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Intellectual & Developmental Disabilities

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The Office of Developmental Programs encourages you to Spring into Action with Move Your Way!!! Taking steps, big or small, towards increasing your physical activity can improve your health.

Physical activity has lots of long-term health benefits. You can:

  • Reduce risk of dementia, type 2 diabetes, heart disease,
    and certain cancers
  • Help manage chronic conditions, like diabetes and high blood pressure
  • Ease symptoms of arthritis, anxiety, and depression

Physical activity can also help you feel better right away. You can:

  • Boost your mood
  • Sharpen your focus
  • Reduce your stress
  • Improve your sleep

Visit this website for more information!

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The Independent Monitoring for Quality (IM4Q) Statewide Steering Committee, with assistance from the Office of Developmental Programs (ODP), created the above infographic to help individuals and families distinguish between the various surveys and assessments that they could be asked to participate in regarding supports and services available through the Office of Developmental Programs. View the full infographic here.

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The Office of Developmental Programs (ODP) has shared the communication, ODPANN 24-030: Community Participation Support (CPS) Billing Changes to Assist Individuals to Participate in the InVEST Project and Trainings Held by Self Advocacy Power Network for All (SAPNA) and the PA Family Network.

This communication announces CPS billing changes to support individuals’ participation in these offerings. Suggested audience includes:

  • Individuals and Families;
  • Administrative Entities (AEs);
  • Supports Coordination Organizations (SCOs);
  • Providers of CPS; and
  • Any interested stakeholders.

Please review the announcement for additional information and detail; contact ODP directly with any questions.

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The Office of Developmental Programs (ODP) has released the FY 2022/23 Annual Data Report. The ODP Annual Data Report provides statistical information to educate our stakeholders about the individuals ODP serves and the services they receive. This data provides an important overview of the service system ODP oversees that supports individuals with disabilities. The accompanying resource, Everyday Lives: Values in Action Information, Sharing, and Advisory Committee (ISAC) Recommendations, Strategies, and Performance Measures, provides information on indicators of success used to gauge the effectiveness of the work of ODP.

Access the FY 2022/23 Annual Data Report here. This document can also be found by visiting MyODP and following this path: Everyday Lives > Everyday Lives Publications > ODP’s Annual Data Reports.

The Everyday Lives: Values in Action Information, Sharing, and Advisory Committee (ISAC) Recommendations, Strategies, and Performance Measures publications are available here.

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The Office of Developmental Programs (ODP) has shared ODPANN 24-028, which introduces the new SIS-A Discrepancy Form. This announcement also provides guidance on how to submit a review request when discrepancies are identified in a finalized SIS-A Report. All requests must be submitted on this form within 120 days (4 months) of the SIS interview date. The SIS-A Discrepancy Review form can also be accessed in the following ways:

  • On the MyODP SIS website landing page; and/or
  • By scanning the QR Code in the bulletin.

ODP has also created an SIS-A dedicated inbox specifically for the discrepancy review process. You can view the announcement for additional information and details.

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Last week, ANCOR and United Cerebral Palsy (UCP) unveiled the latest Case for Inclusion report: Transforming Temporary Progress into Long-Term Sustainability. The report is a vital resource assessing the effectiveness of state Medicaid programs in serving individuals with intellectual and developmental disabilities (I/DD) and their families. Since 2019, ANCOR has partnered with UCP to publish this comprehensive report, combining transactional data with transformational stories to inspire positive change.

The Case for Inclusion 2024 provides a deep dive into community inclusion across three data snapshots, featuring nearly 80 measures spanning six crucial issue areas: Addressing a Workforce in Crisis; Promoting Independence; Reaching Those in Need; Serving at a Reasonable Cost; Keeping Families Together; and Tracking Health, Safety, & Quality of Life.

Key findings from the report shed light on critical issues, including notable increases in hourly wages for direct support professionals (DSP), rising vacancy rates with full-time vacancy rates increasing to 16.5% and part-time vacancy rates increasing to 20.3%, and persistent challenges in addressing waiting lists for home- and community-based services (HCBS), with 497,354 people on state waiting lists for HCBS across the country.

The report also emphasizes that 17 states and the District of Columbia have closed their state-run institutions. Furthermore, it highlights the participation of 38 states in the federal Money Follows the Person program and the approval of 18 demonstration waivers nationally addressing social determinants of health with 17 more pending.

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