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Policy Areas

The Office of Developmental Programs (ODP) is announcing a webinar series, Empowering Teams to Discover Augmentative and Alternative Communication (AAC) from TechOWL, a program of the Institute on Disabilities at Temple University. Learn how to build a team to find and implement AAC solutions for individuals with complex communication needs. The flyer contains the schedule and registration link for these trainings. Each of the three webinar topics will be repeated across multiple cycles. Attend consecutive trainings in one complete cycle or select dates from different cycles that work for your schedule. Register here.

The Managed Long-Term Supports and Services (MLTSS) Subcommittee convened on March 9 and included many important discussions and presentations. Updates specific to the Office of Long-Term Living were provided by Deputy Secretary Jamie Buchenauer. The details of her update are included in her PowerPoint presentation. One important update included in her presentation was the announcement that the Appendix K waiver flexibilities were applied to continue six months beyond the end of the Federal Disaster Declaration. The Centers for Medicare and Medicaid Services has indicated that this will be approved and that the flexibilities should continue at this time and beyond.

Other presenters and updates were provided by the following:

Title: What’s the Big Deal About Trauma? presented by Diane Wagenhals, Program Director for the Lakeside Global Institute, and Dr. Sandra Bloom, Author of Creating Sanctuary: Toward the Evolution of Sane Societies

Date: Thursday, April 22, 2021, 2:30 pm to 4:00 pm EST

Registration is required for this FREE event.

Many organizations today are under a lot of pressure to become trauma-informed. Both professionals and parents are hearing about the importance of recognizing as well as preventing trauma from happening to the children in their lives. These demands can be a source of confusion: what does being trauma-informed mean? Why is it so important? What is trauma about, anyway?

You are invited to attend this webinar that will feature Dr. Sandra Bloom and Diane Wagenhals. Together they will describe what history and science have taught us about the nature of trauma, what becoming trauma-informed and trauma-responsive means, and why it is such a big deal.

Learning Objectives:

  • Define trauma and its impact, and why it is such a big deal;
  • Describe the causes and neurobiological underpinnings of trauma; and
  • Explain what being trauma-informed means for organizations and individuals.

Visit this web page for more information.

CDC Guidelines were updated March 8, 2021:

How to Protect Yourself and Others

COVID-19 vaccines are effective at protecting you from getting sick. Based on what we know about COVID-19 vaccines, people who have been fully vaccinated can start to do some things that they had stopped doing because of the pandemic.

We’re still learning how vaccines will affect the spread of COVID-19. After you’ve been fully vaccinated against COVID-19, you should keep taking precautions in public places like wearing a mask, staying six feet apart from others, and avoiding crowds and poorly ventilated spaces until we know more.

To read all of the guidance visit the CDC: When You’ve Been Fully Vaccinated web page.

Intellectual disability puts individuals at higher risk of dying earlier in life than the general population, for a variety of medical and institutional reasons. A new study, (published 3/5/21) from Jefferson Health, examined how the COVID-19 pandemic has affected this group, which makes up 1–3% of the US population. The study, published today in the New England Journal of Medicine (NEJM) Catalyst, found that intellectual disability was second only to older age as a risk factor for dying from COVID-19.

“The chances of dying from COVID-19 are higher for those with intellectual disability than they are for people with congestive heart failure, kidney disease or lung disease,” says lead author Jonathan Gleason, MD, the James D. and Mary Jo Danella Chief Quality Officer for Jefferson Health. “That is a profound realization that we have not, as a healthcare community, fully appreciated until now.”

The authors examined 64 million patient records from 547 health care organizations between January 2019 and November 2020, to understand the impact of the COVID-19 pandemic on patients with intellectual disabilities. They identified variables such as COVID-19, intellectual disability or other health conditions, as well as demographic factors such as age.

The results showed that those with intellectual disabilities were 2.5 times more likely to contract COVID-19, were about 2.7 times more likely to be admitted to the hospital, and 5.9 times more likely to die from the infection than the general population.

The Office of Developmental Programs (ODP) is distributing ODPANN 21-025: Respite for a Participant Receiving Life Sharing Services. This communication is intended to clarify which procedure codes to use for a participant receiving Respite services in a Life Sharing setting. ODP is implementing five new 24-hour Respite service procedure codes that represent Respite for a participant(s) who receives this service in a Life Sharing setting only (whether licensed or unlicensed). Please review the announcement for additional information.