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Intellectual & Developmental Disabilities

0 2026

The Office of Developmental Programs (ODP) and the Office of Mental Health and Substance Abuse Services (OMHSAS) are pleased to announce this latest edition of the Positive Approaches Journal titled “Innovation & Best Practices in Supporting Autistic Adults.”

The focus of autism supports has almost exclusively been on children. Articles in this issue of Positive Approaches seeks to shed some light on adults with autism, including:

  • An article on transgender identity and gender dysphoria highlighting ways that adults with autism can be supported and accepted while defining who they are;
  • An article on the Temple University Community Participation Measure and its success in showing areas where adults with autism are spending their time, thereby giving a clearer picture on where supports and services may best be provided;
  • An article on an adult with autism’s journey from work into retirement and how he perceived this milestone;
  • An article discussing Pennsylvania’s continuing development of forward-thinking autism supports and services;
  • An article on the ongoing development and expansion of the Pennsylvania Department of Corrections Neurodevelopmental Residential Treatment Unit; and
  • An article on the reasoning, development, and success of the University of Pittsburgh Medical Center’s (UPMC) Western Behavioral Health Psychiatric Rehabilitation (PR) program carve-out program to serve autistic adults.

This journal issue focuses on the need to look across the lifespan to better understand the issues adults with autism may face.

Positive Approaches Journal is available for viewing online or for downloading in digital form.

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ANCOR staff Lydia Dawson shared that in response to ANCOR’s advocacy, CMS has announced the release of its slide deck detailing how states can use corrective action plans to request additional time to comply with staff-dependent provisions of the HCBS Settings Rule due to the direct care workforce crisis.

As detailed in the slide deck, CMS will authorize corrective action plans to continue federal reimbursement of HCBS beyond the end of the transition period if states need additional time to ensure full provider compliance with staff-dependent provisions of the Settings Rule, including:

  • Access to the broader community;
  • Opportunities for employment;
  • Option for a private unit and/or choice of a roommate; and
  • Choice of non-disability specific settings.

This information was reviewed at the ACL/CMS webinar “Key Updates on the HCBS Settings Rule” held on May 25. When the recording is available, we will share it with our members.

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ODP Announcement 22-058 announces the launch of the Health Risk Screening Tool (HRST) survey to assess interest in linking data systems to the HRST. Please assist the Office of Developmental Programs (ODP) in completing this survey, as it will help to determine providers’ level of interest in linking existing data systems to the HRST.

This is an inquiry survey only and is intended to gauge provider interest. The survey should only take a few minutes to complete. Linking existing data would enable select data fields to autofill with data from these data systems on a routine frequency, thus reducing the amount of duplicate data entry.

The criteria for this service are outlined in this survey; please review the criteria carefully. You may need to consult with your IT personnel or your data system representative(s) to help determine if your agency can meet these criteria. This data import option would only be available to providers who meet all of the criteria listed. This survey will remain open for responses until Friday, June 10, 2022.

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The agenda for the June 1, 2022, Managed Long-Term Services and Supports (MLTSS) Subcommittee meeting was recently released by the Office of Long-Term Living (OLTL). The June meeting will continue to be offered via webinar and remote streaming. OLTL is planning to hold the July 6, 2022, MLTSS Subcommittee meeting in person with optional webinar and remote streaming.

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On May 23, 2022, United States Surgeon General Dr. Vivek Murthy released a new Surgeon General’s advisory that highlights the urgent need to address the health worker burnout crisis across the country. The advisory titled “Addressing Health Worker Burnout” warns that the COVID-19 pandemic has exacerbated longstanding system challenges in the health care system. Health workers, including physicians, nurses, community and public health workers, nurse aides, and others have risked their own lives throughout the pandemic.

A series of recommendations are included in the advisory.

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