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HARRISBURG, PA — A bipartisan group of Pennsylvania lawmakers joined members of the Rehabilitation and Community Providers Association (RCPA), the Commonwealth’s largest health and human services trade association, at a press conference at the state Capitol in support of vital disability and human service programs. These programs serve millions of Pennsylvanians annually and play a transformative role in their lives.
At the March 26 press conference, RCPA and lawmakers pushed for continued funding and improved payment models, including Medicaid capitation, as well as decreasing administrative burden in the safety net system, as part of any final 2025/26 budget adopted by the General Assembly. These initiatives will help improve services and make the system work better for everyone. They also highlighted the need to invest in the workforce, ensuring strong support for licensed clinicians, direct support professionals, counselors, case managers and support/service coordinators, and peers.
Richard S. Edley, PhD, President and CEO of RCPA, spoke on behalf of members and those who rely on health and human services. Fady Sahhar, MBA, PhD, RCPA Director of Physical Disabilities & Aging, also communicated the need for Medicaid preservation and continued funding.
Richard S. Edley, PhD, President & CEO | Fady Sahhar, MBA, PhD, Director of PD&A |
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RCPA members also raised their voices to stress the importance of not only maintaining but improving the systems in place. Speakers included Melva Fair, an RCPA Board Member and CEO of Community Living and Support Services (CLASS), and Annie Smith, Director of Early Intervention at RCPA member Strawberry Fields. Also in attendance were RCPA Board Members Susan Coyle of Chartiers Center and Gretchen Kelly of PLEA.
Melva Fair | Annie Smith | Susan Coyle and Gretchen Kelly |
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Representatives from both sides of the aisle in the House and Senate spoke in agreement with RCPA’s message, voicing continued support for vital services in Pennsylvania.
Representative Doyle Heffley | Representative Joseph Hohenstein | Senator Tim Kearney |
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Last but not least, RCPA thanks everyone who attended this year’s Capitol Day. Your support and presence made this year one of our most successful press conferences to date!
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The PA Developmental Disabilities Council (PADCC) has shared their 2024 Impact Report, which you can read here. Lisa Tesler, Executive Director of PADCC, shares her thoughts on their 2024 achievements:
“As I think back on this past year, I feel proud of our achievements and the many ways we have improved the lives of people with Intellectual and Developmental Disabilities (I/DD) and their families. PADDC has succeeded because of effective leadership from Council Members and the hard work of our grantees, staff, partners, and collaborators…
In 2025, we will continue our existing work and increase our focus on collective advocacy. Considering the anticipated changes ahead, our efforts will prioritize access to quality services and Medical Assistance.”
The Republican-controlled U.S. House adopted a federal budget resolution last week that instructs the House Energy and Commerce Committee, which has jurisdiction over Medicaid, to identify at least $800 billion in mandatory spending cuts during the next 10 years. The resolution is now in the GOP-controlled U.S. Senate.
Medicaid, which is jointly funded by states and the federal government through a federal matching program with no cap, is seen as a prime target for cuts, as it is one of the largest federal programs at a cost of more than $600 billion a year. Approximately 70 million people in the United States receive Medicaid benefits, with about 3 million — including 1.2 million children — of those in Pennsylvania. While officially the federal government did not name Medicaid as the target, there are virtually no other areas to turn to in order to generate such spending cuts.
Proposals being considered in Congress to cut Medicaid are estimated to cost Pennsylvania as much as $2 billion a year. These cuts will inevitably result in:
In addition to broad, negative consequences, each segment of the human services sector will be affected.
Behavioral Health
Medicaid is the largest payer of behavioral healthcare services in the United States, where nearly 40 percent of non-elderly adult Medicaid beneficiaries have a mental health or substance use disorder. Additionally, Medicaid is an essential revenue source for behavioral healthcare organizations. With the potential of fewer covered individuals and lower reimbursement rates, access will be squeezed, with existing providers less incentivized to accept Medicaid patients.
These potential cuts come on the heels of a compromised post-public health emergency unwinding of Medicaid, in which Pennsylvania’s actuarial analysis for the behavioral health capitation was severely underestimated. The eventual Medicaid rolls included more individuals with acute and chronic conditions, resulting in higher levels of care and services. Despite mid-year adjustments to the HealthChoices’s primary contractors, Pennsylvania will start the new fiscal year with the need to increase its BH Medicaid capitation by nearly $640 million.
