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Authors Posts by Carol Ferenz

Carol Ferenz

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Don’t wait any longer — time is running out to take advantage of the early bird registration rate for the 2023 RCPA Annual Conference A Decade of Unity! Early bird rates end Friday, September 8, 2023. You can view our registration brochure to see our exciting lineup of sessions, keynote speakers, and activities, including networking and Connections Hall events, as well as information on booking your hotel room. Complete the brochure and reserve your seat at the early bird discount rate today!

We also wish to extend our thanks to those organizations that have already contributed and shown their support! Please note that all exhibitor booths have been reserved! However, you can still sponsor and advertise by completing our sponsor/exhibitor brochure today! As a reminder, sponsors, exhibitors, and advertisers who wish to be listed on the website, the mobile app, and in the conference program must submit all materials by September 8. If questions remain, please contact Carol Ferenz, Conference Coordinator.

Students with disabilities in Pennsylvania will now receive free support through the public education system for an additional year beyond what current policy dictates, The Associated Press reported. Under a settlement announced Thursday, the state’s Department of Education will change its policy to allow students with disabilities to continue in K-12 public education until they turn 22. Previously, students would age out of the program at the end of the school year, during which they turned 21. Students who turned 21 during the 2022/23 school year and were considered to have aged out will also have the option to re-enroll in public school this year, according to the settlement. The new policy takes effect September 5.

RCPA members are encouraged to participate in the ID/A Workforce Compensation study conducted by and in collaboration with the Center for Healthcare Solutions described below. The Center for Healthcare Solutions performed the survey that we supported last year, as well. This study is being done jointly with several other statewide and regional associations, and we are hoping that providers across Pennsylvania will participate in order to provide adequate data for use in advocacy efforts to improve conditions for our workforce. This also presents an opportunity to have comparative data.

The scope of this survey and the report generated from it will address compensation practices for 46 positions, including Direct Support Professionals (DSP), supports coordinators, frontline supervisors, clinical positions, program specialists, facilities staff, and administrative personnel. It will also provide data on staff vacancies and turnover that continues to impact care and services across Pennsylvania.

Any ID/A employer in Pennsylvania is eligible to participate in the survey and will receive the published report, which will also be provided to the Pennsylvania Office of Developmental Programs. As always, CFHS follows all FTC/DOJ guidelines to de-identify data and maintain confidentiality. If you are a member of multiple associations, you only need to complete the survey once.

Two files are included: the input form and the general instructions for filling out the input form. Completed surveys may be emailed to Steve Forest or uploaded via SFTP (information included in the instructions) by Friday, September 22. The published report is expected to be issued on Friday, October 6.

Additionally, a workshop has been scheduled for Thursday, September 7, at 10:00 am to review the survey and assist participants in its completion. To register for this workshop, please visit here.

Nominate a Direct Support Professional to enter them into a raffle for a $100 Amazon gift card!

Each September, our community comes together to celebrate the Direct Support Professionals (DSP) who make such an important impact in the lives of people with intellectual and developmental disabilities. The work of a DSP is complex and highly specialized, as they support every aspect of an individual’s daily life on a unique, person-by-person basis. These unsung heroes act as a lifeline for people with disabilities under normal circumstances.

In celebration of this year’s DSP Recognition Week, eVero will select 10 DSPs at random to win $100 Amazon gift cards. Please visit below to access the nomination form and let us know a little bit about your favorite DSP!

Visit Here for the DSP Nominee Form

  • 2 winners will be randomly selected each day from September 11–15, 2023.
  • Winners’ names will be announced each day on eVero’s blog post and social media accounts to further highlight the outstanding work of these individuals.

Draeger Medical, Inc. is recalling its Carina Ventilators due to the presence of contaminants in the device’s airpath. The contaminants exceed acceptable levels if used by pediatric patients for more than 30 days. During testing, the firm found polyether polyurethane (PE-PUR) in the airpath of the Carina ventilator. This results in the emission of contaminant 1,3-Dichloropropan-2-ol, a potential carcinogen.

