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National Core Indicators®-IDD: NCI Family Surveys COVID-19 Supplement — National Report Special Edition

In response to the COVID-19 pandemic, NCI-IDD added a state-optional COVID-19 Supplement to all NCI-IDD Surveys. The COVID-19 Supplement is intended to support the understanding of the experience of people with disabilities and their families during the COVID-19 pandemic as well as their interactions with services during that time. Data was collected between July 1, 2020, and June 30, 2021.

This Special Edition Report shows individual state and overall national outcomes for the NCI-IDD COVID-19 Supplement questions. You can see the report here.

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The Centers for Disease Control and Prevention (CDC) issued a new report, “Differences in State Traumatic Brain Injury-Related Deaths, by Principal Mechanism of Injury, Intent, and Percentage of Population Living in Rural Areas-United States, 2016–2018,” that shows Traumatic Brain Injury (TBI)-related death rates are higher in the South and Midwest regions of the United States (U.S.). States with a higher percentage of people living in rural areas also had higher rates of TBI-related deaths during 2016–2018. Suicide and unintentional falls contributed the highest number of TBI-related deaths in most states. Some additional key findings from this report include:

  • The South and Midwest regions had the highest rates of TBI-related deaths (19.2 per 100,000 and 18.1 per 100,000, respectively). The overall U.S. TBI-related death rate was 17.3 per 100,000.
  • The Northeast and West regions had the lowest rates of TBI-related deaths (12.8 per 100,000 and 16.8 per 100,000, respectively).
  • The lowest rate was in New Jersey (9.3 per 100,000), while the three highest state rates were in Alaska (34.8), Wyoming (32.6), and Montana (29.5).
  • Suicide was responsible for the highest number and the highest rate of TBI-related deaths for most states.
  • More than 40 percent of TBI-related deaths were due to homicides or suicides.

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The Pennsylvania Department of Drug and Alcohol Programs (DDAP) today announced findings from a new report highlighting the need to update existing client record policies to address barriers for individuals seeking substance use disorder (SUD) treatment and better integrate the drug and alcohol treatment system with other healthcare services.

The recommendations outlined in this report suggest a shift in Pennsylvania’s approach to confidentiality of SUD records. DDAP plans to work with the legislature to implement the following three recommendations:

  • Align Pennsylvania SUD confidentiality regulations with federal regulatory language contained in 42 CFR Part 2;
  • Develop resources, including informed consent trainings, on client privacy rights to ensure that all individuals who enter SUD treatment in Pennsylvania are informed of their rights over their own records; and
  • Create an ombudsman or advocate position at the state level to empower individuals to report grievances if they think their data has been misused or if they feel their SUD status has resulted in discrimination.

Throughout 2020, DDAP conducted a stakeholder survey in partnership with Vital Strategies for feedback on statutes and regulations that control the management of SUD records in Pennsylvania. The new report and findings offer potential pathways for updating Pennsylvania’s SUD confidentiality policies to meet the needs of an evolving SUD service landscape that is becoming increasingly more integrated and collaborative.

Read the full press release.

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