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Intellectual & Developmental Disabilities

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March continues the series on Participant Directed Services. Creating an Everyday Life using Waiver Services comes with some exciting opportunities and challenges. Many individuals use Participant Directed Services to pursue their vision and create the life they want. Join us to explore more about Participant Direction and offer resources and information. These workshops are created by family members and self-advocates FOR family members and self-advocates. Register for upcoming events at PA Family Network’s website.

Join the Participation Direction Summits!

Support Groups

LifeCourse Workshops

Waiver Workshops

Community Engagement Workshops

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The Office of Developmental Programs (ODP) is sharing an important announcement from the U.S. Food and Drug Administration (FDA) warning individuals of the risks related to using smartwatches or smart rings that claim to measure blood glucose levels (blood sugar) without piercing the skin. These devices are different than smartwatch applications that display data from FDA-authorized blood glucose measuring devices that pierce the skin, like continuous glucose monitoring devices (CGM). The FDA has not authorized, cleared, or approved any smartwatch or smart ring that is intended to measure or estimate blood glucose values on its own. If your medical care depends on accurate blood glucose measurements, talk to your health care provider about an appropriate FDA-authorized device for your needs.

View the FDA alert here.

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Photo by Kane Reinholdtsen on Unsplash

Inglis’s Self-Determination Housing of PA (SDHP) 2024 Conference aims to further the SDHP’s mission of bridging the information gap between providers and connecting with others in the accessible housing community while continuing to advocate for the vulnerable populations we serve, specifically those with disabilities and seniors. The goal of the 2024 Conference is to bring together individuals to advance change and impact the way we support people in finding accessible housing solutions to gain independence and increase their quality of life.

The conference will take place June 11 and 12. The RFP will remain open until end of the day February 26. For more information, view the Request for Proposal announcement. You can also submit your proposals on Inglis’s website.

If you have any questions, please contact Fady Sahhar.

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Thursday, March 21, 2024
12:00 pm – 5:00 pm ET
Register for the Meeting

The President’s Committee for People with Intellectual Disabilities (PCPID) will host a virtual meeting for its members to address issues surrounding home and community-based services (HCBS) to be examined in the Committee’s Report to the President. All the PCPID meetings, in any format, are open to the public. This virtual meeting will be conducted in a discussion format with committee members addressing the issues and recommendations identified by PCPID work groups proposing to be incorporated in the PCPID Report to the President. View more details published in the Federal Register notice.

For further information, please email ACL.

This meeting will include CART and American Sign Language (ASL) services. If there are additional reasonable accommodation requests, please contact J. Welborn and Sensis Agency by Thursday, March 7.

Stakeholder input is very important to the PCPID. Comments and suggestions, especially from people with intellectual disabilities, are welcomed. If there are comments related to HCBS or other areas that you would like to inform the PCPID, please share them through the PCPID comment form. Comments received by March 12 will be shared with the PCPID at the March 21 meeting.

About the President’s Committee for People with Intellectual Disabilities
Initially established in 1966 by President Lyndon B. Johnson, the PCPID advises the president and the secretary of health and human services on a broad range of topics that impact people with intellectual disabilities, as well as the professional fields that support people with intellectual disabilities and their families. Its goal is to improve the quality of life experienced by people with intellectual disabilities by upholding their full citizenship rights, independence, self-determination, and lifelong participation in their communities.

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The meeting documents from the February 1, 2024, Long-Term Services and Supports (LTSS) Subcommittee meeting are now available. These documents include the transcript and PowerPoint presentations. You can view the documents below:

The next LTSS Subcommittee meeting is scheduled for March 7, 2024, from 10:00 am – 1:00 pm in the PA Department of Education’s Honors Suite at 333 Market St. in Harrisburg, PA. The option to participate via webinar is also an option. The agenda for the March meeting is available here.

To participate in the meeting via webinar, please visit here. After registering, you will receive a confirmation email containing information about joining the webinar. If you plan to participate via phone, the dial-in number is: (562) 247-8422; PIN: 871-250-554#.

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