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Intellectual & Developmental Disabilities

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Three associations representing community intellectual disability/autism (ID/A) and behavioral health (BH) services providers released a study today that provided a comprehensive review of the ID/A and BH Direct Support Professional (DSP) workforce, the crisis within the workforce, and means to address the crisis. The study identified the need for investment in this workforce as the most important step state policymakers can take to address the workforce crisis.

See the full press release here, which also includes a link to the study being referenced. Contact Jack Phillips, RCPA Director of Government Affairs, with any questions.

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The Department of Human Services (DHS) recently issued the following information and resources in preparation for the roll-out of Community HealthChoices (CHC) beginning January 2018 in the Southwest zone of the state.

Coming to the Southwest Zone in January 2018

The Department of Human Services (DHS) is committed to open and frequent communication to educate and inform individuals who will move to Community HealthChoices (CHC). It is critical that they are aware of the upcoming changes and are able to make an informed decision on their plan selection. We are using multiple channels to get the message out, and want to ensure that you are aware of upcoming information that potential participants will receive.

  • INFORMATIONAL FLYER

Participants in the Southwest Zone received this flyer (also available in Spanish) in August 2017 to inform them that CHC was coming to their county in January 2018.

  • CHC Community Meetings for Participants

Participants in the Southwest will receive an invitation to community meetings in late September.

There will be more than 40 events in the Southwest Zone, with at least one in each of the 14 impacted counties. The meetings will give more information about CHC, the LIFE program, and answer questions participants may have.

To register for a community meeting, participants can go to www.healthchoices.pa.gov or call 1-833-735-4416. A copy of the invitation is available here.

  • Notices

DHS will mail notices to potential participants beginning today. The notice will inform participants that they will transition to CHC in January and will need to select a health plan, also called a managed care organization (MCO).

The notice also tells potentially eligible participants that they may be eligible for the LIFE program.

Copies of the notices are be available here.

  • Pre-Enrollment Packets

Beginning on October 2, 2017, pre-enrollment packets will be mailed to participants. This packet will contain information about each of the health plans and the benefits offered by each plan, and tell participants how to enroll in a health plan. There will be a toll-free number and website for participants to use to make their selection. A day after the packets are mailed, automated calls will be made to let participants know that the packets are coming.

If participants do not select a health plan, they will get a follow-up call.

Individuals who do not select a plan by November 13, 2017, will be assigned to a plan. Individuals can change their plan at any time.

  • Social Media

DHS’ Facebook, Twitter, and YouTube accounts make CHC information readily available. If you are not following us yet, please click the provided links to make sure you are receiving all up-to-date information on CHC and all department priorities.

chc-phases-map

(Map, Community HealthChoices Phases)

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Over the weekend, RCPA staff was contacted by a state representative informing us that a proposal was discussed during the current budget negotiations that would have a negative impact on children with disabilities, who currently qualify for Medical Assistance, often referred to as loophole kids. Loophole kids often come from homes with one or two working parents, and these families generally have private health care insurance coverage and are paying health insurance premiums. The proposals being discussed would add additional cost sharing and/or mandated premiums to already stretched and limited household budgets, and force people who live in poverty to choose between paying the state, and covering other monthly expenses such as food, prescriptions or rent. The proposals being discussed would impose new administrative costs for the Commonwealth, wasting state and federal Medicaid dollars on unnecessary administrative burdens. On Sunday, July 9, RCPA staff sent emails and hand delivered letters to the entire General Assembly and legislative leaders opposing any proposal that would harm Pennsylvania families by making it harder for them to qualify for and keep their health coverage.

Additionally, in its correspondences, RCPA requested that the legislature table this proposal because an important issue such as this should not be entered into during the waning days of budget negotiations. RCPA argued that these types of decisions that affect thousands of disabled Pennsylvania children should be discussed in a public hearing or in stakeholder group meetings before endangering health care benefits for the Commonwealth’s most vulnerable population.

RCPA implores providers to contact their legislators and tell them to oppose this last minute budget negotiating item, and alternatively, if they are serious about discussing this issue then hold a public hearing or stakeholder group meetings, so those who rely upon this funding can have their voices heard. Questions, contact Jack Phillips, RCPA Director of Government Affairs.