Intellectual and Developmental Disabilities
Medicaid is the primary funding source for IDD services. If the proposed multi-billion dollar funding cuts occur, Pennsylvania’s intellectual disability system will face serious consequences, including service reductions, longer waitlists, and limited access to essential care. Providers already under strain may have to discharge individuals from community-based services, potentially returning them to institutional settings and undoing decades of progress towards independence and inclusion.
Pediatric Rehabilitation
Medicaid is a key funding source for healthcare and rehabilitation services for infants, children, and adolescents living with disabilities and medical complexity. Even for families with a private primary insurance, Medicaid as a secondary insurance fills in the gaps in covered care. Children with disabilities, regardless of household income, are Medicaid eligible to offset the high costs of care. Medicaid cuts will negatively impact the most vulnerable in our state: children with disabilities and special health needs.
Early Intervention
Medicaid is a supplemental funding source for Early Intervention services in Pennsylvania. All Pennsylvanian families currently enjoy access to these crucial home- and community-based services with no cost-share. Cuts in funding to this program may cause tighter eligibility requirements or cost-shares for families, ultimately decreasing access to essential services.
How the Cuts Might Be Done
Work Requirements
At this point, work requirements appear to be one of the most likely paths to Medicaid cuts.
According to the Pennsylvania Health Access Network (PHAN), approximately 1 million adults in Pennsylvania would be subject to the work requirement.
Medicaid work requirements would require certain Medicaid enrollees to work, look for work, or conduct another qualifying activity (e.g., education, caretaking) as a condition of receiving health insurance. As part of such a requirement, all working age Medicaid enrollees may be required on a monthly basis to report their work or verify their eligibility for an exemption because they are in school or a job training program, caring for others, or disabled/in treatment. Failure to do so would result in them losing Medicaid coverage.
On the surface, increasing support for work requirements is understandable. Able-bodied citizens on Medicaid who can work, should work. What is not being discussed is the fact that most of these individuals are already working but at an income that still qualifies them for Medicaid. Further, studies from states that have attempted to implement a Medicaid work requirement show that the cost to the state to implement and administer such a requirement is in the tens of millions of dollars.
If work requirements become a reality, advocates must lobby for waivers for special populations.
Federal Medical Assistance Percentage (FMAP)
At this point, according to Speaker of the U.S. House Mike Johnson, FMAP (as well as per-capita caps, see below) are not a consideration for reducing Medicaid spending.
Each state’s FMAP determines its federal share of Medicaid funding. FMAP is a formula that uses the state’s most recent three-year average per capita income data to provide higher matching rates to states with lower per capita incomes relative to the national average. FMAPs have a statutory minimum of 50 percent and a maximum of 83 percent.
In Pennsylvania, 56 percent of Medicaid costs are paid with federal dollars, leaving Pennsylvania to cover the balance.
Under the Affordable Care Act’s Medicaid Expansion, the FMAP for what became the newly eligible population — mostly low wage workers who do not have coverage through an employer, disabled workers, caregivers to children or elderly family members, and students — is fixed at 90 percent federal funding, with the commonwealth paying for the balance.
Per Capita Caps
A per capita cap funding arrangement sets an upper limit on federal payments per Medicaid enrollee in each eligibility group. In an aggregated cap (also called a capped allotment) approach, states receive federal matching funds up to a determined maximum. If the cap is exceeded, the state bears 100 percent of that cost with no federal match.
Resources
There are many resources continually being developed and distributed. These include ways to take immediate action with Congress. The following are some of the most relevant to our membership.
Next Steps
RCPA will continue to closely monitor the issue. As Congress’s next steps become clearer, we will work with our partners, including you, to develop and execute strategies to stop Medicaid cuts or minimize the negative effects.
Contact your respective RCPA Policy Director with questions.
The Senate Appropriations Committee held the 2025 Department of Human Services (DHS) Budget Hearing at the Capitol in Harrisburg on Wednesday, March 5, 2025. DHS was represented by Secretary Dr. Valerie Arkoosh and Gloria Gilligan, Director of Fiscal Management, Office of the Budget. Other DHS leadership was also present.
