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Intellectual & Developmental Disabilities

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The Arc of Pennsylvania is hosting the 3rd Annual Disability Health Action Summit from May 19–20, 2026, in Camp Hill, PA. This is an in-person only event, taking place at the Penn Harris Hotel & Convention Center. The Arc of PA is excited to announce Theo Brady, Executive Director of NCIL, will keynote on Tuesday, May 19, and Secretary Valerie Arkoosh will keynote on May 20.

For a complete agenda and registration, please visit The Arc of PA’s website. Scholarships for self-advocates and student discounts are available! Space is limited, to register today!

Visit here to view the flyer for more details.

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The Office of Developmental Programs (ODP) has shared updates to ODPANN 26-028. The purpose of this communication is to distribute the updated Prioritization of Urgency of Need for Services (PUNS) Manual and the revised DP1055 – PUNS Form, effective February 2026, and to announce the implementation of related updates to the Emergency PUNS process. Updates appear in underlined red text.

This communication formally distributes:

These updates are part of the Office of Developmental Programs’ continued implementation of the Multi-Year Program Growth Strategy and are intended to strengthen the accuracy, consistency, and documentation of Emergency Need determinations statewide.

Please review the announcement for more details.

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The Office of Developmental Programs is pleased to share an upcoming opportunity for professionals across systems to engage in a new Learning Collaborative focused on supporting people with disabilities who are parents or who are planning to become parents.

This Learning Collaborative will bring together professionals from across state and local systems, including providers, supports coordination organizations, administrative entities, and partners in early childhood, behavioral health, and child-serving systems. Participants will engage as regional or local teams to explore effective practices, share resources, and strengthen cross-system collaboration.

Through a series of interactive sessions, the collaborative will focus on:

  • Identifying practical strategies and best practices to support parents with disabilities;
  • Promoting informed choice, supported decision-making, and rights-based approaches;
  • Navigating complex situations with clarity around roles, responsibilities, and system requirements;
  • Connecting individuals and families to a broader network of supports and resources; and
  • Building sustainable relationships across agencies and communities.

The Learning Collaborative is designed as a community of practice, emphasizing shared learning, discussion, and real-world application. While it will not provide regulatory guidance, it will highlight key questions and opportunities to inform ongoing system improvement.

An informational webinar on June 4, 2026, will provide more details about the collaborative, expectations for participation, and how to get involved.

We hope you will consider joining and sharing this opportunity with others in your network.

Registration details will be announced in the coming weeks — stay tuned!

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The Office of Developmental Programs (ODP) has shared ODPANN 26-040. This communication states that the updated SPeCTRUM training is now available on MyODP. It also outlines completion requirements and provides guidance regarding documentation, transition timelines, and prior version applicability. This announcement obsoletes ODPANN 19-072, 19-121, and 20-032.

The updated SPeCTRUM training has enhanced webinar capabilities, updated content, and has been streamlined while continuing to provide foundational information necessary to support adults with autism spectrum disorder (ASD).

SPeCTRUM training is available on MyODP’s website.

Questions regarding SPeCTRUM training requirements may be directed to the BSASP Training inbox.

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Photo by Larry Crayton on Unsplash

The Office of Child Development and Early Learning (OCDEL) has released the Family Leadership Toolkit, which is designed for state-level professionals and family leaders working to elevate family voices in systems changes. The Family Leadership Toolkit offers practical tools, strategies, and real-world examples to help build strong, collaborative partnerships between professionals and family leaders. You can:

  • Use it to guide leadership development.
  • Share it with your networks and colleagues.
  • Introduce it in meetings, trainings, and planning sessions.
  • Promote it through your organization’s communication channels.

Access The Family Leadership Toolkit here. For questions, please reach out to OCDEL via email.

Additional questions can be directed to RCPA COO and Mental Health Policy Director Jim Sharp.

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The Office of Developmental Programs (ODP) is requesting presentation proposals for its 19th annual Pennsylvania Autism Training Conference (PATC). The conference will be held virtually with an interactive schedule on November 4 – 5, 2026. PATC invites professionals, clinicians, autistic self-advocates, and their families/caregivers to learn from leading experts in the field of autism supports. We are interested to hear from people who have developed and/or effectively implemented models in the following areas:

  • Communication approaches, modalities, and technical advancements;
  • Supporting autistic individuals with profound support needs;
  • The neuroscience of autism;
  • Applications in genetic testing;
  • Sensory impacts and strategies;
  • Executive functioning;
  • Understanding and implementing the foundational frameworks Applied Behavioral Analysis (ABA);
  • Supporting the family and other caregivers;
  • Competitive Integrated Employment; and
  • Community and cultural competence.

Submit your proposal for PATC 2026 here. The deadline to submit proposals is May 29, 2026.

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In 2022, the Office of Developmental Programs (ODP) created the new waiver service Family Medical Support Assistance (FMSA). ODP is scheduling webinars to explain what this service entails, how it works, and who it applies to. ODP is encouraging individuals and families to attend this webinar to learn about this waiver service; there will be time during the webinar for questions to be asked directly to ODP.

Who should attend?
Individuals and Families

Date and Time:
Friday, May 29, 2026
10:00 am – 11:30 am

Register Here

ODP encourages professionals to share this webinar broadly with the individuals and families they support.

Please note that this session is intended specifically for individuals and families. ODP is offering a sperate session for professionals.

A recording of the webinar will be made available on MyODP following the event.

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The Office of Developmental Programs (ODP) has released Announcement 26-039 and its accompanying attachment, detailing the Pay-for-Performance (P4P) initiatives under Performance-Based Contracting (PBC) for the 2026/27 fiscal year. These initiatives provide supplemental payments to eligible residential providers who meet or exceed specific performance benchmarks.

Providers of Residential Habilitation, Life Sharing, and Supported Living services provided through the Consolidated and Community Living Waivers that are assigned to the Primary, Select, or Clinically Enhanced tiers are eligible to participate.

P4P Initiative Areas:

  • Staff Credentialing: Focuses on stabilizing the workforce by incentivizing DSP and FLS credentialing.
    • Criteria: Providers must have 25–30% of DSPs and 45–50% of FLSs credentialed by December 31, 2026.
    • Payment: 0.3% of the prior calendar year’s residential revenue, paid in May 2027.
  • Rural Capacity Expansion: Supports increasing service capacity in designated rural counties.
    • Criteria: Development and approval of a Rural Capacity Expansion Plan with Administrative Entities (AE).
    • Payment: Tiered milestone payments (Planning: $10,000; Implementation: $15,000; Stability: $25,000).
  • Transition to Independent Living: Incentivizes moving individuals from licensed Residential Habilitation (4 or fewer people) to Life Sharing or Supported Living.
    • Payment: Two payments of $15,000 (totaling $30,000 per individual) based on successful transition and six-month retention.
  • Remote Supports: Allows providers to retain savings when utilizing remote supports while billing the daily fee schedule rate.

Important Deadlines:

  • Credentialing Data Submission: February 15, 2027 – March 15, 2027.
  • Rural Capacity Milestones: Submission deadlines vary by milestone (October 2026, January 2027, and April 2027).

Providers should review the detailed criteria in the ODP announcement attachment to ensure internal tracking systems are aligned with the required reporting metrics for 2026/27.

Questions can be directed via email.

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