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Intellectual & Developmental Disabilities

The Office of Developmental Programs (ODP) has shared ODPANN 25-067. This communication provides the waiting list report, comprised of individuals who are eligible to receive services and supports through ODP’s four home and community-based services (HCBS) waivers but, due to insufficient waiver capacity, the state cannot currently meet their needs. In this report, you will find information about ODP’s strategies and initiatives to address the problem and see the progress that has been made.

Access the report here ODP_Annual_WL_Report_2024. This report can also be found by visiting the MyODP home page and scrolling to the bottom or by following this path: Everyday Lives > Everyday Lives Publications > ODP’s Waiting List Reports.

In a strategic move to tackle persistent healthcare workforce shortages, the Shapiro Administration has announced that Pennsylvania will officially implement the Physical Therapy Compact (PT Compact) and the Nurse Licensure Compact (NLC) starting July 7, 2025.

These compacts will allow licensed practical nurses (LPN), registered nurses (RN), and physical therapists (PT) who reside in Pennsylvania to obtain multi-state privileges, enabling them to practice across state lines in any member state. This expansion of licensure flexibility is expected to bolster provider mobility, support faster deployment of qualified professionals, and relieve staffing gaps, especially in underserved and rural communities.

By reducing regulatory barriers and enabling a more fluid workforce, these licensure compacts provide a critical tool for healthcare systems facing staffing crises, travel demands, and surging patient needs. It also opens new opportunities for Pennsylvania clinicians to access broader job markets without the need for duplicative licensure.

For healthcare providers and employers seeking relief from workforce shortages, the PT Compact and NLC represent a step toward a more agile and responsive healthcare system.

To learn more, visit the PT Compact website or the NLC information page. To read the full announcement from the Shapiro Administration, visit here.

Hearing All Perspectives: The Development of a Multi-State, Multi-Diagnosis Youth Advisory Council
Free RCPA Members-Only Webinar

Wednesday, August 6, 2025
11:00 am – 12:00 pm
Register Here

This presentation will discuss the formation of a novel and innovative version of a standard Youth Advisory Council (YAC). This particular YAC adds a twist to the traditional means of involving youth by creating a council combining voices of individuals served who have two very different diagnoses: those with an emotional/behavioral disorder (EBD) and those with an autism/intellectual disability (ASD/IDD). Spanning across three states, this internal YAC has been established to hear the voices of and to teach leadership principles and skills to those who are receiving the services offered by Devereux Advanced Behavioral Health.

Presenters:

  • Amy Kelly, MBA, MNM, National Director of Family Engagement, Devereux Advanced Behavioral Health
  • Judy Starr, JD, Deputy General Counsel, Devereux Advanced Behavioral Health

Objectives: Following this course, the learner will:

  • Describe the value of constituents’ voices from services and programs provided, regardless of individual communication type, cognitive ability, or diagnosis;
  • Discuss how to engage leadership and staff to support and sponsor a youth/constituent advisory council; and
  • List some “lessons from the journey” with do’s and don’ts when developing a youth advisory council.

Certificates of attendance are available to RCPA members who attend this webinar; anyone interested in a certificate should contact Cathy Barrick. To apply for CEs, you will need to register for the RCPA Annual Conference Strive to Thrive and indicate you attended the webinar in your CE packet, which will be made available on the mobile app.

Contact Carol Ferenz, Conference Coordinator, for details, or visit the RCPA Conference website for information on workshops, sponsors, exhibitors, and more!

The Office of Developmental Programs (ODP) has shared a revised version of ODPANN 21-073. The revised document details changes made to the process of identifying those with pressure injuries and how the Health Care Quality Units will prioritize outreach to participants. Changes in the document are in red.

Please view the revised document for additional information and details.

Image by BestGraphics_Com from Pixabay

Today, the House voted and passed HR 1 by a margin of 218–214, to advance the bill known as the “Big Beautiful Bill,” which now moves to the White House to Trump’s desk to be signed into law in time to beat a self-imposed July 4 deadline.