The Senate Appropriations Committee was equipped with questions surrounding the proposed $21B DHS budget that focused on intersects with operating critical services for vulnerable Pennsylvanians across the human services landscape. RCPA submitted questions to the House Appropriations Committee’s legislators that voiced the concerns of the membership across all policy areas.
The hearing today covered several of those questions, including:
View the 2025/26 Department of Human Service Blue Book for in-depth budget information. Members can watch the full hearings and read the transcripts below:
Contact your RCPA Policy Director with any questions.
The House Appropriations Committee held the 2025 Department of Human Services (DHS) Budget Hearing at the Capitol in Harrisburg on Tuesday, March 4, 2025. DHS was represented by Secretary Dr. Valerie Arkoosh and Gloria Gilligan, Director of Fiscal Management, Office of the Budget. Other DHS leadership was also present.
The House Appropriations Committee was equipped with questions surrounding the proposed $21B DHS budget that focused on intersects with operating critical services for vulnerable Pennsylvanians across the human services landscape. RCPA submitted questions to the House Appropriations Committee’s legislators that voiced the concerns of the membership across all policy areas.
The hearing today covered several of those questions, including:
RCPA will continue to monitor the hearings and subsequent reporting, and we plan to provide an overview of the Senate Appropriations Committee DHS Budget Hearing held today, March 5. If you have any questions, please contact your respective RCPA Policy Director.
Members can watch the full hearings and read the transcripts below:
Message from Representative Dan Miller’s Office:
Supporting and defending Medicaid funding to our Commonwealth has always been a top priority of mine, and this week we’re having a press conference to discuss the potential impact that Federal cuts to Medicaid may have on our most vulnerable populations.
Joining me will be U.S. Reps. Chris Deluzio and Summer Lee, other state lawmakers, and Allegheny County officials to highlight why defending Medicaid is imperative. We will also hear from self-advocates who would be directly impacted by Medicaid changes.
The loss of Federal funding to states would be devasting for the more than 3 million Pennsylvanians who are enrolled in Medicaid. Medicaid also pays for 30% of Medicare. Those that depend on its supports and services, include:
The news conference will be held at 10:15 am Friday, February 28, at the Portico of the City-County Building, 414 Grant St., Pittsburgh.
We’ll also be joined by state Reps. Dan Frankel, Emily Kinkead, Jess Benham, Lindsay Powell, Aerion Abney, La’Tasha D. Mayes and Arvind Venkat; state Sens. Jay Costa, Wayne Fontana, Lindsey Williams and Nick Pisciottano; Mayor Ed Gainey; Allegheny County Controller Corey O’Connor; Pittsburgh Councilwoman Erika Strassburger; and the offices of County Executive Sara Innamorato and U.S. Sen. John Fetterman.
There is a lot to be discussed, and everyone is welcome to join us this Friday at 10:15 am at the Portico of the City-County Building located at 414 Grant Street in downtown Pittsburgh.
As always, if you have questions about this event or any state-related matter, please contact our office at 412-343-3870 or [email protected].
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The Pennsylvania Department of Human Services (DHS) is holding a post-award forum to afford the public with an opportunity to provide comments on the progress of the federal Section 1115 Demonstration titled “Medicaid Coverage for FFCY from a Different State and SUD Demonstration.” The FFCY component of the demonstration was approved by the Centers for Medicare & Medicaid Services (CMS) effective October 1, 2017, and enables the Commonwealth to provide Medicaid coverage to out‑of‑state former foster care youth under the age of 26 years who were in foster care under the responsibility of another state or tribe when they turned 18. The SUD component of the demonstration was approved by CMS effective July 1, 2018, and provides necessary funding that is critical to continue supporting the provision of a full continuum of medically necessary SUD services, including residential services. In September 2022, CMS approved the Commonwealth’s application to renew the Demonstration through September 30, 2027.
The forum will be held on Friday, March 28, 2025, from 2:00 pm – 3:30 pm via WebEx. Please register for the Post Award Forum prior to the meeting date here.
Please contact RCPA Policy Associate Emma Sharp with any questions.