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Photo by Markus Winkler on Unsplash

Deputy Secretary Ahrens of the Office of Developmental Programs (ODP) shared a PowerPoint today, July 25, 2024, at the MAAC meeting. Highlights included ODP’s plan to publish several documents. ODP will be submitting waiver amendments for the 1915(c) waiver and the new 1915 (b)(4) waiver to the Centers for Medicare & Medicaid Services (CMS) on July 26, 2024. In addition, ODP Bulletin 00-24-01: Performance-Based Standards for Residential Services and an ODP announcement regarding the waiver submission, including an implementation guide and provider self-assessment, will be released tomorrow, July 26.

RCPA will share these documents with members as soon as they are available.

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With the passing of the FY 2024/25 PA budget last week, intellectual and developmental disabilities and autism (ID/A) associations are attempting to obtain clarity regarding its impact on services. The Governor’s Office announced, however, that the scheduled meeting to review these impacts has been postponed in order to allow the Department of Human Services (DHS) more time to analyze the details of the budget. The Governor’s Office shared the following message:

The Commonwealth’s enacted FY24-25 budget includes a philosophical shift in how Pennsylvania approaches service delivery for individuals with intellectual disabilities and autism – a much needed and overdue course change to invest in dignity and opportunity for this community. In February, Governor Shapiro announced the intent to tackle the waiting list for services with a new approach, the Multi-Year ODP Program Growth Strategy. Accompanying this structural change is a substantial investment in services for individuals with intellectual disabilities and autism totaling $354.8M combined state and federal funds – an investment that supports providers, direct support professionals, and families who help make our vision of Everyday Lives a reality.

Included in the total funding is $280M in federal and state funds, which averages 7 percent rate increases for FY24-25. DHS is continuing the analysis of the funds appropriated for FY24-25 for ID/A services and how this will reflect in final rates that will take effect for FY24-25. Also included is an investment of $74.8M in combined federal and state funds for FY24-25 to put the commonwealth on a path to end the emergency waiting list by offering 1,500 adults enrollment in the Consolidated or Community Living Waivers and altering the management of home and community-based services capacity.

In addition to rate increases, the enacted budget includes funding for the implementation of performance-based contracting and the addition of sign language interpretation services. Performance-based contracting is scheduled to be implemented for residential services beginning in FY24-25. Sign language services will be added to ODP’s home and community-based waivers beginning January 1, 2025, pending approval from the Centers for Medicare and Medicaid Services.

We know there is great interest to further discuss the impact of the enacted budget on your programs and services. DHS will provide additional information to stakeholders related to the necessary recalculation for the fee schedule rates for FY24-25 and performance-based contracting upon completion of the analysis.

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HARRISBURG, PA (July 12, 2024) – Intellectual disabilities and autism (ID/A) advocates and providers are calling the final 2024/25 Pennsylvania budget a “strong step forward” that will “change so many lives for the better.” The approved budget includes additional funding for increased rates and more capacity to serve the waiting list. As Gov. Josh Shapiro noted last night in his final budget remarks, “The ID/A community was finally heard in these halls of power.”

“I am grateful for the partnership and collaboration with Pennsylvania Advocates and Resources for Autism and Intellectual Disabilities (PAR), The Provider Alliance, MAX Association, The Alliance of Community Service Providers, The Arc of Pennsylvania, and RCPA,” said Richard Edley, PhD, CEO and President of Rehabilitation and Community Providers Association (RCPA). “It was this unique and unified advocacy that has led to this important step forward in the administration’s multi-year growth strategy. Thank you, Governor Shapiro, and the House and Senate, for listening. We look forward to our continued work together.”

View the full press release here.

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On July 11, 2024, Governor Shapiro signed a bipartisan 2024/25 budget that invests in a range of fields, from health care to public transportation to education. The details of the budget are available in the Governor’s Press Release, which highlights each field and dollar amounts signed. In particular, the budget addresses:

  • Supporting PA’s ID/A community and Direct Support Professionals (DSP);
  • Investing in gun violence prevention;
  • Increased funding for nursing homes and the Aging Our Way plan;
  • Combatting maternal mortality; and
  • Further investments in mental health.

RCPA Policy Staff will be reviewing the budget in great detail over the next few days. We plan to reach out to our members with updates and key information as more becomes available and analyzed. If you have any questions regarding the budget, please reach out to your Policy Director.

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Last evening, the Brain Injury Association of America (BIAA) released the following Action Alert regarding a bill that proposes to eliminate brain injury (BI) programs at the Centers for Disease Control and Prevention (CDC) Injury Center. View the Action Alert below:

House Budget Bill Proposes to Eliminate Brain Injury Programs at the CDC Injury Center

Dear Brain Injury Champions and Advocates,

On Wednesday, the House Subcommittee on Labor, Health and Human Services, Education, and Related Agencies proposed a budget bill for Fiscal Year 2025 that would eliminate all brain injury programs under the Centers for Disease Control’s Injury Center.

This would be an enormous step backwards. Without these brain injury programs, we’ll have even less accurate data and create a void in public education and outreach.

We need you to help us oppose this proposal and preserve brain injury programming!

ACTION ALERT:

We are asking ALL our advocates to email and call House Appropriations Labor and Health and Human Services Subcommittee members and ask them to save the Injury Center by 9:00 am on Wednesday, July 10.

You can learn more about what’s at stake and find a sample email and phone script by selecting the Take Action Now button below.

Take Action Now

We need all the help we can get. You can help by spreading the word on social media and within your social circles! Action is needed NOW!

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Self-advocates joined RCPA, several legislators, and other associations and provider organizations at a press conference to support ID/A funding in the state budget on Wednesday, June 26, 2024, at the State Capitol in Harrisburg. As part of his 2024/25 budget proposal, Governor Josh Shapiro called for investing $483 million in state and federal funds into the network of care for individuals with intellectual disabilities and autism (ID/A). If enacted, the funding would allow more individuals to access professional support and services as well as relieve families of around-the-clock caregiving duties. ID/A providers across Pennsylvania have long called for increased state investments, and this allocation will allow providers to recruit and retain more direct support professionals (DSP) who have cared for these individuals at low wages. The lack of DSPs and funding have caused thousands of Pennsylvanians to wait months or more for services and support.

Sherri Landis of the Arc of PA spoke, as did Representatives Kinsey and Heffley.

In addition, many self-advocates, including DSPs and family members of those with ID/A, attended and spoke about the need for funding.

 

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