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ODP

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Waiver 101: What is a Waiver, and What Does It Do?
December 4, 2025
5:30 pm – 7:00 pm
Register Here

The Office of Developmental Programs (ODP) invites individuals with intellectual disabilities and/or autism (ID/A) and their families to join in a virtual discussion with members of the Division of Policy and Program Innovation. These sessions are informal, meaning the conversation will not be recorded, and rules will be set before the session starts to ensure everyone feels comfortable and safe to provide questions and comments. The session will be held through Microsoft Teams.

Please note: This event is being held only for individuals and family members; this is not an event for someone who is only a professional.

What Will Be Covered?

ODP staff will provide an overview of the ID/A Centers for Medicaid and Medicare (CMS) waivers available in Pennsylvania. This session will consist of a brief history of ID/A services in PA, what ODP is, and how the “waivers” came to exist and their purpose. The session will also include time to explore the Department of Human Services’ (DHS) and ODP’s websites for this information.

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The Office of Developmental Programs (ODP) is sharing this important announcement from the PA Department of Health.

As of November 11, 2025, 15 infants with suspected or confirmed infant botulism were reported from 12 states: Arizona, California (2), Illinois (2), Kentucky, Minnesota, New Jersey, North Carolina, Oregon, Pennsylvania, Rhode Island, Texas (2), and Washington. Laboratory confirmation for some cases is ongoing. Illnesses started on dates ranging from mid-August to November 2025. All 15 infants were hospitalized and treated with BabyBIG®. No deaths were reported. Infants ranged in age from 16 to 157 days. State and local public health officials are interviewing caregivers about the foods infants were fed in the month before they got sick. All 15 (100%) reported feeding ByHeart Whole Nutrition infant formula. This investigation is ongoing, and additional cases may be identified.

All ByHeart Whole Nutrition Infant Formula products were recalled. This includes all unexpired lots of formula cans and single-serve “anywhere” sticks. The link to the recall can be found here.

According to the FDA, ByHeart Whole Nutrition Infant Formula makes up less than 1 percent of all infant formula sales in the United States. Given this small market share, recall of these products is unlikely to create shortage concerns of infant formula for parents and caregivers.

Summary:

  • On November 11, 2025, ByHeart, Inc. recalled all lots of ByHeart Whole Nutrition Infant Formula in response to the U.S. Food and Drug Administration’s (FDA’s) ongoing investigation into a recent outbreak of infant botulism.
  • According to the company’s website, ByHeart Whole Nutrition Infant Formula was sold through its website ByHeart.com and through retail stores nationwide, including Amazon, Kroger, Walmart, Whole Foods, Target, SamsClub, and others.
  • Infant botulism is a rare but potentially fatal paralytic illness that impacts babies less than one year old. Symptoms can include constipation, poor feeding, drooping eyelids, weak cry, and progressive muscle weakness.
  • Health care providers (HCP) should call the California Infant Botulism Treatment and Prevention Program (IBTPP) immediately at 510-231-7600 for consultation of suspected case. Consultation is available 24/7. Treatment with botulism immune globulin, BabyBIG®, obtained from California Department of Health, is recommended for all suspected cases of infant botulism.
  • Infant botulism is a reportable disease in PA; all suspected cases must be reported to the Pennsylvania Department of Health (DOH) at 1-877-PA-HEALTH or their local health department.

For More Information

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The Office of Developmental Programs (ODP) has shared ODPANN 25-100 to announce a scheduled upgrade to the MyODP website, making the Learning Management System (LMS) unavailable from Monday, November 24, 2025, through Tuesday, December 2, 2025. This will also have a MyTranscript report replace individual certificates for courses completed on MyODP.

After the upgrade is completed, all users will be required to reselect their primary role upon first login to the site. A virtual training on how to access the new MyTranscript report and an overview of other website improvements will be available. Further details with registration information for the virtual training will be announced sometime prior to November 24, 2025.

Please direct any questions regarding this announcement electronically.

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Life Sharing is a service that has one of the highest rates of satisfaction aligning with an everyday life (Independent Monitoring for Quality (IM4Q)). The Office of Developmental Programs (ODP) wants this service to continue to grow and is providing information to educate everyone about the Life Sharing service. The first step was to create promotional materials to assist with their goal. These documents were created with the assistance of Providers of Life Sharing, Administrative Entities, ODP, and feedback from Supports Coordinators.

In the near future, webinars will also be provided on Life Sharing, and ODP will communicate with stakeholders when these dates are set.

What are These Documents?

There are two documents available:

  1. The Life Sharing Brochure is intended for individuals and families with the hope that Residential Providers that offer the Life Sharing service and Supports Coordination Organizations will print these out and disseminate at their headquarters as well as pass them out as appropriate. This document easily describes what Life Sharing is at a high level.
  2. A one-page document, “Information to Help Supports Coordinators Talk to Individuals and Families About Life Sharing,” is intended for Supports Coordinators to use when having conversations with individuals and families. ODP hopes Supports Coordinators will utilize this form at Individual Support Plan (ISP) meetings and on a more routine basis to help individuals and families understand what the Life Sharing service is and to help them understand there are multiple options for residential services.

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The Office of Developmental Programs (ODP) announced that registration is now open for the December Certified Investigator (CI) Forum. The Temple University Harrisburg Certified Investigator Program and ODP will be facilitating Forums for Certified Investigators and others involved in the incident investigation process.

Please see ODPANN 25-099 for information on how to register and other important details.

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November 19, 2025
9:00 am – 4:00 pm
Register Here

Understanding Neuroplasticity and Recent Advancements in Enhancing Supports

The Offices of Mental Health and Substance Abuse Services (OMHSAS) and Developmental Programs (ODP) invite you to register for the 2025 Dual Diagnosis Conference, which is to be hosted virtually on November 19. Join them for this one-day virtual conference to gain a better understanding of neuroplasticity and recent advancements in enhancing supports for individuals with intellectual and developmental disabilities. There is no cost to attend, but registration is required.

This year’s conference speaker will be Dr. Brandi Kelly. Watch the video to hear from her! Dr. Kelly provides an overview of her presentation on the intersection of wellness and mental health needs for individuals with intellectual and developmental disabilities.

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The Office of Developmental Programs (ODP) is hosting a series of discussion boards and focus groups focused on 1-person licensed residential homes. The discussion boards will be online forums open for 48 hours, allowing participants to log in and out at their convenience throughout the two-day period. Total participation time is expected to be about 2 – 3 hours, and the forums will be semi-anonymous (participants will be identified only by first name). Focus groups will follow the discussion boards and will be scheduled at a later date.

ODP continues to seek participants for the DSP and family stakeholder group. Interested individuals should submit their name, agency (if applicable), and contact information to ODP’s Executive Assistant Jordan Kembel electronically.

Stakeholder Groups & Dates

DSP Group

Discussion Board Dates: December 4 – 5, 2025
ODP is seeking DSPs who:

  • Support individuals in 1-person homes and can share their experiences, successes, and challenges;
  • Have helped individuals transition from 1-person to 2+ person homes; and
  • Support individuals with significant behavioral support needs in 2+ person homes.

Family Group

Discussion Board Dates: December 11 – 12, 2025
ODP is seeking family members who have a loved one living in a 1-person licensed home and are willing to share their perspectives and experiences.

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The Office of Developmental Programs (ODP) has shared ODPANN 25-097 and its accompanying attachments. This communication informs all parties of the importance of supporting individuals in maintaining their eligibility for Medicaid and in verifying an individual’s eligibility for Medicaid prior to delivering services. Read the announcement for details, and view the attachments below:

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