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Intellectual & Developmental Disabilities

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Lawmakers return to Harrisburg to begin the monthlong process of crafting and passing a final state spending plan for the 2022/23 fiscal year. The next few weeks are crucial.

Lawmakers need to hear from you right now! Contact your state senator and representative and tell them to increase funding to support human services professionals, so individuals and families in need get the assistance and care they deserve.

Pennsylvania has billions of state dollars in surplus, plus additional federal money, but it remains unspent as the needs of our most vulnerable residents go unmet.

Over the past few months, our coalition has sent more than 6,000 messages to the General Assembly and administration. We aired TV commercials and shared our message on social media. We rallied at the Capitol Building in Harrisburg. We have been seen and heard.

But all that matters now is what happens during these next few weeks as the budget is finalized. There is no slowing down now. Use this link to learn how you can help and urge your networks to do the same. Most importantly, if you haven’t already, take action today.

This workforce crisis is affecting our most vulnerable individuals and families, as well as the providers and professionals who serve them. Lawmakers have a big role to play in solving this problem. But they need to hear from you. Thank you for your continued support; now, let’s finish strong!

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ODP Announcement 22-061 is to announce that the amendments to the Consolidated, Community Living, and P/FDS waivers (hereafter referred to as the Intellectual Disability and Autism (ID/A) waivers) were approved by the Centers for Medicare & Medicaid Services (CMS) effective June 1, 2022.

The ID/A waiver amendments were submitted to CMS on January 3, 2022. Since that time, the Office of Developmental Programs (ODP) has been engaged in ongoing discussions with CMS. Substantive changes were approved as follows:

  • Eligibility was expanded to include children with a developmental disability due to a medically complex condition. The Family Medical Support Assistance service was added to support the complex medical needs of these children. Provider qualification criteria were enhanced to ensure providers have the needed structure to support these children.
  • Delivery of services while the participant is hospitalized is currently allowed through Appendix K flexibilities. Guidance regarding delivery of services while the participant is hospitalized is contained in the Operational Guide. This guidance should continue to be followed until otherwise notified.
  • Homemaker services include infection control measures and intensive cleaning, such as cleaning medical equipment and disinfecting the home.
  • Home accessibility adaptations support individuals to transition from an institutional setting to a private home (including a Life Sharing home) and clarify covered home accessibility adaptations due to changes in Medical Assistance.
  • Transition to Independent Living payments were added to the Consolidated Waiver to support participants to transition from residential habilitation homes to Life Sharing or Support Living.
  • Changes were made to residential qualification requirements to ensure that all residential providers are adequately prepared prior to delivering a service and prior to the provider going through ODP’s qualification process.

The following rates, as communicated in ODP Announcement 22-051, are also effective June 1, 2022, when authorized on an Individual Support Plan:

  • Family Medical Support Assistance services;
  • Medically Complex Life Sharing services in the Consolidated Waiver; and
  • Transition to Independent Living payments in the Consolidated Waiver. Each full waiver application approved by CMS and the record of change document are available here.

ODP will be scheduling webinars soon to discuss the changes made in these approved amendments, as well as changes made to the July 2022 waiver renewals once they are approved by CMS. ODP will release a communication announcing the webinars when the waiver renewals are approved. Questions about this communication should be directed to the appropriate Office of Developmental Programs Regional Office.

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DSPs are a vital part of agencies everywhere. MITC is awarding $5,000 in September to Direct Support Professionals (DSPs) who stand out and go above and beyond to provide exemplary service.

MITC values the hard work put forth by DSPs every day, and is hoping to show their appreciation through these prizes!

Your participation is important — it shows DSPs you appreciate their hard and, at times, dangerous work.

  • 13 prizes will be awarded
  • One prize of $1,000
  • Two prizes of $500
  • Ten prizes of $300

MITC will share the awardees’ stories with providers. The winners will be announced during DSP Recognition Week in September 2022. The deadline to nominate a DSP is August 1st, 2022.

Nominate Your DSP Here

For more information, contact:
Tristen Novic
Business Development Administrative Assistant
Direct Line: 301-835-5773

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ODP Announcement 22-060 provides a News Alert from the Infection Prevention Specialist Partnership with Health Care Quality Units with information regarding performing COVID testing, treatment, and up-to-date COVID-19 vaccine booster dose recommendations.

The Office of Developmental Programs (ODP) has received funding through a Pennsylvania Department of Health (DOH) grant from the U.S. Centers for Disease Control and Prevention (CDC) appropriation under the 2019 Epidemiology and Laboratory Capacity for Prevention and Control of Emerging Infectious Diseases (ELC) — Enhanced Detection Expansion (EDE) Grant.

This grant funding is being used to build capacity and provide additional support for infection prevention and control through the Health Care Quality Units (HCQUs) in partnership with a team of infection prevention specialists from Infectious Disease (ID) Connect. This project will run through June 2023.

A separate informational News Alert regarding Monkeypox is also available.

Monkeypox facts:

  • It is a rare disease caused by the monkeypox virus belonging to the Orthopoxvirus genus.
  • It was first discovered in 1958.
  • The majority of the infections are in Democratic Republic of Congo.
  • Cases outside of Africa are linked to international travel or imported animals.
  • Rodents and non-human primates harbor the virus.
  • 19 cases have been confirmed since 6/1/22.
  • It is unclear how cases were exposed, but early data suggests that gay, bisexual, and other men who have sex with men make up a high number of cases.
  • But, this does NOT mean that it is a sexually transmitted disease approved vaccine in this group.

For more information, please contact your regional HCQU contacts are listed in the ODP Announcement.

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ODP Bulletin 00-22-02, effective June 2, 2022, is to establish the process for requesting a waiver of a regulatory requirement. This bulletin applies to entities seeking to be licensed or are currently licensed under one or more of the following chapters:

  • 55 Pa. Code Chapter 2380 (relating to Adult Training Facilities);
  • 55 Pa. Code Chapter 2390 (relating to Vocational Facilities);
  • 55 Pa. Code Chapter 6400 (relating to Community Homes for Individuals with an Intellectual Disability or Autism);
  • 55 Pa. Code Chapter 6500 (relating to Life Sharing Homes); and
  • Providers of home and community-based services (HCBS) for individuals with an intellectual disability or autism subject to 55 Pa. Code Chapter 6100 (relating to Services for Individuals with an Intellectual Disability or Autism).

Licensees and ODP-enrolled providers are expected to comply with all applicable regulations. However, the Department recognizes that there are occasions where compliance with a regulation impedes the licensee’s or ODP-enrolled provider’s ability to provide services to an individual. As a result, the Department permits licensees and ODP-enrolled providers to request that a section, subsection, paragraph, or subparagraph of a regulation not apply when it is in the best interest of an individual or group of individuals who receive services from the licensee or ODP enrolled provider.

Not all regulations can be waived. Section 6100.43(a) prohibits waivers of the following regulations:

  • Sections 6100.1–6100.3 (relating to General Provisions);
  • Sections 6100.41–6100.56 (relating to General Requirements);
  • Sections 6100.181–6100.186 (relating to Individual Rights); and
  • Sections 6100.341–6100.350 (relating to Restrictive Procedures).

Additionally, section 6500.12(7) prohibits waivers of sections 6500.1–6500.4 (relating to General Provisions). While Chapters 2380, 2390, and 6400 do not address waivers of regulation, waivers for these chapters are at the discretion of the Department and can be requested pursuant to 1 Pa. Code section 35.18.

Providers should utilize the Office of Developmental Programs’ form “Request for Regulatory Waiver.”

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