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Brain Injury

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Image by StockSnap from Pixabay

The Long-Term Services and Supports (LTSS) Subcommittee meeting was held yesterday, November 6, 2024. During the meeting, a number of presentations were given. In addition to the presentations, the agenda and a document that provided follow-up items from the October 2, 2024, LTSS Subcommittee meeting were provided.

Members should take time to review the PowerPoint presentations from the meeting below:

The 2025 meeting dates for the LTSS Subcommittee were also shared:

  • January 8, 2025
  • February 5, 2025 (virtual only)
  • March 5, 2025 (virtual only)
  • April 2, 2025
  • May 7, 2025
  • June 4, 2025
  • July 2, 2025
  • August 6, 2025
  • September 3, 2025
  • October 1, 2025
  • November 12, 2025
  • December 3, 2025

The meetings will continue to be held from 10:00 am – 1:00 pm.

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Living the D.R.E.A.M! Creating a Culture of Health and Wellness for All
December 4, 2024
9:00 am – 12:00 pm

The Department of Human Services’ (DHS) Office of Developmental Programs (ODP) and the Office of Mental Health and Substance Abuse Services (OMHSAS) have announced the Dual Diagnosis Professional Conference “Living the D.R.E.A.M.” During this session, SPIN will provide an historical overview of how they created a culture of health and wellness by engaging all stakeholders in living a healthy lifestyle. Presenters will showcase SPIN’s mission of inclusive and holistic meaningful activities in the community and SPIN Community & Fitness, a gathering and welcoming place for the whole community. The D.R.E.A.M team model, including the vision and purpose, elements of “Living the D.R.E.A.M,” and lessons learned for successful incorporation into everyday lives, will be featured.

Registration is now open.

See the announcement for a full session description, presenter biographies, and how to register.

Email with any questions.

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Image by Markus Winkler from Pixabay

Message from the Office of Long-Term Living (OLTL):

The Commonwealth is working collaboratively — Governor Shapiro’s office and the health hub agencies (Health, Human Services, Drug and Alcohol Programs, and Insurance) — to develop a statewide maternal health strategic plan. We need your help to make it a robust, comprehensive, collaborative, living, and most importantly, active plan.

As you are likely aware, Pennsylvania, like the nation, is experiencing a maternal health crisis.

According to the Pennsylvania Maternal Mortality Review Committee report, in 2020, Pennsylvania residents experienced a pregnancy-associated mortality ratio of 83 deaths per 100,000 live births with large disparities identified. In total, 107 individuals lost their lives during pregnancy, delivery, or up to one year postpartum.

Those numbers are far worse for Black women, where the rate was twice as high at 163 deaths per 100,000.

We also know that women and birthing people with disabilities experience unique challenges and needs on their health journey, so we are inviting you to join us for a 90-minute Zoom listening session where members of the Commonwealth’s health agencies and members of the statewide maternal health strategic plan can engage with you to learn what specific needs you have and how you feel the Commonwealth should address those needs.

We want our strategic plan to address all Pennsylvania women and birthing people, and sharing your voice at this listening session will help inform our plan.

The Zoom listening session is scheduled from 10:00 am – 11:30 am, on Friday, December 6, 2024. Please RSVP electronically by December 1 if you plan to attend. We will send the Zoom link by end of day December 4 to those who RSVP.

Thank you for considering spending 90 minutes with the disability community and state health team members to share your thoughts and needs around maternal health.

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The agenda for the PD&A meeting includes three of the hottest topics for all providers serving older persons and individuals with physical or intellectual disabilities.

  1. Election Recap – including implications of state and federal results
  2. Secretary Jason Kavulich providing an update on the state Strategic Plan and the Older Americans Protective Services Act
  3. Anna Keith, VP of LTSS at Pennsylvania Health & Wellness, will share a presentation she recently made at the National MLTSS Association, about Workforce Development.

Register here to participate. If you have any questions, please contact Fady Sahhar.

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RCPA has been notified about an interesting brain injury project in development that will benefit survivors, care partners, and professionals.

This project is being led by staff from the University of Washington, with a number of individuals from Pennsylvania working with them. The project aims to develop the National Brain Injury Network — a network connected by a website offering resources, research, and a platform for connection among those with lived experience, care partners, and health care providers. Please use this link for more information about this project.

A very quick survey was developed to gather feedback that will play a crucial role in shaping the site to ensure it meets the needs and priorities of the brain injury community. Participation is voluntary and anonymous. RCPA’s brain injury providers are strongly encouraged to complete the survey and also to pass it on to others within your networks (professionals, survivors, and caregivers). If you have questions or comments, please contact the Brain Injury Network core team.

