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Intellectual & Developmental Disabilities

The Office of Developmental Programs (ODP) has shared ODPANN 25-086. This communication is to announce the availability of performance standards for providers of Residential Habilitation, Life Sharing, and/or Supported Living services in the Consolidated and/or Community Living Waivers (residential services) for contract year 2026/27.

Attachments with the communication:

Please view the announcement and additional documents for details.

Virtual Office Hours (VOH) for Supports Coordination Organizations (SCOs) are available to speak with the Office of Developmental Programs’ (ODP) leadership about Performance-Based Contracting (PBC). Questions and concerns related to the summit materials and rollout will be addressed. Click on each session to register.

VOH Session One
Thursday, September 18
3:00 pm – 4:30 pm

VOH Session Two
Wednesday, October 1
12:30 pm – 2:00 pm

VOH Session Three
Wednesday, October 8
11:00 am – 12:30 PM

VOH Session Four
Thursday, October 16
11:00 am – 12:30 pm

Due to budget constraints, the Office of Long-Term Living (OLTL) has announced a change to the upcoming Long-Term Services and Supports (LTSS) Subcommittee meeting. The next LTSS Subcommittee meeting on Wednesday, October 1, will be held as a webinar with remote streaming only, from 10:00 am to 1:00 pm. To register for the webinar, please use this webinar registration link. After registering, you will receive a confirmation email containing information about joining the webinar.

Registration for the September Virtual Office Hours (VOH) sessions are now available for trainers, primary contacts, and/or agency administrators. If interested in joining, please use the registration link available on your Med Admin Trainer Dashboard. Registration is only available for trainers, primary contacts, and/or agency administrators. VOH for the September 18, 2025 sessions are listed below.

  • Thursday, September 18, 2025, 9:00 am – 10:00 am
  • Thursday, September 18, 2025, 2:00 pm – 3:00 pm

Photo by René DeAnda on Unsplash

The White House has released the Spring 2025 Current Unified Agenda of Regulatory and Deregulatory Actions. As a quick reminder, the regulatory agenda is a non-binding statement of intent for regulatory activity that federal agencies plan to act on over the next six to twelve months.

Below are a few notable highlights from the Unified Agenda we’d like to share:

  • The Food and Drug Administration intends to publish a final rule banning the use of Electrical Stimulation (Shock) Devices in May 2026.
  • Also in May 2026, the Department of Health and Human Services (HHS) intends to publish a final rule on HIPAA Cybersecurity Standards.
  • HHS also intends to continue its rulemaking on state-directed payments for MCOs and provider tax methodology changes.
  • In October 2025, HHS plans to publish a proposed rule that would clarify the existing definition of disability to exclude gender identity disorders and/or gender dysphoria (for the purposes of the non-discrimination requirements of Section 504 of the Rehabilitation Act of 1973).
  • The Centers for Medicare and Medicaid Services (CMS) plans to proceed with a rule giving states additional flexibility to use immigration information in determining Medicaid and CHIP eligibility.
  • The Department of Labor will continue its FLSA-related rulemaking (e.g., the companionship and independent contractor rules).

In its preamble to the Unified Agenda, HHS states that its regulatory actions are intended to show its “commitment to managing chronic disease; eliminating unnecessary administrative expenses and rent-seeking practices that increase healthcare costs; battling obesity; ensuring the safety and efficacy of our vaccines; protecting the religious liberty of our medical workforce; and standing up for the health and well-being of biological women, children, and families, among other policy priorities.”

For Questions or Additional Information
Please contact Tom Rice at ANCOR for any follow-up or inquiries related to this update.

Wednesday, October 15, 2025
11:00 am – 12:00 pm EDT; 10:00 am – 11:00 am CDT;
9:00 am – 10:00 am MDT; 8:00 am – 9:00 am PDT
Register Here

Presenter Bios:

Kara Monnin, PhD
Kara Monnin is a Clinical Assistant Professor of Pediatrics at Nationwide Children’s Hospital (NCH) and Ohio State University’s School of Medicine in Columbus, OH. She provides clinical services across multiple inpatient units, including Complex Healthcare, Inpatient Physical Medicine and Rehabilitation, and acute care services (PICU, Trauma/Surgery/Neurosurgery). Dr. Monnin also serves as a member of the Advanced Illness Management/Palliative Care team at NCH and specializes in traumatic brain injury, rehabilitation populations, and children and adolescents with complex medical needs.

Kelsey Klaus, MSW, LISW-S
Kelsey is a clinical lead in the Clinical Medical Social Work Department at Nationwide Children’s Hospital in Columbus, Ohio. Kelsey’s area of focus is in the Developmental Behavioral Pediatrics Clinic, where she works with children and families to mitigate barriers to optimal developmental outcomes. Kelsey is passionate about treatment planning from a person-first perspective, assisting families in sharing respectful engagement, inclusive treatment discussions, and autonomy on their treatment journey. Kelsey is a longtime resident of Columbus, Ohio, where she resides with her husband and four-year-old son.

Objectives: Following this course, the learner will:

  • Define Non-Accidental Trauma and Self-Inflicted Intentional Injury​;
  • Discuss current statistics, precipitating factors, and resulting trauma for those in the wake;​
  • Implement strategies to respond to NAT and self-inflicted intentional injury with a trauma-informed approach​; and
  • Evaluate the ways in which healthcare systems can reduce re-traumatization.

Audience: This webinar is intended for all interested members of the rehabilitation team.

Level: Intermediate

Certificate of Attendance: Certificates of attendance are available for all attendees. No CEs are provided for this course.

Complimentary webinars are a benefit of membership in IPRC/RCPA. Registration fee for non-members is $179. Not a member yet? Consider joining today.

Attendees may wish to review Preventing Secondary Trauma & Practical Self Care prior to this session.

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REMINDER — PLEASE DISREGARD IF YOU HAVE ALREADY COMPLETED THIS SURVEY

Pennsylvania’s General Assembly has not yet passed the budget for FY 2025/26, and we are already two months into this fiscal cycle. This delay is creating another crisis while communities grapple with the longer-term implications of the recently passed HR 1 Tax Reconciliation Bill at the federal level. We want to hear from you via this 2025 Budget Impasse Survey so that we can raise a collective nonprofit clamor about the impact this delay has on real people in every neighborhood and community in the Commonwealth.

We know — our organizations are over-surveyed during times of urgency!

So, to eliminate duplicative work, various associations and networks, including RCPA, have come together to collect data regarding both the current and projected impact on both for-profit and nonprofit financials, staffing, and ultimately those served. We will share information with everyone involved so that the survey results can be analyzed and disseminated to the media and legislative contacts most efficiently. Below are the organizations that are coming together to collect this data in order to show you the importance of this information.

For more details about the length of the survey and those best suited to complete it, please see this PDF version so you can prepare. The initial survey deadline is 11:59 pm on Monday, September 15, 2025. For questions about the survey, please email Anne Gingerich, Executive Director, PANO.