their websites as early as today, Saturday, March 9.

CMS looks forward to continuing to support the provider community during this difficult situation. All affected providers should reach out to health plans and other payers for assistance with the disruption. CMS has encouraged Medicare Advantage (MA) organizations to offer advance funding to providers affected by this cyberattack. The rules governing CMS’s payments to MA organizations and Part D sponsors remain unchanged. Please note that nothing in this statement speaks to the arrangements between MA organizations or Part D sponsors and their contracted providers or facilities.


If you have any questions, please contact Fady Sahhar.

The Pennsylvania Developmental Disabilities Council (PADDC) is working on a project to enhance Pennsylvania’s self-advocate leadership to focus on system and policy change. We invite people with developmental and intellectual disabilities (I/DD) and providers or organizations to connect them to self-advocates who may want to be part of the conversation.

The first step in the plan is to gather contact information so they can listen and learn from you. Please complete their survey through the links below.

The long-term plan includes talking with self-advocates with intellectual and developmental disabilities about:

  1. Connecting self-advocates to network and organize as a powerful, united community;
  2. Creating the foundation for an effective statewide network of skilled advocates who can influence system change; and
  3. Involving people interested in advocacy and system change to plan together for the future.

Please visit one of the links below by March 20 to help them learn about self-advocacy in Pennsylvania!

  1. If you are an individual with intellectual and/or developmental disabilities and are interested in becoming an advocate, please use this survey link.
  2. If you are an organization or provider that engages with people with intellectual/developmental disabilities, please use this survey link.

Please share this opportunity to connect with interested Pennsylvania advocates and I/DD providers or organizations in your network!

All sessions are scheduled from 10:00 am – 3:00 pm.

  • Tannersville, PA, Northampton Community College: June 5, 2024
  • Butler, PA, Monarch Institute: June 12, 2024
  • Malvern, PA, PaTTAN East: June 18, 2024
  • Bellefonte, PA, Central Penn Institute of Science and Technology: June 26, 2024

In this second annual ODP Employment Regional Symposium, participants will hear from employers about how, what, and why they hired individuals with developmental disabilities. Individuals who are employed and their teams will describe how having a job made a difference in their lives and the lives of their families. Representatives from the Office of Developmental Programs (ODP), Office of Vocational Rehabilitation (OVR), and the Bureau of Special Education will discuss collaboration across systems and offices with a focus on things that you thought might not be possible.

Who should attend?

Anyone interested in advancing the employment of individuals with developmental disabilities including but not limited to: current and future employers, self-advocates, local education authorities, intermediate units, ODP employment/community participation support/residential providers, supports coordinators, administrative entities transition counselors, regional employment coalitions, and OVR business liaisons.

Boxed lunches will be provided. Morning beverages and snacks are on your own.

Registration information will be sent in a separate ODP Announcement.

As noted in a previous alert from the Department of Human Services (DHS), the Department of Health and Human Services (HHS) has also been providing updates regarding the recent cybersecurity incident that impacted Change Healthcare (a unit of UnitedHealth Group). HHS has noted that their first priority is to help coordinate efforts to avoid disruptions to care throughout the health care system.

On March 5, 2024, HHS announced immediate steps that the Centers for Medicare and Medicaid Services (CMS) is taking to assist providers to continue to serve patients. CMS will continue to communicate with the health care community and assist, as appropriate. Providers should continue to work with all their payers for the latest updates on how to receive timely payments.

Governor Shapiro has proposed a significant increase of funding to the ID/A system, and the legislature will begin deliberating the Governor’s plan. Now is the time to ask to secure this funding and maintain it in the next fiscal year’s budget.

RCPA has partnered with The Arc of PA, TPA, PAR, The Alliance, and MAX to develop a document for our members to share with legislators and other stakeholders that summarizes our message regarding support for the Governor’s budget. This document is now available to use. Additionally, RCPA has made available our legislative priorities one-pager that covers all divisions. We ask that you use both the ID/A document and the one-pager during your legislative visits, including those scheduled during our Capitol Day event on March 19.

If you have any questions, please reach out to Carol Ferenz.

Advocate for yourselves and others by meeting with legislators directly! Take the opportunity to join RCPA as we hold our annual Capitol Day this year on Tuesday, March 19. We will hold a press conference in the Main Rotunda between 10:30 am – 11:30 am, which will tentatively include speakers such as:

  • Representative Dan Miller;
  • Representative Stephen Kinsey;
  • Representative Doyle Heffley;
  • Senator Art Haywood; and
  • Senator Frank Farry.

You can register for our Capitol Day press conference by contacting Allison Brognia or Christine Tartaglione with the number of anticipated attendees. RCPA requests that members schedule appointments with their Senate and House legislators directly to discuss the state budget, legislation, and regulations after our press conference.

We ask that you please use RCPA’s legislative priorities one-pager during your legislative visits. As an additional resource, members can visit the Pennsylvania Capitol website to locate parking and view maps of the building. If you have questions regarding our 2024 Capitol Day, please contact Jack Phillips.

The Department of Human Services (DHS) has shared several available resources to address providers’ concerns regarding the Change Healthcare outage. The system remains unavailable due to a current cyber-attack. You can read the full press release, which details resources and short-term solutions.

If you have any questions, please contact Fady Sahhar.