The final version cuts about $1 trillion from Medicaid, the federal health insurance program for low-income individuals and people with disabilities, and other health care programs. It reduces spending on anti-hunger programs, including SNAP, the Supplemental Nutrition Assistance Program formerly known as food stamps, by $185 billion.

The Pennsylvania Congressional Delegation all voted on party lines, with the exception of Representative Brian Fitzpatrick, who was one of only two Republicans to join all Democrats in voting against the measure. RCPA thanks Congressman Brian Fitzpatrick for meeting with RCPA last week and for voting against this bill. We are grateful for the Congressman’s support in protecting the most vulnerable populations that rely on Medicaid.

Main Points Relating to Medicaid Include
About 71 million Americans are enrolled in Medicaid, according to the government’s most recent data. According to a Congressional Budget Office report published this week, the changes to Medicaid and the Affordable Care Act in the current version would result in an increase of nearly 12 million more uninsured people by 2034. It is estimated that nearly 600,000 Pennsylvanians could lose Medicaid coverage.

Work Requirements
The bill outlines new work requirements for the popular entitlement program that provides government-sponsored health care for low-income Americans and people with disabilities. They require adults to work, volunteer, or study 80 hours a month to qualify for enrollment, unless they have an exception. The bill also requires parents of children over the age of 14 to work, as well as those receiving SNAP benefits.

Reporting Requirements
The bill also requires Medicaid recipients to prove their eligibility twice a year, instead of annually.

From our Partners at the National Council on Mental Wellbeing
The scale of the funding reductions and new administrative burdens is immense. But it is also important to recognize that some last-minute changes made to the bill in the past week provide an opening for further advocacy efforts that could potentially mitigate some of the impacts. Most relevant provisions of the bill will not take effect immediately, and in some cases, the effects will be phased in gradually over the course of several years. In addition, several provisions require agency rulemaking for full implementation, and there will likely be opportunities for you to engage through the notice and comment process.

RCPA will continue to review the final bill language and will follow up with a detailed analysis on the impacts of the bill; and through ongoing advocacy channels we will engage in with our national and state partners.

The U.S. Department of Labor (DOL) has announced it is withdrawing its previously proposed rule that would have phased out the issuance of subminimum wage certificates authorized under Section 14(c) of the Fair Labor Standards Act (FLSA). The proposed rule, initially published in December 2024, aimed to amend 29 CFR Part 525 to phase out the use of special wage certificates for workers with disabilities.

This withdrawal means Section 14(c) certificates remain in effect, and DOL will continue to issue and renew them as authorized by federal law.

Rationale for Withdrawal:

After receiving more than 17,000 comments — including strong opposition from Members of Congress, service providers, individuals with disabilities, and their families — the DOL determined:

  • It lacks clear statutory authority to unilaterally eliminate a program that Congress has explicitly mandated.
  • Section 14(c) uses the word “shall”, not “may, indicating a mandatory duty for the Department to provide for the issuance of certificates “to the extent necessary to prevent curtailment of employment opportunities.”
  • The continued use of 14(c) certificates by over 40,000 workers as of 2024 indicates ongoing need.
  • Eliminating the program without Congressional action could result in unintended disruptions to employment and disability support services.

Impact on Providers:

  • Employers currently operating under valid 14(c) certificates may continue to do so, subject to existing legal requirements.
  • The DOL has no immediate plans to change the regulatory framework of 29 CFR Part 525.
  • A future rulemaking process could still be initiated, but any substantive changes would likely require Congressional action.

The full text of the rescission can be found here.

This issue of the Positive Approaches Journal, “The Intersection of Mental and Physical Health Impacting Our Communities: Part 2,” continues the theme of the previous issue in exploring and emphasizing the importance of the balanced pursuit of physical and mental wellbeing. Topics include behavior as communication, pica and lead exposure, positive interactions, and more.

This issue of Positive Approaches Journal is available to view in digital form online or download at MyODP’s website.