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RCPA is partnering with PA Health & Wellness to provide a free webinar on contracting overview and training. We are preparing to ensure continued access of care for participants of the Community HealthChoices program. This webinar will review the PA Health & Wellness contract and the process to become a partner in their network.

This free webinar will be held on Tuesday, June 27, 1:00 pm – 2:00 pm EDT. Please register here. Please download the orientation file.

If you have any questions, please call Melissa J. Siwiec from PA Health & Wellness at 717-551-8020.

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Thu, Jul 20, 2017 11:00 am – 12:00 pm EDT

A PA ABLE Savings Program account gives individuals with qualified disabilities (Eligible Individuals), and their families and friends, a tax-free way to save for a wide range of disability-related expenses, while maintaining government benefits. The state and federal tax-free investment options are offered to encourage Eligible Individuals and  their families to save private funds to support health, independence, and quality of life. Some of the topics that we will discuss include: eligibility requirements for opening a PA ABLE account, the federal and state tax benefits of PA ABLE, and how PA ABLE account interacts with current benefits. Register here for this free webinar.

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Yesterday, the AARP Public Policy Institute released a document, Picking Up the Pace of Change, supported by the AARP Foundation, The Commonwealth Fund, and The Scan Foundation. The report, the third in a series, can be accessed online.

According to authors Susan Reinhard, Jean Accius, Ari Houser, Kathleen Ujvari, Julia Alexis, and Wendy Fox-Grage, the Long-Term Services and Supports (LTSS) State Scorecard aims to pick up the pace of improving LTSS by providing comparable state data to benchmark performance, measure progress, identify areas for improvement, and improve lives.

The goal is for the Scorecard to stimulate a dialogue among key stakeholders, encouraging them to collaborate on strategies for improving their state’s LTSS system. The LTSS State Scorecard — a compilation of state data and analysis — finds that progress toward better support for our rapidly increasing populations that are aging and living with disabilities is slow and uneven, with great variation among states. Still, states made significant improvements in a number of areas.

The two areas with the most significant declines are employment for working-age people with disabilities (21 states) and long-stay nursing home residents moving back to the community (21 states). The Scorecard shows the best, worst, and median scores on 25 indicators and can be compared across states. Pennsylvania’s Scorecard shows performance improvement in eight indicators and one performance decline since the 2014 report. Of the 50 states and the District of Columbia, Pennsylvania is ranked 36 overall and as follows in the five domains:

  • Affordability & Access                   37
  • Choice of Setting & Provider         23
  • Quality of Life & Quality of Care   25
  • Support for Family Caregivers       43
  • Effective Transitions                      28

According to the report, this progress is not enough, even though states are inching toward spending a greater proportion of Medicaid and state LTSS funding on home- and community-based services — a positive trend because it both enables greater independence and is cost-effective. The authors urge accelerated activity so that all states reach much higher benchmarks by 2026; the year when baby boomers begin to turn 80 and begin to experience a greater need for LTSS.

State and federal officials, providers, advocates, and other stakeholders can use the data analytics in this Scorecard to see how their state compares with others and to assess both their successes and areas in need of reform in order to improve support for older people, adults with physical disabilities, and their family caregivers.

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In this year of challenging state-level budget negotiations, RCPA is working with a coalition of community foundations, United Way organizations, Labor Unions, religious and advocacy groups, and other key stakeholders in the #FamilyFirstPA Coalition. The growing list of coalition members can be viewed on the #FamilyFirstPA#FamilyFirstPA website. The main goal of the #FamilyFirstPA Campaign is to ensure that there are no cuts to human services in upcoming 2017/2018 state budget. Cuts to human services not only cause irreparable damage to Pennsylvania families, but they also have adverse impacts on organizations that our families rely on. Sharing family stories via social media was the first phase of this campaign. Now, we need your support to push our efforts to the next level. As a coalition partner, RCPA is encouraging our members to amplify the work of the coalition by making use of the social media resources created by this initiative for the coalition. Engage with #FamilyFirstPA on social media; “Like” us on Facebook and “follow us” on Twitter. The initiative is now sharing family stories from across Pennsylvania and engaging legislators through our posts and tweets. Encourage your staff, families, other organizations, county and state level stakeholders, to like and follow the campaign as well.

Any questions about the work of the #FamilyFirstPA Coalition can be directed to Connell O’Brien, who is serving as liaison between RCPA and the #FamilyFirstPA initiative.

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