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Intellectual & Developmental Disabilities

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The Long-Term Services and Supports (LTSS) Subcommittee meeting was recently held on November 12, 2025. During the meeting, a number of presentations were provided. In addition to the presentations, the agenda and a document that provided follow-up items from the LTSS Subcommittee meeting on October 1, 2025, were provided.

Members should take time to review the PowerPoint presentations from the meeting below:

The next LTSS Subcommittee meeting is scheduled for Wednesday, December 3, 2025. The meeting will be held virtually only from 10:00 am – 1:00 pm. Register here to participate. Participants also have the option to call in by dialing (415) 655-0052; Access code: 883-556-407#.

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Waiver 101: What is a Waiver, and What Does It Do?
December 4, 2025
5:30 pm – 7:00 pm
Register Here

The Office of Developmental Programs (ODP) invites individuals with intellectual disabilities and/or autism (ID/A) and their families to join in a virtual discussion with members of the Division of Policy and Program Innovation. These sessions are informal, meaning the conversation will not be recorded, and rules will be set before the session starts to ensure everyone feels comfortable and safe to provide questions and comments. The session will be held through Microsoft Teams.

Please note: This event is being held only for individuals and family members; this is not an event for someone who is only a professional.

What Will Be Covered?

ODP staff will provide an overview of the ID/A Centers for Medicaid and Medicare (CMS) waivers available in Pennsylvania. This session will consist of a brief history of ID/A services in PA, what ODP is, and how the “waivers” came to exist and their purpose. The session will also include time to explore the Department of Human Services’ (DHS) and ODP’s websites for this information.

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Thank you for sharing these important workshops and support groups with your networks! Register for upcoming events at PA Family Network’s website.

Good Life Group, Support Groups

LifeCourse Workshops

Waiver Workshops

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The Office of Developmental Programs (ODP) is sharing this important announcement from the PA Department of Health.

As of November 11, 2025, 15 infants with suspected or confirmed infant botulism were reported from 12 states: Arizona, California (2), Illinois (2), Kentucky, Minnesota, New Jersey, North Carolina, Oregon, Pennsylvania, Rhode Island, Texas (2), and Washington. Laboratory confirmation for some cases is ongoing. Illnesses started on dates ranging from mid-August to November 2025. All 15 infants were hospitalized and treated with BabyBIG®. No deaths were reported. Infants ranged in age from 16 to 157 days. State and local public health officials are interviewing caregivers about the foods infants were fed in the month before they got sick. All 15 (100%) reported feeding ByHeart Whole Nutrition infant formula. This investigation is ongoing, and additional cases may be identified.

All ByHeart Whole Nutrition Infant Formula products were recalled. This includes all unexpired lots of formula cans and single-serve “anywhere” sticks. The link to the recall can be found here.

According to the FDA, ByHeart Whole Nutrition Infant Formula makes up less than 1 percent of all infant formula sales in the United States. Given this small market share, recall of these products is unlikely to create shortage concerns of infant formula for parents and caregivers.

Summary:

  • On November 11, 2025, ByHeart, Inc. recalled all lots of ByHeart Whole Nutrition Infant Formula in response to the U.S. Food and Drug Administration’s (FDA’s) ongoing investigation into a recent outbreak of infant botulism.
  • According to the company’s website, ByHeart Whole Nutrition Infant Formula was sold through its website ByHeart.com and through retail stores nationwide, including Amazon, Kroger, Walmart, Whole Foods, Target, SamsClub, and others.
  • Infant botulism is a rare but potentially fatal paralytic illness that impacts babies less than one year old. Symptoms can include constipation, poor feeding, drooping eyelids, weak cry, and progressive muscle weakness.
  • Health care providers (HCP) should call the California Infant Botulism Treatment and Prevention Program (IBTPP) immediately at 510-231-7600 for consultation of suspected case. Consultation is available 24/7. Treatment with botulism immune globulin, BabyBIG®, obtained from California Department of Health, is recommended for all suspected cases of infant botulism.
  • Infant botulism is a reportable disease in PA; all suspected cases must be reported to the Pennsylvania Department of Health (DOH) at 1-877-PA-HEALTH or their local health department.

For More Information

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From Chaos to Clarity: How Human Service Leaders Bring Order to Oversight
Tuesday, December 9, 2025
12:00 pm ET
Register Here

Keeping up with inspections and licensing requirements can feel like an endless chase — especially when each site or program has its own system. Many organizations are finding new ways to bring structure, visibility, and calm to these responsibilities, even with limited resources.

Join us on Tuesday, December 9, 2025, at 12:00 pm ET for From Chaos to Clarity: How Human Service Leaders Bring Order to Oversight, a live webinar co-hosted by RCPA and PUPS Software. This session brings together leaders for an open, practical conversation about streamlining inspections, licensing, and operational readiness.

Featured Panelists:

  • Jim Sharp, Chief Operating Officer & Director of Mental Health Services, RCPA
  • Savannah David, Service Director – ID/A NE Region, Step By Step, Inc.
  • Morgan Gerety, Director of Maintenance, Caring, Inc.

We’ll talk about:

  • Practical steps to bring consistency and visibility to inspections and licensing;
  • How to move from paper and spreadsheets to digital processes without overwhelming your team;
  • Real examples of accountability and readiness in action; and
  • Lessons learned from organizations that replaced annual scrambles with steady progress.

Whether your team is just getting started or already modernizing oversight, you will walk away with useful ideas, peer insights, and tools to support your next steps.

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The Office of Developmental Programs (ODP) has shared ODPANN 25-100 to announce a scheduled upgrade to the MyODP website, making the Learning Management System (LMS) unavailable from Monday, November 24, 2025, through Tuesday, December 2, 2025. This will also have a MyTranscript report replace individual certificates for courses completed on MyODP.

After the upgrade is completed, all users will be required to reselect their primary role upon first login to the site. A virtual training on how to access the new MyTranscript report and an overview of other website improvements will be available. Further details with registration information for the virtual training will be announced sometime prior to November 24, 2025.

Please direct any questions regarding this announcement electronically.

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