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Tags Posts tagged with "Advocacy"

Advocacy

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The Pennsylvania Developmental Disabilities Council (PADDC) is working on a project to enhance Pennsylvania’s self-advocate leadership to focus on system and policy change. We invite people with developmental and intellectual disabilities (I/DD) and providers or organizations to connect them to self-advocates who may want to be part of the conversation.

The first step in the plan is to gather contact information so they can listen and learn from you. Please complete their survey through the links below.

The long-term plan includes talking with self-advocates with intellectual and developmental disabilities about:

  1. Connecting self-advocates to network and organize as a powerful, united community;
  2. Creating the foundation for an effective statewide network of skilled advocates who can influence system change; and
  3. Involving people interested in advocacy and system change to plan together for the future.

Please visit one of the links below by March 20 to help them learn about self-advocacy in Pennsylvania!

  1. If you are an individual with intellectual and/or developmental disabilities and are interested in becoming an advocate, please use this survey link.
  2. If you are an organization or provider that engages with people with intellectual/developmental disabilities, please use this survey link.

Please share this opportunity to connect with interested Pennsylvania advocates and I/DD providers or organizations in your network!

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Advocate for yourselves and others by meeting with legislators directly! Take the opportunity to join RCPA as we hold our annual Capitol Day this year on Tuesday, March 19. We will hold a press conference in the Main Rotunda between 10:30 am – 11:30 am, which will tentatively include speakers such as:

  • Representative Dan Miller;
  • Representative Stephen Kinsey;
  • Representative Doyle Heffley;
  • Senator Art Haywood; and
  • Senator Frank Farry.

You can register for our Capitol Day press conference by contacting Allison Brognia or Christine Tartaglione with the number of anticipated attendees. RCPA requests that members schedule appointments with their Senate and House legislators directly to discuss the state budget, legislation, and regulations after our press conference.

We ask that you please use RCPA’s legislative priorities one-pager during your legislative visits. As an additional resource, members can visit the Pennsylvania Capitol website to locate parking and view maps of the building. If you have questions regarding our 2024 Capitol Day, please contact Jack Phillips.

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Advocate for yourselves and others by meeting with legislators directly! Take the opportunity to join RCPA as we hold our annual Capitol Day this year on Tuesday, March 19. We will hold a press conference in the Main Rotunda between 10:30 am – 11:30 am, which will tentatively include speakers such as:

  • Representative Dan Miller;
  • Representative Stephen Kinsey;
  • Representative Doyle Heffley;
  • Senator Art Haywood; and
  • Senator Frank Farry.

You can register for our Capitol Day press conference by contacting Allison Brognia directly. Please let us know if additional staff or colleagues within your organization are planning to attend Capitol Day with you. RCPA requests that members schedule appointments with their Senate and House legislators directly to discuss the state budget, legislation, and regulations after our press conference.

We ask that you please use RCPA’s legislative priorities one-pager during your legislative visits. As an additional resource, members can visit the Pennsylvania Capitol website to locate parking and view maps of the building. If you have questions regarding our 2024 Capitol Day, please contact Jack Phillips.

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RCPA is proud to announce that we will be hosting our annual Capitol Day on Tuesday, March 19, 2024. We will hold a press conference in the Main Rotunda between 10:30 am – 11:30 am, which will tentatively include speakers such as:

  • Representative Dan Miller;
  • Representative Stephen Kinsey;
  • Representative Doyle Heffley;
  • Senator Art Haywood; and
  • Senator Frank Farry.

You can register for our Capitol Day press conference here. If additional staff or colleagues within your organization are planning to attend Capitol Day with you, please email Christine Tartaglione with the number of anticipated attendees. RCPA requests that members schedule appointments with their Senate and House legislators directly to discuss the state budget, legislation, and regulations after our press conference.

We ask that you monitor your emails for updates regarding Capitol Day, as RCPA will be sending out legislative priorities and other policy documents for use during legislative visits in the near future. As an additional resource, members can visit the Pennsylvania Capitol website to locate parking and view maps of the building. If you have questions regarding our 2024 Capitol Day, please contact Jack Phillips.

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Photo by Markus Winkler on Unsplash

In response to the recent developments on the delivery of telehealth services and its intersection with Federal Medicaid payment standards outlined in the “4 walls” requirements, RCPA has widened its efforts in addressing the barriers currently in place. It has been determined that the most effective route to address this would be through legislation. The necessary changes cannot be achieved through a revised Tele-Behavioral Health Bulletin.

RCPA has been working with a bipartisan team of legislators on an updated version of Act 76 to address our limited access to psychiatric services through utilization of our advanced practice professionals. We are working with the Office of Mental Health and Substance Abuse Services (OMHSAS), our stakeholders, and the legislative committees to introduce a bill that would address both the psychiatric office time and the “4 walls” service delivery barriers.

Our members’ feedback over the last few days and during the OMHSAS telehealth forum on Monday has provided an invaluable backdrop to our efforts. RCPA is focused on working with our legislators and stakeholders to introduce this bill, and we will look to our members for support with these efforts. Additionally, we continue our daily efforts with our partners at OMHSAS, who are jointly committed to creating this viable and sustainable effort to preserve Medicaid service access to those most vulnerable in our Commonwealth.

If you have any questions, please contact RCPA Policy Director Jim Sharp.

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