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Intellectual & Developmental Disabilities

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Friendly nurse cares for an elderly woman in a nursing home.

The Pennsylvania Department of Aging has released the PA Master Plan for Older Adults White Paper. The White Paper is an overview of the origins, development process, and core tenets that are shaping this foundational 10-year aging plan for Pennsylvania and is being offered to aging stakeholders and all interested individuals as a reference guide when formulating and submitting comments on the development of the plan.

Digital forms for providing online comments and participating in a needs assessment survey are available here. This site also contains continually updated information on hundreds of community listening sessions that the Area Agencies on Aging (AAA) are convening in every county in Pennsylvania.

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Last week, the US Department of Health and Human Services (HHS) Secretary Xavier Becerra hosted a press conference to announce a rule proposed by the HHS Office for Civil Rights that would update Section 504 of the Rehabilitation Act of 1973. This is the first time these critical regulations will have been updated since they were originally signed in 1977, after four years of tireless advocacy and a 28-day protest led by disability civil rights leaders.

Updates to the rule include:

  • Clarifications on the obligations to provide services in the most integrated setting appropriate to a person’s needs, consistent with the Supreme Court’s decision in Olmstead v. L.C;
  • Medical treatment decisions are not based on biases or stereotypes about people with disabilities, judgments that an individual will be a burden on others, or beliefs that the life of an individual with a disability has less value than the life of a person without a disability;
  • Adoption of standards for accessible diagnostic medical treatment;
  • Adoption of the Web Content Accessibility Guidelines (WCAG) 2.1, Level AA, which are accessibility standards for websites and mobile applications;
  • Clarification of requirements in HHS-funded child welfare programs and activities to help eliminate discriminatory barriers faced by children, parents, caregivers, foster parents, and prospective parents with disabilities; and
  • Prohibition of the use of value-of-life assessments in treatment decisions.

Read the official announcement, full rule, fact sheet, and instructions on how to provide comments on the HHS website. If you have any questions, please contact Fady Sahhar.

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Governor Shapiro, via video message, announced to the National Association of Direct Support Professionals (NADSP) at their annual convention in Pittsburgh today, that he has ordered an immediate review by ODP of current reimbursement rates for ID/A home and community-based services. In addition, the Governor’s intention is that the 2024/25 state budget will utilize this completed assessment to inform how to improve support and increase funding for these programs even further. RCPA will share any additional information on this evaluation and process as it unfolds.

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Photo by MChe Lee on Unsplash

The Office of Developmental Programs (ODP) has shared a new policy issued by the Pennsylvania Department of Education (PDE) that allows students who are eligible under federal IDEA to access a Free and Appropriate Public Education until their 22nd birthday. This means if a student would have traditionally exited from high school during or after the school term in which they turned 21 years of age, they now may remain in school until their 22nd birthday. This includes students that exited during or after the 2022/23 school term. Students can be reenrolled by contacting the school that the student will attend in the 2023/24 school term as soon as possible and requesting reenrollment.

If you have any questions or concerns, please contact your school district. If you require additional assistance from PDE, please send your request via email to PDE.

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Message from ODP Deputy Secretary Kristin Ahrens:

It is a great source of pride for me that my career in this field began with work as a direct support professional (DSP). More than 30 years ago I was a DSP, first in a private family home and then in residential programs. I know firsthand how difficult the work can be, how exhausting it can be when pulled in to work extra shifts because of staffing shortages. I also know how rewarding it can be when you support someone to live life the way they want or help them achieve something they have worked for, no matter how big or small that achievement is.

The work of DSPs is challenging work. Here in the commonwealth, with our commitment to the vision of Everyday Lives for people with disabilities, we ask a great deal of our DSPs. We ask DSPs to support people with their often complicated medical and behavioral needs and with their physical, social and emotional needs. We ask DSPs to assist people to develop and maintain meaningful relationships with others in the community. We ask DSPs to support people, regardless of how high their support needs are, to live Everyday Lives like any other Pennsylvanian.

With this background, I am pleased to share with you Governor Shapiro’s proclamation that September 10-16 is Direct Support Professional Week honoring the profession and DSPs throughout the commonwealth.

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The Office of Developmental Programs (ODP) has shared a recent announcement that provides eligible providers with the application to receive supplemental funds as part of the ongoing systemic recovery of services for people with an intellectual disability and autism. You can view the announcement here. Eligible providers who are interested in receiving these supplemental payments must complete the application and submit it to Rick Smith by September 30, 2023.

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Image by Dirk Wouters from Pixabay

On May 25, 2023, Governor Shapiro signed Executive Order 2023-09 — Pennsylvania’s Master Plan for Older Adults. This Executive Order directs the Pennsylvania Department of Aging to lead the Master Plan for Older Adults, a state-led, stakeholder-driven, 10-year strategic planning resource that can help states transform their infrastructure and coordination of services for older adult and disability populations.

The Department of Aging has been leading stakeholder listening sessions and presenting at various venues across the state in order to gather input and comments that will support the development of the master plan. Visit here to see the dates and times of virtual listening sessions planned in September; included in these sessions is a PowerPoint presentation.

Members are encouraged to contribute what you think should be the plan’s priority goals, objectives, and initiatives to support the highest quality of life for older adults. Comments can be shared here, via email, or by mail to Pennsylvania Department of Aging c/o Master Plan, 555 Walnut Street, 5th Floor, Harrisburg, PA 17101.  

Members are also encouraged to complete the Needs Assessment Survey, which is designed to capture the experience of older adults and adults with disabilities. The survey will remain open until September 30, 2023.

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