Next week, some Members of Congress will be back in their districts, making it the perfect time to meet with them and urge them to protect Medicaid funding for home and community-based services (HCBS).

The newly released House budget framework calls for 1.5 trillion in cuts over ten years and directs the House committee with jurisdiction over Medicaid to cut at least $880 billion in spending. While the details have not yet been finalized, these reductions would likely result in deep cuts to Medicaid funding. Even if proposals do not specifically target funding for I/DD services, the resulting pressure on state budgets from Medicaid cuts creates an elevated risk of further limits and cuts to services for individuals with I/DD. In-district meetings and site visits are some of the most effective ways to educate lawmakers and their staff on how these cuts would harm people with intellectual and developmental disabilities (I/DD), providers, and families.

To help you prepare, we’ve put together key advocacy resources, including:

Medicaid Cuts Fact Sheet – Key talking points on how federal Medicaid cuts shift costs to states and harm disability services.
ANCOR Medicaid Resource Center – Data and tools to support your advocacy efforts.
In-District Meeting & Site Visit Tool – Tips, sample meeting requests, and scripts for engaging your lawmakers.

Why Your Action Matters:
Studies show that constituent messages are the most effective way to influence lawmakers. When they see firsthand the impact of Medicaid-funded services in their communities, they are far more likely to protect funding.

Take this opportunity to reach out to your Members of Congress while they’re home next week or check their website for an email list signup to make sure you don’t miss any opportunities to engage while they are home — let’s make sure they understand why Medicaid funding must be protected.

Thank you for your advocacy.

ANCOR Announces New Medicaid Resource Center

Feb 11, 2025

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Message from ANCOR:

ANCOR shares their new Medicaid Resource Center for targeted resources to aid in your education and advocacy efforts! Let’s work together to protect Medicaid funding from potential cuts!

The Medicaid Resource Center is a central location where you can find the most up-to-date information and resources. Included in the Medicaid Resource Center is a video Intro to I/DD Services, ANCOR’S most recent fact sheet Cuts to Medicaid Harm Disability Services, as well as highlighted reports and white papers on Medicaid trends and impacts of community-based services. In addition to the Advocacy Toolkit and the ANCOR Amplifier, please use these targeted resources available in the new Medicaid Resource Center to aid in your advocacy.

As a reminder, you can also still take our action alert urging your Senators and Representatives to reject any proposals that reduce federal Medicaid funding! Thank you and please do not hesitate to reach out if they can help in your outreach!

Lydia Dawson, JD
ANCOR | Vice President of Government Relations
571-932-5375

Second Federal Judge Issues Temporary Restraining Order

Feb 3, 2025

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Message from ANCOR:

A second federal judge has blocked the freeze on federal spending noticed earlier in the week through a memo from OMB.

The order directs the Trump Administration not to “pause, freeze, impede, block, cancel, or terminate defendants’ compliance with awards and obligations to provide federal financial assistance to the states, and defendants shall not impede the states’ access to such awards and obligations” until further arguments can be heard.

The order does not prevent the review of federal programs, only the freeze on federal spending during the review. The OMB memo was rescinded prior to the issuance of the order, but the judge expressed earlier in the week that he was not persuaded that withdrawing the memo removed the underlying harm.

A hearing is expected Monday on the previous restraining order issued earlier in the week. We’ll keep you posted as we learn more.

Lydia Dawson, JD
ANCOR | Vice President of Government Relations
571-932-5375

Update Regarding Federal Funding Freeze

Jan 29, 2025

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White House Close Up Photo — Image by David Mark from Pixabay

RCPA continues its efforts to update members on the White House funding freeze while partnering with the National Council for Mental Wellbeing and ANCOR in examining the implications stemming from the White House Office of Management and Budget’s (OMB) January 27 memorandum temporarily freezing federal disbursements to many federal programs.

The National Council has provided the following update:

Federal agencies have been directed to fill out a spreadsheet as part of an analysis by Feb. 7 to ensure compliance with the president’s most recent executive orders. This is a breakdown of which health programs are included in this latest action.

Notably, we recognize conflicting guidance has been issued. While the above report identifies Medicaid programs, a Q&A document from the administration notes that Medicaid will continue without pause. As of Tuesday morning, all 50 states reported outages of their Medicaid online portals, and the Trump administration has stated they are aware of the outages and expect the portals to be back online shortly.

Also, several groups have taken action to block this funding freeze. As of this writing, several Democratic state attorneys general said they would ask a court to block the freeze from taking effect. Several groups representing nonprofits, public health professionals and small businesses have already filed suit in D.C. asking the court to prevent the freeze from continuing. On Tuesday evening, U.S. District Court Judge Loren L. AliKhan issued a temporary stay on the funding freeze until Feb. 3 at 5:00 pm ET.

The funding freeze may lead to project delays or cancellations, resulting in layoffs of workers involved in these programs, and may ultimately increase the unemployment rate, making it vital lawmakers understand the impact of this freeze on communities across the country.

Most notable are the concerns with the intersects of Medicaid funding though the information that has been released. The Q&A document states:

Q: Is this a freeze on benefits to Americans like SNAP or student loans?

A: No, any program that provides direct benefits to Americans is explicitly excluded from the pause and exempted from this review process. In addition to Social Security and Medicare, already explicitly excluded in the guidance, mandatory programs like Medicaid and SNAP will continue without pause.

RCPA will continue to communicate new developments with members as they emerge. If you have any questions, please contact your RCPA Policy Director.