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BIAA

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RCPA received notification today from the Brain Injury Association of America (BIAA) and the National Association of State Head Injury Administrators (NASHIA) that the Traumatic Brain Injury (TBI) Act was included in Congress’s proposed year-end package. Key provisions included in this bill include:

Administration for Community Living (ACL)

  • Reauthorizes the State Partnership Program and Protection & Advocacy Program.
  • Allows grants to be used to support systems of care for people of any type of acquired brain injury.
  • Allows a state to request a waiver of the match requirement if they cannot meet the match to carry out the grant purposes. The match decrease can only be for that fiscal year, and states must maintain at least the match that they have had during the previous fiscal year.
  • Requires ACL in awarding State Partnership Program grants to take into consideration populations that may be at higher risk for brain injury.

Centers for Disease Control and Prevention (CDC)

  • Reauthorizes the CDC’s TBI Programs, including the National Concussion Surveillance System.
  • Renames the TBI Program to honor Congressman Bill Pascrell.
  • Requires an examination of brain injury as a chronic condition that may impact someone across the lifespan. CDC plans to accomplish this through work with the National Academies of Science, Engineering, and Medicine.
  • Requires CDC to review those who may have higher impact of brain injury, including due to their occupation and from interpersonal violence.

RCPA encourages providers, staff, and families to reach out to their members of Congress through email or phone call by COB Thursday, December 19, 2024. The message can be simple. For example:

As a constituent, I encourage you to support the year-end continuing resolution, which includes the TBI Act. The TBI Act is pivotal to create systems of care for people of brain injury. [Feel free to share any personal impact] Thank you for your support of this important bill.

In Pennsylvania, our current state Senators are:
Casey, Robert P., Jr. and
Fetterman, John

Additional information for contacting your Senators can be found here.

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The Brain Injury Association of America (BIAA) will be conducting an event via Zoom that will focus on the recent announcement from the Centers for Medicare and Medicaid Services (CMS) that formally designated brain injury as a chronic health condition. The session, “CMS Chronic Condition Designation — What it Means for You,” will be held on September 24, 2024, at 12:00 pm.

Panelists for this event include:

  • Denver Supinger, BIAA’s Director of Advocacy and Government Relations;
  • Karen Kimsey, former Director of the Department of Medical Assistance Services;
  • Paul Bosworth, brain injury survivor and member of BIAA’s Brain Injury Survivors Council; and
  • Darcy Keith, brain injury survivor and member of BIAA’s Brain Injury Survivors Council.

To participate in the event, please register here.

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The Brain Injury Association of America (BIAA) recently shared information on a live Question & Answer (Q&A) session with the Brain Injury Specialists who manage the National Brain Injury Information Center (NBIIC) on September 13, 2024, at 1:00 pm. Greg Ayotte, CBIST, and Heather Matty, CBIS, will discuss the latest developments in brain injury research, how you can participate in research studies, and more.

If you have a question about brain injury research that you would like to have answered during this event, members are encouraged to submit it here, followed by filling out the form on the page.

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The Centers for Medicare and Medicaid Services (CMS) has recognized traumatic brain injury (TBI) as a chronic health condition. TBI has been added to CMS’ list of chronic conditions for chronic special needs plans (C-SNPs) through its Medicare Advantage program, effective for the January 2025 plan year.

The addition of TBI to the list of chronic conditions was included in a final rule published by CMS in the June 2024 Federal Register, which will become effective on January 1, 2025. Obtaining official recognition of TBI as a chronic condition from CMS is a significant step forward and provides validation that brain injury should be more broadly recognized as a chronic condition.

In March 2024, the Brain Injury Association of America (BIAA) published a position paper requesting CMS, along with the Centers for Disease Control and Prevention (CDC), to designate brain injury as a chronic condition. Formal recognition, the paper states, has the potential to provide several advantages for people with brain injury, including the allocation of additional public health resources to focus on the lifelong effects of brain injury as well as health insurance plans, primarily Medicare and Medicaid, providing additional benefits and other supports as they do for other chronic health conditions. The greatest benefit, however, would be an increase in public awareness of the long-term effects of brain injury that affect the estimated 5 million Americans with a brain injury-related disability.

BIAA will be hosting a live Question and Answer (Q&A) session in the near future to discuss these changes and future tools and resources to assist survivors and their loved ones advocate for further expanding coverage.

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Last evening, the Brain Injury Association of America (BIAA) released the following Action Alert regarding a bill that proposes to eliminate brain injury (BI) programs at the Centers for Disease Control and Prevention (CDC) Injury Center. View the Action Alert below:

House Budget Bill Proposes to Eliminate Brain Injury Programs at the CDC Injury Center

Dear Brain Injury Champions and Advocates,

On Wednesday, the House Subcommittee on Labor, Health and Human Services, Education, and Related Agencies proposed a budget bill for Fiscal Year 2025 that would eliminate all brain injury programs under the Centers for Disease Control’s Injury Center.

This would be an enormous step backwards. Without these brain injury programs, we’ll have even less accurate data and create a void in public education and outreach.

We need you to help us oppose this proposal and preserve brain injury programming!

ACTION ALERT:

We are asking ALL our advocates to email and call House Appropriations Labor and Health and Human Services Subcommittee members and ask them to save the Injury Center by 9:00 am on Wednesday, July 10.

You can learn more about what’s at stake and find a sample email and phone script by selecting the Take Action Now button below.

Take Action Now

We need all the help we can get. You can help by spreading the word on social media and within your social circles! Action is needed NOW!

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When it comes to something as serious as concussion — an injury that is estimated to occur every 15 seconds in the United States — the faster you receive a diagnosis, the faster you can get back to the things you love. And yet, over half of people who suspect they have a concussion never get it checked.

The Brain Injury Association of America (BIAA) is proud to be the cofounder of Concussion Awareness Now, a coalition of organizations dedicated to changing how society views concussion. It’s not tough to tough it out. And if you hit your head, you should get it checked.

The Concussion Awareness Now coalition includes nearly 20 partners, including organizations that determine guidelines for concussion care, advocate for patients, and work with communities who are vulnerable to concussions. Together, we have decades of experience in the brain injury community and the resources to create a rallying cry for awareness and, ultimately, action. Our goal is to help reshape how society views concussion so that people get the care they need.

Learn more at Concussion Awareness Now and follow the coalition on Facebook and Instagram.

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