Please be aware, this recall is a voluntary correction, not a product removal.

Clinicians may continue to use the devices with adult patients and are instructed to not use the devices with pediatric patients.

The FDA has identified this as a Class I recall, the most serious type of recall. Use of these devices may cause serious injuries or death.

Read more here.

If you have questions about this recall, contact Draeger Service Technical Support between the hours of 8:00 am – 8:00 pm EST at 800-437-2437 (press 2 at the prompt, then 2 again).

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(shared by the mother of two sons with intellectual & developmental disabilities/autism, Nechel spoke at the Capitol at one of our recent rallies)

My name is Nechel. My education is in art education. I am no doctor, so do your own research, I can only speak from my experiences, and would like to share them with you.

I have two sons, 22/21; both are on the autism spectrum. My 22-year-old was diagnosed at three years and has high functioning Asperger’s with severe generalized anxiety. Secondary diagnoses are sensory integration disorder, OCD, ADHD. My 21-year-old was diagnosed at 11 months old. He actually has two primary diagnoses – severe autism with aggression and ID. Secondary diagnosis – SI, OCD, language delay, ADHD.

Both sons struggled with childhood sicknesses like most do, including allergies, RSV, croup, ear infections, sinus infections, etc. My youngest son suffered more with these illnesses, which exacerbated the aggressive behaviors! He was taking an average of eight antibiotics per year! He has had six sets of ear tubes, tonsillectomy, sinuses were cauterized, but still needed to be on antibiotics several times a year! His health was impacting behaviors and therapies profoundly. I went on a mission to get my sons healthier.

We have tried many therapies and services over the years, both outpatient and in school. We have utilized Occupational Therapy, Speech Therapy, and assistive technology for language including devices such as “Say it Sam,” and Prologue2go. We have explored/accessed BCBA, BSC, TSS, MT, talk, special school programs, social groups, different foods, and therapies such as play, equine, and music. We have been to specialists, and experimented with homeopathic medicine, and many medication trials!!

I have been using all natural items I have researched in determining each boy’s needs. I capsulize several items for ease of dispensing and avoiding sensory issues. The silver tastes like water so I add to drinks. My sons use immune boosting supplements such as a multivitamin, D3, B-complex, Zinc, Magnesium, Probiotics, and Melatonin. For anxiety, one of my sons uses CBD, Bergamot tablet/roll-on, and Valerian root. My 22-year-old son is now off all prescription medications. My 21-year-old has now gone almost five years with no need for antibiotics, and five fewer prescriptions!

Both use natural remedies such as Mullein EO, sovereign silver liquid/nasal spray PRN for allergies. At the onset of any illness symptoms, we use oregano, elderberry, increase D3, increase Zinc, C, and sovereign silver (liquid, spray).

Due to dietary selectiveness, I utilize a vegetable and fruit-based protein powder with probiotics to bake cookies/brownies. Utilize whatever way works for your child. Amazing flavor, several flavor options, with no chalkiness! I replace flour with this product, undetected!

One experience I would like to share is extraordinary. I learned about Red Pine Needle Oil. Several studies on this refer to use in people with autism, Alzheimer’s, and Dementia, in regards to language, mental clarity, and neurological transmitter repair. In the studies I reviewed, EVERY participant showed some type of improvement! So I had nothing to lose! My oldest son, at age 20, had very limited functional language. He spoke in one word responses, and never wrote anything independently. On the second day using red pine needle oil, he spoke independently and clearly, “Pennsylvania polka calendar!” On the fourth day, he said “I love you” to me for the first time ever, independently and clearly! By the second week, he was writing independently, legibly, and spelled “beach hotel!!!” Of course, his favorite place on Earth. Since then, we hear new language all the time. He writes many requests/words!!!

What if we utilized these methods alongside traditional therapies? What if you had a child to work with that was healthier, clearer thinking, lower anxiety, with behaviors lessened? How much more effective would these traditional therapies be?? With this holistic approach, how much more progress could we attain with our amazing children?? Take it day by day! Start with one product and grow it! Don’t forget, you are all warriors!

–Nechel