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Intellectual & Developmental Disabilities

Photo by Markus Winkler on Unsplash

The Deputy Secretary presented ODP updates at the Medical Assistance Advisory Committee (MAAC) meeting today, Thursday, April 25, 2024.

Updates included:

  • Performance-Based Contracting (PBC) 1915(b)(4) application, 1915(c) amendments, and Implementation Plan; and
  • Non-Performance-Based Contracting Waiver Amendment information.

ODP will publish provider preparedness tools that will include a Residential Provider Performance-Based Contracting Preparedness Assessment and hold provider forums to support providers as they get ready for PBC implementation. View the full presentation here.

Thursday, May 30, 2024
12:00 pm – 1:00 pm EDT; 11:00 am – 12:00 pm CDT;
10:00 am – 11:00 am MDT; 9:00 am – 10:00 am PDT
Register

Laura Malone, MD, PhD

Dr. Laura Malone is the director of the Pediatric Post-COVID-19 Rehabilitation Clinic at Kennedy Krieger Institute. She is also a physician scientist in Kennedy Krieger’s Center for Movement Studies and an assistant professor of Neurology and Physical Medicine and Rehabilitation at the Johns Hopkins University School of Medicine.

Dr. Malone has a PhD in Biomedical Engineering from Johns Hopkins University and her medical degree from the University of North Carolina. She completed her pediatric neurology residency at Johns Hopkins School of Medicine. Dr. Malone’s clinical practice focuses on the neurological care of children with perinatal stroke, other brain injuries, and long COVID. Her research focuses on understanding complex pediatric disorders and on improving outcomes using mechanistic neurorehabilitation approaches. Regarding COVID-19, Dr. Malone investigates clinical phenotypes of children with persistent symptoms after COVID-19 infection and investigates factors and mechanisms that promote good recovery.

Objectives: At the end of this session, the learner will:

  • Discuss how our understanding of long COVID has evolved over time;
  • Describe guidance regarding assessment and treatment options for children with long COVID; and
  • Identify recovery patterns and factors that influence severity and recovery of children with long COVID.

Audience: This webinar is intended for all interested members of the rehabilitation team.

Level: Intermediate

Certificate of Attendance: Certificates of attendance are available for all attendees. No CEs are provided for this course.

Complimentary webinars are a benefit of membership in IPRC/RCPA. Registration fee for non-members is $179. Not a member yet? Consider joining today.

This webinar series will provide details on specific performance standards for Performance-Based Contracting for residential services. Each session will cover the required reporting, data source, data collection, and analysis for each performance standard.

A pre-recorded General Overview Webinar will be disseminated on 5/21/2024 as a prerequisite to the sessions outlined below. It is strongly recommended that providers watch the General Overview Webinar prior to attending. These sessions will each be unique in content and build upon one another. All sessions will be recorded and made available on MyODP; registration information will be forthcoming.

Webinar Sessions:

  • June 3, 2024 – 1:30 pm to 3:30 pm
  • June 10, 2024 – 1:00 pm to 3:00 pm
  • June 12, 2024 – 1:00 pm to 3:00 pm
  • June 20, 2024 – 1:00 pm to 3:00 pm

Photo by visuals on Unsplash

The Importance of Place in Trauma-Informed Care: A Wellness Approach
May 15, 2024
10:00 am – 1:00 pm
Registration now open 

The Department of Human Services (DHS) Office of Developmental Programs (ODP) and the Office of Mental Health and Substance Abuse Services (OMHSAS) have announced the Dual Diagnosis Professional Conference Series, which offers presentations focused on supporting individuals with intellectual disabilities and autism (ID/A) and mental health needs. The next presentation will focus on the connection between trauma-informed care and positive support, framed in a wellness perspective. Critical to this effort was the creation of a safe place, the wellness center, specifically selected and modified to reduce the possible re-traumatization of individuals with ID/A or a dual diagnosis.

See the announcement for a full session description, presenter biographies, and information on how to register.

ADvancing States and the ARPA HCBS TA Collective Announce Release of Report Summarizing State Experiences with ARPA HCBS Initiatives

FOR IMMEDIATE RELEASE
April 23, 2024
CONTACT: Camille Dobson
202-898-2578

ARLINGTON, VA — ADvancing States and our partners in the American Rescue Plan Act (ARPA) home and community-based services (HCBS) Technical Assistance Collective (TA Collective) are proud to release a report sharing findings about states’ experience in implementing their ARPA HCBS initiatives. While the ARPA infusion of federal dollars into HCBS provided an historic opportunity to try bold, new approaches to supporting people in their homes and communities, states were challenged to make systemic improvements given the time-limited nature of the federal funds.

To gather insights into states’ experiences in implementing their ARPA HCBS spending plans, the TA Collective fielded a national survey in early 2024 that aimed to identify successful strategies used by states implementing their ARPA HCBS spending plans, as well as any barriers hindering their success. Based on responses to that survey, this report highlights the challenges and barriers states faced in thoughtfully executing their initiatives in the midst of a public health emergency. The thirty-three states that responded to the survey shared the top barriers to implementing their projects as planned. These barriers include:

  • Delays in obtaining approval from CMS for both their spending plans and the necessary federal authorities to implement those plans;
  • Lack of staff capacity to design and implement complex initiatives;
  • The time it takes to complete state procurement processes to implement projects; and
  • The need to secure legislative approval and/or budget authority before beginning work.

The report also suggests ways to make any future time-limited investments in the HCBS system more effective, including giving states more time to implement, easing the CMS approval process and providing resources to both states and CMS. Moreover, any future investments should be accompanied by a federal evaluation to glean insights into successful interventions that could be replicated across the country.

While this report highlights challenges and lessons learned, it should be noted that, against all odds, states created transformational change with their ARPA spending plan initiatives. Our hope is that this report — and the recommendations contained therein — serves as a roadmap for any future federal investment in the HCBS system.

This report is also informed by the TA Collective’s work supporting states with their ARPA initiative planning, implementation, and evaluation activities and by observations and analysis of state and federal ARPA HCBS activities. It builds upon the TA Collective’s past work including, Efforts to Evaluate the Impact of ARPA HCBS Investments, an issue brief examining state evaluation approaches, and a summary of the work of the HCBS Sustainability Summit, which provided valuable context on sustaining the HCBS commitment fostered by ARPA investments. Both reports can be found here.

We are grateful to The John A. Hartford Foundation, the Care for all with Respect and Equity (CARE) Fund, The SCAN Foundation, and the Milbank Memorial Fund for their support in making the work of the TA Collective possible.

Visit here to read the new report.