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Survey

The Brain Injury Association of America (BIAA) recently released the results and highlights from their first public opinion survey in over 25 years.

Some of the key findings from the results of the survey include:

  • Brain injury affects nearly 4 in 10 people, but fewer than 1 in 4 are asked about brain injury by healthcare providers.
  • While most adults claim to be familiar with concussions, their knowledge about brain injury is mixed.
  • Brain injury is seen by most people as a chronic health condition but not as an invisible or hidden disability.
  • More than 8 in 10 (81%) adults in the U.S. do not recognize concussions as traumatic brain injuries.

The Harris Poll conducted the online survey on behalf of the Brain Injury Association of America February 4 – 6, 2025, and polled nearly 2,100 U.S. adults to measure public opinions about and familiarity with brain injuries.

The Office of Developmental Programs (ODP) has shared ODPANN 25-007, which states that the 2024 National Core Indicators® Intellectual and Developmental Disabilities (NCI®-IDD) State of the Workforce (SoTW) survey portal will open on February 10, 2025.

With the introduction of Performance-Based Contracting (PBC) in 2024, residential providers in the Select and Clinically Enhanced tiers, in accordance with performance measure WF 03.3, are now required to “participate in the NCI®-IDD State of the Workforce Survey and release provider NCI®-IDD data to ODP to validate turnover and other workforce data.” All other eligible providers remain strongly encouraged to participate and contribute to the data used to improve the Intellectual/Developmental Disabilities/Autism service system.

The PBC Residential Data Submission Tools for each tier will be open from February 15, 2025, to March 15, 2025. Providers planning to submit for either Select or Clinically Enhanced tiers are advised to complete the NCI SoTW survey. Providers are encouraged to obtain a copy of the NCI SoTW submission before submitting their data and documents to ODP. A copy of the survey can be found here.

Providers not participating in the PBC process will complete the NCI® SoTW survey by June 30, 2025.

Please review the announcement for additional information and detail. Any questions, please contact Ms. Lee Stephens, ODP IM4Q/NCI®-IDD Statewide Lead, via email.

In an effort to gain a better understanding of providers’ ongoing needs and challenges in addressing third party liability (TPL) claims, RCPA is requesting that our members complete the following TPL Survey. This survey was designed to capture critical barriers so as to develop strategic pathways to ensuring access and equity.

In January 2024, Governor Shapiro announced that commercial insurers would be required to meet their obligations under Pennsylvania law to provide coverage for autism benefits by categorizing autism services as a mental health benefit. With this action, all autism services will be treated as mental health services, leading to greater mental health parity for those with autism spectrum disorders. The goal of the Shapiro Administration’s legislation is to improve much-needed access to services for individuals diagnosed with autism, a challenge that the Commonwealth has faced for decades.

As providers of mental health, autism services, and substance abuse disorders, our members treat a vast array of individuals who are insured by either commercial insurance, Medicaid insurance, or both. For those who have just Medicaid, billing is simple: providers bill the Medicaid payor, and they pay the claim. The same is true for those who have just commercial insurance if the provider is in network with the commercial insurance carrier.

Complications occur when an individual has both commercial insurance and Medicaid. Coordination of Benefits (COB) requires that the commercial insurance is billed first, and then Medicaid pays what is not covered. Services like the delivery of Applied Behavior Analysis (ABA) or Intensive Behavioral Health Services (IBHS) are two good examples of services that can fall into this category.

With this survey, we hope to gather information that will assist RCPA and members in addressing the barriers in insurance coverage for children, families, and individuals in Pennsylvania. We thank you for taking the time to complete the survey so that we can continue to seek solutions to access services in our communities.

If you have any questions, please contact RCPA Policy Associate Emma Sharp.

Every 5 years, the Pennsylvania Developmental Disabilities Council (PADDC) is required to develop a State Plan to help guide the work of the Council. The process of creating the next 5-year plan requires PADDC to gather information on the current barriers and concerns in Pennsylvania for those with developmental disabilities and their families. One of the ways they are choosing to gather information is to ask residents of Pennsylvania with a developmental disability, their families, and other involved parties for their input.

The survey will take about 10 minutes of your time. They will use the information from your response to help develop their next state plan. Complete the 5-Year Plan Survey here. Please complete the survey by Friday, March 14, 2025.

The Department of Drug and Alcohol Programs (DDAP) has published a survey titled “Family Members Training Needs” to hear about the training and educational needs of family members or significant others whose loved one may be struggling with drug or alcohol use, receiving substance use disorder (SUD) treatment, or in recovery. DDAP is also seeking to learn more about how to improve the navigation of the SUD services system. The survey should be completed no later than January 6, 2025.

DDAP encourages both those who have someone close to them struggling with SUD and those who do not have someone close to them but who are interested in learning more about educational opportunities to complete the survey.

Please provide us with your input regarding PBC in a very brief survey (only 5 questions). We are asking:

  • How confident are you that you will be ready to submit all data to ODP by the deadline (February/March 2025)?
  • How many staff do you have working on the PBC standards?
  • What are the top 3 challenges you are experiencing in preparing for PBC?
  • What specifically can RCPA do to support your organization to prepare for PBC?
  • What unanswered questions do you have regarding PBC?

Please complete the survey by December 11, 2024. For any questions, contact Carol Ferenz.

Please provide us with your input regarding PBC in a very brief survey (only 5 questions). We are asking:

  • How confident are you that you will be ready to submit all data to ODP by the deadline (February/March 2025)?
  • How many staff do you have working on the PBC standards?
  • What are the top 3 challenges you are experiencing in preparing for PBC?
  • What specifically can RCPA do to support your organization to prepare for PBC?
  • What unanswered questions do you have regarding PBC?

Please complete the survey by December 4, 2025. For any questions, contact Carol Ferenz.