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Intellectual & Developmental Disabilities

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The Office of Developmental Programs (ODP) convened for the Provider Performance Review Subcommittee on December 18, 2025, to provide updates on service utilization, National Core Indicators (NCI), and family engagement initiatives.

Service Utilization Updates

The statewide summary for services in CY 2025 highlights a continued focus on community-based and non-residential options.

  • Residential and Non-Residential Distribution: As of late 2025, Non-Residential Services account for the majority of utilization at 71.12%.
  • Residential Service Breakdown: Within residential settings, Residential Habilitation remains the most common at 25.68%, followed by Life Sharing at 2.76% and Supported Living at 0.44%.
  • Housing Support: ODP tracked the percentage of enrolled individuals receiving Housing Transition and Tenancy Services by SCO for CY 2025, with participation rates reaching up to 6% among certain providers.

National Core Indicators (NCI) and Satisfaction

ODP shared findings from the NCI-IDD In-Person Survey (2023/24) to measure person-centered outcomes and satisfaction.

  • Community Inclusion (NCI-IDD PCP-5): Pennsylvania’s average satisfaction with community inclusion was 84% for FY 2023/24, consistently exceeding the NCI-IDD national average of 82%.
    • Activity Satisfaction: High percentages of participants reported they “go out to eat enough” (77%), “go shopping enough” (81%), and “go out into the community enough” (80%).
    • Future Performance-Based Contracting: Beginning January 1, 2026, SCOs will be required to attest to supporting ODP data collection for this measure to inform future performance benchmarks.
  • Service Plan Relevance (NCI-IDD PCP-2): 92% of respondents reported “Yes,” their service plan includes things that are important to them.
    • Benchmarking: By 2027, SCO performance on this measure is expected to meet or exceed 90%.

Residential Services: Family Engagement

ODP is actively measuring how well providers engage with and support families through communication and relationship building.

  • Performance Measure (QI.03.3): Effective January 1, 2025, providers must attest to assisting ODP in collecting data on family satisfaction with provider engagement.
  • Family Satisfaction Survey Status: As of December 2025, 1,790 family members of individuals in residential habilitation have responded to the survey.
    • Provider Participation: Currently, 350 providers have positive response rates, while 18 providers have not yet been heard from.
    • Deadline: The survey is scheduled to close on December 31, 2025.

For Questions or Additional Information
Please contact Tim Sohosky for any follow-up or inquiries related to this update.

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Please share these important workshops and support groups with your networks! Register for upcoming events at PA Family Network’s website.

Good Life Group, Support Groups

LifeCourse Workshops

Waiver Workshops

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Photo by Markus Winkler on Unsplash

The Office of Developmental Programs (ODP) has shared an update to ODPANN 24-082. This communication advises providers of the availability of the ODP updated Guidance for Reviewing Data for Performance-Based Contracting (PBC) Measures RM-IM 01.2 and 01.3. The guidance and recorded webinar can be found on MyODP at Performance-Based Contracting – MyODP in the Data Folder. Updates appear underlined in red text.

Please view the announcement for more details.

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The Long Game Behind Sustainable Services w/ RCPA
Ep. 63 • December 15, 2025

In this conversation, host Nate Beers sits down with Tim Sohosky from RCPA to talk about the long game in disability services: how change actually happens, why efficiency alone isn’t enough, and what leaders need to pay attention to now if they want their organizations — and their people — to thrive long-term.

This is Part 2 of their conversation. They explore:

  • How advocacy moves from frustration to real system change;
  • Why outcomes matter more than ever (and what we’re measuring wrong);
  • The hidden strain leaders feel when innovation collides with regulation;
  • What sustainable leadership looks like five to ten years out; and
  • How building a bench of future leaders protects everything you’re working toward.

This episode isn’t about quick fixes. It’s about perspective, patience, and making decisions today that future leaders — and the people you support — will thank you for.

Watch/listen to the podcast here. Visit the IDD Leaders podcast website for more information on the podcast and organization.

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Tuesday, January 6, 2026
1:00 pm – 2:00 pm ET; 12:00 pm – 1:00 pm CT;
11:00 am – 12:00 pm MT; 10:00 am – 11:00 am PT
Register Here

Please join us as the IPRC hosts special guest Terry Carolan from CARF International, who will share the new Disorders of Consciousness Program Standards.

Presenter Bio:

Terrence Carolan
Terrence Carolan, Managing Director of the Medical Rehabilitation and Aging Services accreditation areas at the Commission on Accreditation of Rehabilitation Facilities (CARF), has more than 20 years of experience as a provider, administrator, and educator in the human services field. Terry joined CARF after working in clinical and administrative leadership positions within Select Medical’s Inpatient Rehabilitation Division and the Kessler Institute for Rehabilitation since 2001. Terry was a CARF surveyor for 10 years and holds a degree in physical therapy from Simmons College in Boston. He also recently completed his master’s degree in business administration from the University of Wisconsin-Eau Claire.

Objectives: At the end of this session, the learner will:

  • Describe recent research and guidance on the treatment of individuals with Disorders of Consciousness (DoC);
  • Discuss how CARF International has responded to guidance from the field to create Disorders of Consciousness Program Standards; and
  • Analyze how new DoC accreditation and recent research will enhance access to rehabilitation for children with DoC in the future.

Audience: This webinar is intended for all interested members of the rehabilitation team; attendees do not need to be CARF certified in order to attend.

Level: Beginner-Intermediate

Certificate of Attendance: Certificates of attendance are available for all attendees. No CEs are available for this course.

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The Office of Developmental Programs (ODP) has shared the Medication Administration January – March 2026 Train-the-Trainer Face-to-Face schedule in ODPANN 25-112.

You may register for one of these sessions after completing the course materials in the Train-the-Trainer course on MyODP’s Medication Administration website. Please see the communication for training dates and more information.

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The Office of Developmental Programs (ODP) has shared ODPANN 25-111. This communication clarifies new qualification requirements for providers of CPS, In-Home and Community Support and/or Companion services in the Consolidated, Community Living, and P/FDS Waivers that were recently approved by the Centers for Medicare and Medicaid Services (CMS). These requirements do not apply to services rendered by Support Service Professionals through a Participant-Directed Services option.

These amendments include the following provider qualification requirements:

  • Providers newly enrolling to render Community Participation Support, In-Home and Community Support, and/or Companion must provide Office of Developmental Programs (ODP) home and community-based services to a minimum of 3 separate and distinct participants in the first fiscal year after enrollment.
  • Starting July 1, 2026, currently enrolled providers must render ODP home and community-based services to a minimum of 3 separate and distinct participants each fiscal year. ODP will use the provider’s Master Provider Index number to determine if the provider is rendering any ODP waiver services to a minimum of 3 separate and distinct participants.
  • Additionally, the provider must render ODP home and community-based services each quarter.

Please review the announcement for more details.

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