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Intellectual & Developmental Disabilities

Presidential candidate Hillary Clinton has released her “Plan to Support Children, Youth, and Adults Living with Autism and Their Families.” This autism initiative would include screening, diagnosis, treatment, services, support for families and caregivers, and an increase in research funding.

The plan was released on January 5, with a conference call featuring state Senator Bob Casey, who is a member of the Congressional Autism Caucus. He emphasized the daily challenges for individuals with autism and their families:

  • The need for tools and supports to help lead a full life;
  • Implementation by each state of the ABLE Act to offer funding options for enhancing daily living;
  • Development of a study on autism in adults; and
  • Development of an awareness campaign to emphasize the need for early screening and interventions.

The Bureau of Autism Services (BAS) is conducting a preliminary survey to help inform the design of services for individuals with autism spectrum disorder (ASD) who are transitioning out of high school, including those who may have had justice intersections or psychiatric hospitalizations. This survey is designed to be completed by professionals with or without experience supporting individuals with ASD ages 18-25. BAS is asking for feedback on both surveys by Friday, January 1.

BAS has developed two versions of this survey; one for individuals and families, and another to be completed by professionals. The professionals survey can be completed here. Any questions about these surveys can be directed to the Bureau of Autism Services via email.

ODP Update
The Office of Developmental Programs has released the following information:

  • Announcement #113-15: Enterprise Incident Management System Implementation Information: Changes to the Incident Management Report and System as a Result of EIM Newsflash 5.
  • Pennhurst Advocacy; The Department of Human Services will be transitioning this function from the Office of Administration to ODP, with Southeast Region Program Manager Rochelle Zaslow as the unit director. There are currently 643 Pennhurst class members. Questions may be submitted via email.

Time is running out; the deadline for revalidating is Thursday, March 24, 2016. Numerous RCPA members have already gone through this process, but it appears that large numbers of providers have not yet done so. A special provider revalidation webinar will be held by RCPA on Wednesday, January 6 at 10:00 am. Jamie Buchenauer, from the Department of Human Services, will be presenting the webcast.

This article from Capitolwire is a good and extensive overview of what is going on with the budget here in Harrisburg. Health and Human service budget line items are still fluid until the House and Senate negotiate a final budget deal. RCPA will provide updates on any budget deal, and RCPA encourages members to continue to contact the governor and state legislators to inform them why it’s necessary for them to pass a state budget sooner rather than later. Questions, contact Jack Phillips.