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Mark your calendars and plan to join IPRC for our exciting 2025 educational webinar series! Complimentary registration for all IPRC webinars is a benefit of your RCPA/IPRC Membership.

Thursday, January 16, 1:00 pm – 2:00 pm EST 
Neuro-Opthalmic Rehabilitation

Friday, February 7, 1:00 pm – 2:00 pm EST
POTS (Postural Orthostatic Tachycardia Syndrome)

Monday, March 3, 12:00 pm – 1:00 pm EST
Data-Driven Decision Making

Monday, March 24, 12:00 pm – 1:00 pm EST
Evidence-Based Practice: A Clinical Perspective

Tuesday, April 15, 11:00 am – 12:00 pm EDT
Part 1: Motivational Interviewing with Children

Tuesday, April 22, 11:00 am – 12:00 pm EDT
Part 2: Additional Strategies for Patient Engagement

Tuesday, May 20, 1:00 pm – 2:00 pm EDT
Treating FND: Functional Neurologic Disorder

Thursday, September 4, 12:00 pm – 1:00 pm EDT
The Therapy Intensive Model

Tuesday, October 7, 11:00 am – 12:00 pm EDT
Treating Non-Accidental Trauma

Monday, November 3, 12:00 pm – 1:00 pm EST
The Intersect of Functional Imaging and Clinical Presentations

Monday, December 8, 2:00 pm – 3:00 pm EST
Treating Pediatric Burns

Do you have a great topic or know a fantastic presenter? Please reach out to Cindi Hobbes, IPRC Director.

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Wednesday, November 6, 2024
12:00 pm – 1:00 pm EST; 11:00 am – 12:00 pm CST;
10:00 am – 11:00 am MST; 9:00 am – 10:00 am PST
Register Here

Kelsey Titgen, PT, DPT
Rachel Stanley, OTR/L

Presenter Bios:
Kelsey Titgen, PT, DPT

Kelsey earned her Doctorate of Physical Therapy from Emory University in 2018. Since graduating, she has worked in the acute care rehabilitation departments at Children’s Healthcare of Atlanta Egleston and Arthur M. Blank hospitals. In her tenure at Children’s Healthcare of Atlanta, she has treated patients in all inpatient units of the hospital, including PICU, multi-trauma, brain injury, oncology, and technology-dependent ICU. Over the past three years, Kelsey has taken on a primary and co-lead role in the cardiac intensive care unit and step-down unit, focusing on mobilizing patients on ECMO, various types of ventricular assist devices, and those recovering from open-heart surgery. She most enjoys her work supporting pediatric patients with congenital heart defects.

Rachel Stanley, OTR/L

Rachel graduated from Brenau University in 2020 with a degree in Occupational Therapy. After receiving her degree, she joined the Children’s Healthcare of Atlanta acute care rehabilitation team. Rachel primarily treats patients in the PICU and serves as an OT representative on the ICU Liberation Committee, a multi-disciplinary hospital committee focused on minimizing the effects of pain, agitation/sedation, delirium, immobility, and sleep disruption. Rachel is passionate about working with patients in the intensive care unit, including those on ECMO, and is dedicated to advancing the ICU Liberation program at Children’s Healthcare of Atlanta.

Objectives: At the end of this session, the learner will:

  • Describe three benefits of early mobilization of a pediatric ventilated patient;
  • Identify two examples of therapeutic activities that can be performed at each level of mobility; and
  • Understand varying levels of respiratory support and the implications of each during early mobility of a pediatric ventilated patient.

Audience: This webinar is intended for all interested members of the rehabilitation team.

Level: Beginner-Intermediate

Certificate of Attendance: Certificates of attendance are available for all attendees. No CEs are provided for this course.

Complimentary webinars are a benefit of membership in IPRC/RCPA. Registration fee for non-members is $179. Not a member yet? Consider joining today.

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Part of the CHC waiver discussions that began with the Office of Long-Term Living (OLTL) this spring related to mandatory background checks for employees. Since this discussion, OLTL has decided not to move forward with this change in the renewal and amendment submitted to CMS. This change in position was a result of the subsequent public comments and feedback on the collateral impacts.

Also contributing to this reversal were coordinated advocacy efforts by RCPA’s Coalition for Choice partners, resulting in the elimination of the requirement for federal background checks, including FBI fingerprinting, for over 125,000 caregivers and direct care workers for services in the Community HealthChoices and OBRA waivers. The costs for these mandatory background checks would have been in excess of $50 per employee.

The resulting decision will be included in the review and presentation of changes during the LTSS meeting next Wednesday, November 6. At this time, the background check requirements remain under consideration by OLTL for future amendments and renewals.

If you have any questions or need assistance, please reach out to Fady Sahhar.

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